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Re: ady to give up!!!!!

From: Ilene (anonymous@obgyn.net)
Thu Oct 31 12:41:25 2002


Hi Trish, I just wnated to say to you, to stop trying to be so tuff! After surgery your body needs more rest, and you need to baby yourself more. You body has just been through alot, with having surgery, and needs more rest to regain it's strenth. I believe that this disease is affected a great deal from the immune system, and your body needs to be strong and well rested to FIGHT it. It's a hard lesson and fact to accept but having this disease does mean listening to your body and resting more when things are acting up. And no I am not rich and can lie around when ever I'd like to, it really SUCKS when I am having a really bad day but have to pull up my socks and go to work. But I've started saying no more often to other obligations because I know how much my body suffers when I get run down. Surgery runs the body down, so rest more my dear, when ever you can. And don't feel guilty for it, you didn't ask for this. I just posted my story if you interested. I know what it is like to be at the end of your rope. and for me sadly I don't think I will ever be able to have children. I just want to stress that it is so impertant to find a sympathetic doctor to help you. One that will really listen to how you feel, your pain sytmtoms, what you find works & what doesn't ect. It might take going to see 20 different doctors before you find the right one. I finally found one that holds my hand and actually says "I'm so sorry you have this and have to deal with this". It makes all the difference in the world to know that he REALLY understand that I am suffering!! And not just being a suck. I know he really has my best interest at heart, and is really listening to me, and really wants to help.

Take care Trish, and stay strong, as hard as it may seem. And if it helps, lay down in bed and cry your eyes out for a day, get it out, you have every right to be *issed off, and to feel sorry for yourself once in awhile. Then regroup, and don't stop fighting. My prayers are with you.

At Thu, 31 Oct 2002, Trish wrote: >
>Well, I am at the end of my rope. I am so sick of dealing with this
>disease, the doctors the surgeries and the horrible crippling pain that
>I face on a daily basis. I have dealt with this disease for the better
>part of almost 14 years. Four surgeries and 4 docs later, I am fed up.
>I just had surgery 5 weeks ago, I had some pretty intense work done, for
>multiple things wrong with my body including endo and pelvic congestion.
>I went back to work only three days later, I guess i was trying to prove
>that i am not a baby and i don't make the pain up. I went back to the
>doctor a week ago and he told me that I wouldn't fully be recovered from
>the surgery for a while, and that's fine but what do i do about the
>pain? I can tell the difference from surgery pain and endo pain, but
>nobody wants to listen. I almost want to have a hyst to get rid of the
>pain yet i am only 23 years old and I desperately want children one day,
>one doc who is a friend of mine suggest i try a pain management clinic,
>but I tend to beleive they won't touch me with a ten foot pole. I know
>what pain meds work for me and I don't think i should have to feel like
>a junkie and be begging for pain medication. I don't want to have to
>take anything either, but what in the world am i suppose to do. I am
>afraid to get another opinion in fear they will want to do surgery
>again- and it just isn't giving me any relief. I am sorry this is a
>long post, i just need some words of wisdom! What else can i do- I am
>tired of living my life in pain.
>
>--
>Paramedic/Firefighter- I mainly instruct now- making sure I do lots of research
>to fight this disease.
>Best Wishes to all - Trish
>




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