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Re: dealing with the effects of lupron depot for endometriosisFrom: Andrea (anonymous@obgyn.net)Wed Sep 18 21:28:12 2002
At Wed, 18 Sep 2002, cathy wrote: > >Wed Sept 18,2002 >Need some advice on how to deal with all the side effects of my lupron >injection. I only had one that was to last only 3months..have decided >to not take anymore injections as the side effects are awful..and have >become a totally different person as a result..I would like some advice >from others on how they deal with the side effects..mostly the >sleeplessness and the depression and the irritibility etc...I have >spoken with my OBGYN regarding the hot flashes and the depression and >the hormone patch and the "anti-depresitants'dont seem to work..so I >quite taking them and starting taking a B-coomplex stress tabs and hope >that they will work..How long do I have to wait before these symptoms go >away? I would much rather deal with the pain once or twice a month then >deal with these side effects..as I know when Its coming and what I can >take to eleviate the pain..please help.thank you. >> >>Vita, >> Hello, and welcome. I need to tell you about what you said about getting >>back to normal after your last shot. It's gonna take at least 3-4 months to >>get your first period after and to feel somewhat normal mood wise, it took >>me almost 1 year. The good side effects were of course the weight i lost >>(not that i needed to, actually i was beginning to look too skinny) and the >>loss of menses, and 1/2 of the pain. And of course the bad parts, which >>were'nt bad all the time, hot flashes, which on real cold days were a >>godsend, and the mood swings which i am sure my husband and kids could've >>done without. But i would recommend everyone with endo to at least try it, >>to see if it's something that may help you out. It sounds like your coming >>to the end of the shots anyway. I hope it does'nt take your moods as long as >>mine to get back to normal. I just realized that's whats been wrong for the >>last year and a half. Do you plan on more kids? I just had my 4th and last. >>Good Luck and look forward to seeing you post. Jan >>-----Original Message----- >>From: Vita <anonymous@obgyn.net> >>To: Multiple recipients of list ENDO <anonymous@obgyn.net> >>Date: Thursday, October 14, 1999 11:43 PM >>Subject: dealing with the effects of lupron depot for endometriosis >> >>>I am a 32 year old mother of two, ages 6 and 2 and a half. Last May I >>>had a laparoscopy and a DNC which concluded that I had endometriosis. My >>>doctor suggested 2 things the first was to get pregnant because when you >>>are pregnant and do not get your period, this will help the endo. >>> >>>Since we were not planning to have another baby right now, we decided to >>>go with the second suggestion which was 6 months of lupron depot shots, >>>which my doctor explained would be given once a month for 6 months. >>>Lupron puts your body into a state of menopause meaning that you have >>>all the symptoms of menopause but not really having it. >>> >>>The symptoms I was told were occassional hot flashes and mood swings >>>which I was used to being that I had always had severe PMS. >>> >>>I never ever expected to feel the way that I have felt for the past 5 >>>months. The hot flashes come and go, my doctor gave me a hormonal patch >>>to help with that. I am also still on a low dosage of Prozac for when I >>>was getting the severe PMS. But all that has not helped the mood swings >>>and depression I have felt. >>> >>>If I could of gone to a deserted island for the last 5 months, I would >>>have gone and stayed there away from everything and everyone. I don't >>>even like being around myself, imagine how my husband and children feel. >>> >>>But no matter what a supportive husband might say before you decide to >>>take the shots, that he will be patient and understanding and know that >>>it is the hormones in the Lupron shots making you act the way you do and >>>say and feel, when it comes down to it, they can't deal with it and all >>>the understanding just becomes words. >>> >>>I am not saying that I should not have decided to go on the shots, >>>because I had no choice, but I am just reaching out to anyone who has to >>>go through this and take the shots, because it is the only way to help >>>you, just mentally prepare yourself that you are NOT going to be you as >>>long as you are on them. I am praying that after November 3rd(that is >>>when I get my last shot), that everything goes back to normal my period >>>and my mind and that I will never have to go through this again. >>> >>>In the long run of all this the one thing I am going to do is prepare >>>myself for when I do go through menopause, because it is no joke. >>> >>>My advice to anyone that has to go on Lupron, prepare yourself, and the >>>people who you live with and love, that it is not going to be easy, >>>especially on you, but that their patience and love and support is the >>>best thing they can do for you. That and a one way ticket to Hawaii!!! >>> >>>Good luck to you all who will have to go through this or are going >>>through this, and if anyone would like to e-mail me, I would be happy to >>>write back. My e-mail address is mommyd99@yahoo.com. >>> >>>God Bless!!!! >>> >>>-- >>>Sincerely, >>>Vita David >>>
-- I am 18 years old and had a laparoscopy in April of this year. Being that the surgery failed to cure my symptoms I was put on Lupron and was told that I probably wouldn't feel much for side effects until the 3rd month. Within the first 2 days of having the shot I was nothing but a pain to be around -I couldn't even stand myself! The hotflashes were terrible, I would wake up in the middle of the night soaking wet from sweating so bad, I felt like my temp. had to be at least 103 degrees. But of course it never was-it was always normal. Now about the time I was supposed to go in for my 3rd shot I mentioned to my family doc that I was having some problems with dizziness and fainting spells. I was puton a holter monitor which showed my heart rate was going over 200 for long periods of time. So of course my mom acting like a mom got on the internet to get some info. on Lupron. Her findings weren't good, my heart problems may be due to the Lupron and I am now on a heart monitor for a month, going through a series of tests and yet my OBGYN wants me to stay on Lupron otherwise my symptoms come back and I'm left with no other choices than go to the pain clinic. I am currently looking for any possible alternatives, but I suggest you all read as many articles about the long term side effects as you can before proceeding with your treatment. Good luck!
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