Re: Severe endo with hardly any symptoms?
From: Susan (anonymous@obgyn.net)
Sat Sep 28 19:51:21 2002
Hi Heather,
My name is Susan and I have had stage 4 endo for 30 years. I consider
myself very fortunate too, when compared to a lot of women with endo. I
have had 2 laparotomies and 3 laparoscopies for the endo. Like you I had a
very large ovarian cyst that had to be removed and that is when the endo was
discovered. The second laparotomy three years later was when I had the left
ovary and tube removed. I suffered terribly with the pain for many years
and then my doctor tried me on Naproxen. That was about 14 years ago and
since then I have been able to cope by using them only when needed at
certain times of the month. I am 47 now and have noticed that I don't need
to take as many each month. I am in perimenopause and probably the
decreasing estrogen is why it doesn't bother me as much. I have not been on
any form of birth control since 1983, (my right tube is completely blocked
so no chance of a pg). I do not take anything except the Naproxen. For me
it has been a wonder drug. If your symptoms are controllable with Advil why
would you want to start fooling around with some of these other drugs? If
the endo starts causing problems then it would be time to check into
alternatives, but until then try to keep your body as free of medications as
possible. Good luck with whatever you decide to do.
Susan
http://groups.msn.ca/SusansEndometriosisStory
>----- Original Message -----
From: "Heather" <anonymous@obgyn.net>
To: "Multiple recipients of list ENDO" <anonymous@obgyn.net>
Sent: Saturday, September 28, 2002 10:12 AM
Subject: Severe endo with hardly any symptoms?
> Does anyone know how common this is? I had a laparotomy in August for a
> large complex ovarian cyst with cystic and solid components. Turns out
> the cyst was an endometrioma and I ended up having my left ovary and
> tube removed. After the surgery my doctor explained that I had sever
> endo and adhesions throughout my pelvis. Apparently my uterus is
> adhered to my large intestine as well. I really wasn't too familiar
> with endo but was shocked to find out that I had a severe case of it. I
> started researching and found that the only symptoms that I really have
> are bad cramps and painful bowel movements for two days during my
> period. A couple Advil always took care of it. I'm 28 and have had
> those symptoms for 15 years, so I assumed they were normal. My doctor
> recommended that I start taking natural progesterone right after the
> surgery to control the endo. I had never heard of this treatment so I
> told him I had to do some research on it first. In the meantime I am
> taking continuous birth control pills.
> >From the research that I have done I consider myself very lucky to not
> have many problems with this, as it sounds like many of you have severe
> pain throughout your cycles. At the same time I an having a hard time
> making a decision about treatment. Because I have few symptoms, I don't
> feel like Lupron is right for me. Seems like the side effects would be
> worse than what I have now. Thankfully, my doctor agrees that Lupron
> isn't the right treatment for me. I've done quite a bit of research on
> natural progesterone and have found conflicting opinions on it. Seems
> like most doctors really shy away from it, but I think it might be the
> right treatment for me. I'm going back in a few months to discuss it
> further.
> I have found some excellent information on it in this forum. I wanted
> to thank you all for the great information and links.
>
> Heather
>
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