Re: My meeting with the Endo Specialist from Michigan
From: Duenas (anonymous@obgyn.net)
Mon Oct 28 15:26:47 2002
I to am on lupron my hair is falling out my pain is worse then ever nothing helps I am in constant pain everyday it is non stop. today i went to the doctor and she is really nice she tried to get me in a clinical research for pelvic pain but I do not qualify because I was on lupron. I also have really badnight sweats and hot flashes. I am also going to have an apendectomy with another laporoscopy this will be #3 for me you know waht they say 3rd time is a charm i hope
-----Original Message-----
From: T. Rhodes [mailto:anonymous@obgyn.net
Sent: Monday, October 28, 2002 2:45 PM
To: Multiple recipients of list ENDO
Subject: Re: My meeting with the Endo Specialist from Michigan
I'm right there with you girl. My doc gave me the same line about how
my pelvic pain couldn't be from the endo because I'm on Lupron. Its so
frustrating. I don't have any answers, but I wanted to let you know
you're not the only one experiencing this.
At Fri, 25 Oct 2002, Kimberly wrote:
>
>Well... I don't know what to think. I guess I feel like I have more questions than answers now.
>
>I'll just start by going thru the events of the day.
>
>I arrived early with my signifigant other, Andy. Dr. Daly was very accomodating and even though my appointment was at 1:30 he saw me at 1. He met me in the waiting room and was very nice. He led us back to his office where a female dr was. I can't recall her name. He started asking questions about my medical history and was quite thourough, but as soon as I told him I was in the middle of my second shot of Lupron he seemed to do a complete 180.
>
>He started to get very patronizing and wouldn't talk about my endo at all, confidant that the pain I have is not endo related because I'm on Lupron.
>
>Perhaps he has a point, but I HATE being patronized.
>
>He did not deny that I had Endo, because I brought the images taken from my first lap last Oct. Good thing I did because they were not faxed with my records.
>
>He determined that I have Stage I endo from looking at the images.
>
>Okay.. so on to the pain. He asked where it hurt and I told him and he wrote it all down.
>
>Sometimes during the visit, he'd lighten up and be real nice and then others he'd drop into that patronizing tone again. Ugh.
>
>So he does an internal ultrasound (the woman dr still there...she did the first part of the exam and he did the next)
>
>He asked me to take a few deep breaths, relax, and when he pushed the scope against certain areas, he asked me to rate the pain from 1 to 10.
>
>When all was done, he said that I had rated my rectum and bladder at a 9 and my uterus at 5.
>
>He had me empty my bladder and when he did the scope again, he asked the woman dr what she saw wrong. She said the bladder looked wrong. Seems that the wall of my bladder are 2 times the size of a normal bladder. I admit, it did look big.
>
>He suspects I may have, Interstitial Cystitis and wants my PCP to refer me to a urologist for a cystoscopic exam to be sure.
>
>wonderful... *rolls eyes*
>
>He put me on Prempro to help with the Lupron hotflashes and Dextrol (I think) for pain.
>
>He wants to see me in 6 to 8 weeks to see how I'm feeling.
>
>In roughly 8 weeks the Lupron should be totally out of my body and with the PremPro I'm sure the endo will start growing back since I'm feeding estrogen back into my system. So what then?
>
>I'm changing my diet. Screw drugs. No one can help anyway...
>
>:(
>
>~Kimmy
>
>~~~~~~~
>Kimberly Smith
>Web Technician
>T.M. Cooley Law School
>Lansing, Michigan
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