Re: 2nd LAP done two weeks ago...doctors crude advice
From: Another (anonymous@obgyn.net)
Sat Oct 26 02:53:48 2002
Dear Anon:
I don't feel it is "our" fault for having endo but I do think that your
surgeon realizes/believes that a macrobiotic may be helpful re endo --
is it proven, no, BUT for *me*, diet makes a *huge* difference. Yes,
your surgeon could ease up on you -- after all, ice cream and all the
other wonderful food in this world is one of lifes great pleasures :o).
I must admit though that those many wonderful yummies did flare my endo
pain.
Honestly, although I wouldn't like it if my doctor made me feel like its
my fault that I have endo for not following a restrictive diet - BUT I
would like the fact that he is knowledgeable/insightful enough to
realize that diet has a great impact on our health. So in that regard,
I wish more doctors/surgeons were like your surgeon in that your surgeon
is trying to help you live a better life with less surgery and less
pain.
Yes, it sucks that many of us with endo must restrict our diets to
"control" our endo, but that is just the way it is. For some reason, we
got stuck with these screwed up genes which have turned against us! So
we have to do what we can to manage it.
So I think you should step back and look at your surgeon from a
different perspective -- rather than being defensive and offended, try
to look at it from the perspective of being appreciative for his insight
-- I'm serious about this -- I would appreciate it if my doctors tried
to help/educate me as to how to prevent maladies as opposed to simply
treating them. I actually think you're lucky to have such an
enlightened specialist. Yes, a macrobiotic diet will not *cure* you,
but it very well could have a profound effect re your endo recurrence.
Then again lol, you did say that you are already a vegetarian lol -- for
me, though, I must stay away from phytoestrogens like soy products,
beans, flax seed, and whatever else flared me.
At Thu, 24 Oct 2002, AV wrote:
>
>First of all, no doctor can truly say what causes endometriosis. There
>are no facts to support any of the theories out there. So, for your
>doctor to indicate that you could prevent this disease is ridiculous. I
>strongly suggest you see another doctor. His inability to adequately
>remove your endo is not your fault. If you need a list of skilled
>doctors, please e-mail me privately. I would be happy to help.
>
>At Wed, 23 Oct 2002, anonymous wrote:
>>
>>Hey I'm new to this forum..but I jsut had my 2nd lap done 2 to 2and half
>>weeks ago. the doctor found my endo and removed what he found....4
>>years ago this resulted in almost no pain during intercourse or any
>>ohter time except my period which was also cut down big time. the
>>surgery worked for about 3 years pain free....I know this is
>>common...when he took the tissue that he removed out ...they examined
>>it...and surprise surprise he said well your endo is the reacurring
>>type.....like I didn't know that....however,,,,He is very big into
>>chinese medicine...he has basically told me that if I don't go on a
>>macrobiotic diet then I will get my endo back...he seems to think that
>>it is the only way to cure it...I know though research that there is
>>absolutly no proof that anything is a cure for endo! I excercise
>>fantically, I have been a vegetarian since I was 12. My doctor seems to
>>think that it is then my fault if my endo pain comes back in a few
>>years...he seems to really believe if I do not comply with a diet that I
>>find in truth to be potentially harmful to my health...in that there may
>>be shakey proof that it help with symptoms...but not as a cure. I hate
>>being told that it is my fault that my endo comes back...I live a very
>>healthy lifestyle....I went on a no acidic, no caffine diet for 6 months
>>before my operation that I found through the endo sourcebook that helped
>>the symptoms...but did not cure the disease....a diet I never faultered
>>from once in 6 months...and still my doctor seemed to think I am lazy
>>and don't want to do anything to help myself....the reason I go to this
>>man is because he is a skilled surgeon////when he removes my endo in
>>general I am pain free for 3 to 4 years......I ahve to however, deal
>>with the fact that everytime I go to him the first question out of his
>>mouth is are you a macrobiotic......then he shakes hishead and says
>>well..."we can't just give you surgery every 3 years" as if this diet is
>>going to somehow cure my disease......I feel extremely guilty and I
>>don't even want to go back for my post op..cause I know he is going to
>>blame me for any problems I have post -op on my unwilling ness to try
>>the one treatment I feel uncomfortable trying....what should I do? I
>>feel like this is all my fault when he lays that stuff on me....I have a
>>frigin disease.....what would someone say if I said i had cancer and my
>>doctor told me it's my fault cause I didn't go and have
>>acupuncture....what do I say to this doctor..I don't want to loose him
>>as a surgeon....but I feel he really mistreats me...he's a terrible
>>people person and has a horrible badside manner...I think that if I come
>>to him the next time he might refuse to do the surgery on the grounds
>>I'm not a macrobiotic...crazy but true.......I'm serious thinking about
>>not going to my post op just cause of thee guilt involved in
>>going....help please
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