Re: Severe endo with hardly any symptoms?
From: Denise (anonymous@obgyn.net)
Sat Sep 28 21:16:59 2002
Hi Susan~
I tried to click on your story but it doesn't work.
Just thought I'd let you know.
Denise
--- Susan Jeschke <anonymous@obgyn.net> wrote:
> Hi Heather,
> My name is Susan and I have had stage 4 endo for 30
> years. I consider
> myself very fortunate too, when compared to a lot of
> women with endo. I
> have had 2 laparotomies and 3 laparoscopies for the
> endo. Like you I had a
> very large ovarian cyst that had to be removed and
> that is when the endo was
> discovered. The second laparotomy three years later
> was when I had the left
> ovary and tube removed. I suffered terribly with
> the pain for many years
> and then my doctor tried me on Naproxen. That was
> about 14 years ago and
> since then I have been able to cope by using them
> only when needed at
> certain times of the month. I am 47 now and have
> noticed that I don't need
> to take as many each month. I am in perimenopause
> and probably the
> decreasing estrogen is why it doesn't bother me as
> much. I have not been on
> any form of birth control since 1983, (my right tube
> is completely blocked
> so no chance of a pg). I do not take anything
> except the Naproxen. For me
> it has been a wonder drug. If your symptoms are
> controllable with Advil why
> would you want to start fooling around with some of
> these other drugs? If
> the endo starts causing problems then it would be
> time to check into
> alternatives, but until then try to keep your body
> as free of medications as
> possible. Good luck with whatever you decide to do.
>
> Susan
> http://groups.msn.ca/SusansEndometriosisStory
>
>> ----- Original Message -----
> From: "Heather" <anonymous@medispecialty.com>
> To: "Multiple recipients of list ENDO"
> <endo@mail.medispecialty.com>
> Sent: Saturday, September 28, 2002 10:12 AM
> Subject: Severe endo with hardly any symptoms?
>
> > Does anyone know how common this is? I had a
> laparotomy in August for a
> > large complex ovarian cyst with cystic and solid
> components. Turns out
> > the cyst was an endometrioma and I ended up having
> my left ovary and
> > tube removed. After the surgery my doctor
> explained that I had sever
> > endo and adhesions throughout my pelvis.
> Apparently my uterus is
> > adhered to my large intestine as well. I really
> wasn't too familiar
> > with endo but was shocked to find out that I had a
> severe case of it. I
> > started researching and found that the only
> symptoms that I really have
> > are bad cramps and painful bowel movements for two
> days during my
> > period. A couple Advil always took care of it.
> I'm 28 and have had
> > those symptoms for 15 years, so I assumed they
> were normal. My doctor
> > recommended that I start taking natural
> progesterone right after the
> > surgery to control the endo. I had never heard of
> this treatment so I
> > told him I had to do some research on it first.
> In the meantime I am
> > taking continuous birth control pills.
> > >From the research that I have done I consider
> myself very lucky to not
> > have many problems with this, as it sounds like
> many of you have severe
> > pain throughout your cycles. At the same time I
> an having a hard time
> > making a decision about treatment. Because I have
> few symptoms, I don't
> > feel like Lupron is right for me. Seems like the
> side effects would be
> > worse than what I have now. Thankfully, my doctor
> agrees that Lupron
> > isn't the right treatment for me. I've done quite
> a bit of research on
> > natural progesterone and have found conflicting
> opinions on it. Seems
> > like most doctors really shy away from it, but I
> think it might be the
> > right treatment for me. I'm going back in a few
> months to discuss it
> > further.
> > I have found some excellent information on it in
> this forum. I wanted
> > to thank you all for the great information and
> links.
> >
> > Heather
> >
>
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