ENDO Messages for September, 2002: Re: Adenomyosis

Re: Adenomyosis

From: Veronica (anonymous@obgyn.net)
Wed Sep 25 23:29:00 2002

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In reply to: anonymous: "Adenomyosis"

Hello,

I can understand your pain. I was diagnosed with Endometriosis at the age of 19 and Adenmyosis at the age of 22 just after my second daughter was born. My doctor then told me that I would be unable to have anymore children because my uterus was so weak from the Adenmyosis. Fortunately, I was able to have two beautiful daughters before that diagnoses. When I was 24, I chose to have a partial hysterectomy in which my doctor removed my uterus, both tubes, my right ovary, and my cervix. My pain was relieved after the operation as far as the Adenmyosis was concerned, however the pain continued with the endometriosis. When I was 27, I had the remaining ovary removed and was placed on HRT therapy. I am now 29 and just underwent my seventh surgery to treat this terrible disease. I have been told by many doctors that Adenmyosis and Endometriosis go hand in hand. Has your doctor detected endometriosis as well? Everything that I have learned about these diseases; I have learned on the internet, in books, and from my specialist. My best advice for you is to do as much research as you possibly can and educate yourself because sometimes regular GYN doctors aren't as updated on this disease as they should be and I have found out that there is a lot of misinformation out there. Is your current doctor a specialist? I have found through experience that reproductive endocrinologists are the best doctors to treat this disease. When I had my hysterectomy I was told that it was a cure. Since then I have had four reoccurrences that have required surgery. To answer your question on if a hysterectomy will take care of the pain, I'm unsure. Everyone is different. I hope that this helped. I am here if you would ever like to talk. Good Luck!

-- Veronica :)

At Tue, 24 Sep 2002, anonymous wrote: > >Hi I am 26 years old and have had chronic pelvic pain since I was 15. >Although I started having children at age 18 all the doctors diagnosed >it as "well just to much to handle for your body and it will eventually >go away" well recently I was hospitalized for the severe pain. A new >doctor took on my care and he is wonderful. After several months he >decided to do diagnostic laproscopic to see exaclty what the problem >was. Last Monday I was told it was Adenmyosis (sp). We have decided >together to do a vaginal hysterectomy and leave my ovaries. I am >wondering if this is a procedure that is known to take away the pain or >if the chances are still very high that it will still persist. I am a >mother of four and have lived with so much pain that at this point I am >willing to do anything to try to solve the problem. I would like all >the information I can find on this "disease" if you could send me >something it would be greatly appreciated.

Next message: Mindy: "Re: Specialist in Atlanta or Bend oregon"
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In reply to: anonymous: "Adenomyosis"

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