ENDO Messages for September, 2002: Re: Severe endo with hardly any symptoms?

Re: Severe endo with hardly any symptoms?

From: Heather (anonymous@obgyn.net)
Sun Sep 29 11:28:08 2002

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Thanks for the replies ladies! I was on BCPs for 8 years and decided about 2 years ago that I didn't want to take synthetic hormones anymore and went off them without any problems (or so I thought lol!). I don't have any childern and don't want any now, but maybe sometime in the future. My doctor seems to really be pushing some form of treatment for me. He explained that even though I don't have many symptoms, the endo could continue to get worse and another endometrioma could form on the other ovary. He feels that treating the endo now will help preserve my fertility. I REALLY don't want to go through another surgery, nor do I want to have my other ovary removed and face menopause before I'm even 30. This is why I'm feeling pressure to make some sort of treatment decision. Natural progesterone seems to be the least invasive form of treatment and what my doctor recommends. I'm wondering if the endometrioma developed while I was off the pill for 18 months. Maybe taking the pill for 8 years controlled the endo, but I don't really like the side effects that I experienced while on the pill, so I'm hesitant to go back on them indefinitely.

--
Heather

At Sun, 29 Sep 2002, Sharon wrote:
>
>Heather, I usually just read, but I thought i'd reply to you because
>your situation is so similar to mine.  I also had a laparotomy to remove
>a very large, complex ovarian cyst and had my right ovary and tube
>removed.  They also found severe endo then.  The only symptoms I had
>were painful periods which I had since high school and thought were
>normal, so I was taken by surprise as well.  Endo does get worse over
>time, but I know a lot of women live with it with no effects or teatment
>at all.  I'm wondering if you're concerned about future fertility or
>already have kids.  If you're not worried about future fertility, then I
>don't know if I'd treat it at all.  If it's not something that is
>affecting your daily life, why mess with it? I know for me I also felt
>some pain relief during menstruation by using BCPs only.
>
>At Sat, 28 Sep 2002, Heather wrote:
>>
>>Does anyone know how common this is? I had a laparotomy in August for a
>>large complex ovarian cyst with cystic and solid components.  Turns out
>>the cyst was an endometrioma and I ended up having my left ovary and
>>tube removed.  After the surgery my doctor explained that I had sever
>>endo and adhesions throughout my pelvis.  Apparently my uterus is
>>adhered to my large intestine as well.  I really wasn't too familiar
>>with endo but was shocked to find out that I had a severe case of it.  I
>>started researching and found that the only symptoms that I really have
>>are bad cramps and painful bowel movements for two days during my
>>period.  A couple Advil always took care of it.  I'm 28 and have had
>>those symptoms for 15 years, so I assumed they were normal.  My doctor
>>recommended that I start taking natural progesterone right after the
>>surgery to control the endo.  I had never heard of this treatment so I
>>told him I had to do some research on it first.  In the meantime I am
>>taking continuous birth control pills.
>>>From the research that I have done I consider myself very lucky to not
>>have many problems with this, as it sounds like many of you have severe
>>pain throughout your cycles.  At the same time I an having a hard time
>>making a decision about treatment.  Because I have few symptoms, I don't
>>feel like Lupron is right for me.  Seems like the side effects would be
>>worse than what I have now.  Thankfully, my doctor agrees that Lupron
>>isn't the right treatment for me.  I've done quite a bit of research on
>>natural progesterone and have found conflicting opinions on it.  Seems
>>like most doctors really shy away from it, but I think it might be the
>>right treatment for me.  I'm going back in a few months to discuss it
>>further.
>>I have found some excellent information on it in this forum.  I wanted
>>to thank you all for the great information and links.
>>
>>--
>>Heather
>>

--
Thanks,
Heather






 Next message: D.N.: "Re: can yo get endo when you already have kids?"
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