ENDO Messages for October, 2002: Re: Has my endo come back already?

Re: Has my endo come back already?

From: Susan (anonymous@obgyn.net)
Tue Oct 29 18:22:46 2002

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Hi Mel, I just got a call from my doctor this morning that my iron level is still really low. I have had this problem for a year now and I am taking iron supplements (300mg per day). I am supposed to take one every day but I don't like taking that much so it is usually every other day. I also have a bowl of 100% Bran cereal every morning and it has 29% of the recommended daily amount. I have never had heavy periods, I had a colonoscopy last December to check for colon cancer and that was clear. I don't seem to fit into the usual circumstances for iron deficiency in pre-menopausal women. It doesn't seem to matter what I do the levels won't go up.

I was just about to go checking for diseases that can cause iron deficiency when I read your email here. It was the coincidence of timing that caught my attention. I believe I have read about Celiac Disease before and didn't seem to fit into that profile either as I don't eat breads, pasta or starchy foods much at all. I will give it another look though just in case I missed something before. Thanks for posting about this.

Susan http://groups.msn.com/SusansEndometriosisStory

>
> Before my hysterectomy, I had extremely heavy bleeding and the doctors
> assumed that was causing the severe iron deficiency. Iron pills make me
> very sick, so a hysterecotmy was done. My iron went lower after surgery
> and kept dropping instead of slowly rising. Further testing showed I
> had iron deficiency due to Celiac Disease. Celiac Disease is a
> condition in which you have an allergic reaction to the gluten found in
> wheat, rye, barley, and oats. Most flours, starches, preservations,
> sauces, etc. contain some form of gluten. Anyway, the Celiac Disease
> inflames the small intestines and kills off the villi (sp?). The villi
> is what draws in things like iron. I was placed on a gluten-free diet
> and whad 3 iron infusions. The only good news I've had lately is that
> my Celiac Disease tests indicate that I have my diet under control and
> my iron levels are good.
>
> Plus if you would like me to add to the above, I've also been diagnosed
> with Rosacea. So not only am I battling with female things and Celiac
> Disease, I'm trying to figure out how to keep my red-faced covered up.
>
> Isn't life wonderful? Thanks again for your replies.

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