Re: Severe endo with hardly any symptoms?
From: Susan (anonymous@obgyn.net)
Mon Sep 30 13:30:31 2002
Thanks Denise for the headsup. MSN recently incorporated new addresses for
all of its groups. The link below should work, please let me know if you
still have problems.
Susan
http://groups.msn.com/SusansEndometriosisStory
>----- Original Message -----
From: "Denise" <anonymous@obgyn.net>
To: "Multiple recipients of list ENDO" <anonymous@obgyn.net>
Sent: Saturday, September 28, 2002 10:18 PM
Subject: Re: Severe endo with hardly any symptoms?
> Hi Susan~
> I tried to click on your story but it doesn't work.
> Just thought I'd let you know.
> Denise
>
> --- Susan Jeschke <anonymous@obgyn.net> wrote:
> > Hi Heather,
> > My name is Susan and I have had stage 4 endo for 30
> > years. I consider
> > myself very fortunate too, when compared to a lot of
> > women with endo. I
> > have had 2 laparotomies and 3 laparoscopies for the
> > endo. Like you I had a
> > very large ovarian cyst that had to be removed and
> > that is when the endo was
> > discovered. The second laparotomy three years later
> > was when I had the left
> > ovary and tube removed. I suffered terribly with
> > the pain for many years
> > and then my doctor tried me on Naproxen. That was
> > about 14 years ago and
> > since then I have been able to cope by using them
> > only when needed at
> > certain times of the month. I am 47 now and have
> > noticed that I don't need
> > to take as many each month. I am in perimenopause
> > and probably the
> > decreasing estrogen is why it doesn't bother me as
> > much. I have not been on
> > any form of birth control since 1983, (my right tube
> > is completely blocked
> > so no chance of a pg). I do not take anything
> > except the Naproxen. For me
> > it has been a wonder drug. If your symptoms are
> > controllable with Advil why
> > would you want to start fooling around with some of
> > these other drugs? If
> > the endo starts causing problems then it would be
> > time to check into
> > alternatives, but until then try to keep your body
> > as free of medications as
> > possible. Good luck with whatever you decide to do.
> >
> > Susan
> > http://groups.msn.ca/SusansEndometriosisStory
> >
>> > ----- Original Message -----
> > From: "Heather" <anonymous@medispecialty.com>
> > To: "Multiple recipients of list ENDO"
> > <endo@mail.medispecialty.com>
> > Sent: Saturday, September 28, 2002 10:12 AM
> > Subject: Severe endo with hardly any symptoms?
> >
> > > Does anyone know how common this is? I had a
> > laparotomy in August for a
> > > large complex ovarian cyst with cystic and solid
> > components. Turns out
> > > the cyst was an endometrioma and I ended up having
> > my left ovary and
> > > tube removed. After the surgery my doctor
> > explained that I had sever
> > > endo and adhesions throughout my pelvis.
> > Apparently my uterus is
> > > adhered to my large intestine as well. I really
> > wasn't too familiar
> > > with endo but was shocked to find out that I had a
> > severe case of it. I
> > > started researching and found that the only
> > symptoms that I really have
> > > are bad cramps and painful bowel movements for two
> > days during my
> > > period. A couple Advil always took care of it.
> > I'm 28 and have had
> > > those symptoms for 15 years, so I assumed they
> > were normal. My doctor
> > > recommended that I start taking natural
> > progesterone right after the
> > > surgery to control the endo. I had never heard of
> > this treatment so I
> > > told him I had to do some research on it first.
> > In the meantime I am
> > > taking continuous birth control pills.
> > > >From the research that I have done I consider
> > myself very lucky to not
> > > have many problems with this, as it sounds like
> > many of you have severe
> > > pain throughout your cycles. At the same time I
> > an having a hard time
> > > making a decision about treatment. Because I have
> > few symptoms, I don't
> > > feel like Lupron is right for me. Seems like the
> > side effects would be
> > > worse than what I have now. Thankfully, my doctor
> > agrees that Lupron
> > > isn't the right treatment for me. I've done quite
> > a bit of research on
> > > natural progesterone and have found conflicting
> > opinions on it. Seems
> > > like most doctors really shy away from it, but I
> > think it might be the
> > > right treatment for me. I'm going back in a few
> > months to discuss it
> > > further.
> > > I have found some excellent information on it in
> > this forum. I wanted
> > > to thank you all for the great information and
> > links.
> > >
> > > Heather
> > >
> >
>
> http://sbc.yahoo.com
>
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