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Re: I think I have endo, my Dr. doesn't -Help
From: cathy (anonymous@obgyn.net)
Sat Sep 28 15:11:58 2002
At Mon, 23 Sep 2002, anonymous@obgyn.net wrote:
>
>I heard the same exact things from my military ob/gyn after
>lap...noticed small water droplet looking areas from surgery photo and
>asked my pcp (a PA) if it could be endo...he said I should quit going
>online to research my medical problem and whatever pain I was still
>having would just be from more adhesions...guess what...ended up having
>a hysterectomy for what radiology felt was highly suspicious for
>malignancy, ob/gyn was more sure it would only be adenomyosis...she also
>found endometriosis, stage IV, and they left alot of it on colon, along
>with leaving ovaries in...still having alot of problems...so don't give
>up if they make you feel like it's all in your head. You know the pain
>you're in...they don't. I hope you get some answers...good luck.
>god your symtoms are just like mine on the left
side. i get most of my pain during mid cycle my doc told me it was just
ovulation pain time and time again untill i colapssed and was taken into
hospital, im not long out of hospital and i go back in on the 11 october
to see if i have endo, i think you should have a sencond opinion you see
my doc also would not listen, and was so surprised
when i was refered for a laperoscopy. i wish you lots of luck. ps our
bodys have only one way of telling
us there is something wrong that is with pain. >>>>
>>>>>I started experiencing left sided pain about five months ago, I was
>>>>>already on BCP and always had severe backaches before my period, but
>>>>>never much of a period. The left sided pain and backache became pretty
>>>>>much constant. My sister had a hysterectomy due to endo years ago. My
>>>>>Dr. ordered an ultrasound which came back as normal. He thought I
>>>>>wasn't having normal periods due to the pills. I stopped the pills and
>>>>>had the worst period that I had had in quite some time. The Dr. thought
>>>>>the pain could be endo, so I was scheduled for a lap last week. When I
>>>>>woke up he said he found no endo, only an adhesion. So now I am
>>>>>confused. I am wondering if anyone else ever started out this way
>>>>>before actually being diagnosed with endo, or could it be something
>>>>>else. I am waiting for my follow-up appt to talk to him, just thought
>>>>>someone out there might have had a similar experience.
>>>>>Thanks for listening,
>>>>>Julie
>>>>
>>>>I definately think you should get a second opinion- There is no reason
>>>>you should suffer in pain. We all believe that there is pain-however
>>>>your doc didn't find anything to cause your pain? Big suprise most
>>>>doctors will say this and i have had similar experiences- hospital,
>>>>laps, ultrasounds- I believe you and if you truly have pain please get a
>>>
>>>While second opinions are always a good idea, remember that adhesions
>>>can be very painful, so your doctor may not be wrong. If your sister
>>>lives near you, you might consider seeing her doc for the second
>>>opinion.
>>>>second opionion. Good Luck.
>>>>
>>>>--
>>>>Trish
>>>>
>>--
>>My name is Amanda also. And I had the exact same symtoms. I've been reading everythig
>>I can to find out what I have. I had a lap done in March and 2 months later the pain was
>>back and steadily getting worse. I finally went back to my doctor and he told me he was'nt
>>sure what it was. But that he found no endo. and told me to get back on my BC pills, that it
>>should help with the pain.
>>I think I'm going to get a second opinion. Please share any new info you might find.
>>Thanks - And good luck
>>
--
cathy bodkin
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