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Re: Danazol
From: Lisa (anonymous@obgyn.net)
Thu Sep 12 22:10:52 2002
Jennifer,
I was the one who wrote about being on only 50 mg of Danazol. My doctor
started me off with 200mg three times a day...but I actually started
with 200mg twice a day (because I was nervous of the side effects). The
effects were immediate for me. I no longer had cramps, bleeding or
fatigue for the first time in years! However, within the first three
weeks, I put on 10lbs, had acne and oily skin. So, I cut back my dose
to 100 mg twice a day. The side effects continued and my breasts
started to shrink, with more weight gain. After I saw my doctor for the
follow up, he told me that he had never treated a patient who had such
sensitivity to Danazol (good and bad) but that I could cut back on the
dose as long as I waited at least a few weeks to see how I reacted.
Anyway, after about 4months on it, I've decided to go off. I was so
uncomfortable with the side effects and even on just the 50mgs, they
were still getting worse. I will say this...it's been so wonderful to
know that this is an option when the pain comes back. I was so scared
to take it, but now at least I know that it works :) Take care and if it
works for you...use it!
At Thu, 12 Sep 2002, Kim wrote:
>
>Hey Jennifer --
>
>I don't think you should be particularly nervous. If Danocrine is working
>for you and not causing too many unbearable side effects, that's great. I
>had hoped for the best, and the side effects were really just more annoying
>than unbearable for me. Toward the end of my 2 month stint, however, I
>started having some severe headaches and the abdominal pain increased. Then
>I started getting depressed. It was a pretty quick downhill spiral. But
>keep in mind, I also have a pituitary tumor, and God knows how that was
>being affected on Dano -- pharmaceutical company and doc both say there are
>no known interactions.....operative word being "known". I can't speak
>regarding the GnRH drugs, but from what I've read, Danocrine sounds like the
>better road, considering that it somehow helps the immune response. The
>other class of drugs does not. If endo is actually an immune system
>disorder, or it's causing problems with your immune system, Dano would help
>with that. I think women panic when you start talking irreversible hair
>loss, deepening of the voice and enlargement of the genitalia. My dr
>assured me that it would have to be a dose higher than 800mg for longer than
>6 ms. All you can do is hope and pray. And given the many stories of women
>who have tried treatments that didn't work, consider yourself blessed that
>you got through your treatment and gained some relief. My doctor had hoped
>you use it one me for 12 months, but not consecutively. He wanted to take
>2-3 month breaks in between 3 month cyles of use. If you are concerned, you
>may want to talk to your doctor about either taking a short break, or even
>decreasing your dose. I believe someone on the board posted the other day
>saying that a 50mg per day dose handled her pain.
>
>My ex was a body builder and he used Hydroxycut to help get muscle
>definition before a match. He said it's like a natural steroid/testosterone
>that increases metabolism to help define lean muscle mass.....I'm not sure
>if he knew what he was talking about. I'm not sure why you're asking, but I
>wouldn't recommend using any synthetic or natural hormones while on Dano.
>It's pretty powerful by itself, and is also used by some bodybuilders to do
>the same thing as Hydroxycut. I'm not sure how they obtain it....
>
>Kim
>
>>>----- Original Message -----
>From: "jennifer" <anonymous@obgyn.net>
>To: "Multiple recipients of list ENDO" <anonymous@obgyn.net>
>Sent: Thursday, September 12, 2002 11:53 AM
>Subject: Danazol
>
>> I just read some of the posting about danazol and ya'll are making me a
>> little nervous. I've thought everything has been wonderful with this
>> med. It has personally been a God Send for me. I'm on 200mg twice a
>> day...i used to be on 600 total but i had a bad scare with alcohol and
>> that much...so i backed down to the 400. Anyway, i've been on since Jan
>> 2001 and will continue until Jan 2002. A full year without my period
>> and very minimal pain (except during sex every now and then). The only
>> side effects i've had are that with the alcohol, oilier skin than normal
>> and the worst is that i bruise like i'm anemic. I usually don't even
>> know where they come from b/c they happen so easily.
>> I'm so nervous about getting off of this stuff, I don't want the side
>> effects and i definately don't want the pain to return.
>> Please respond to me if you have any experiences with danazol
>> Also, does anyone know anything about Hydroxycut and hormones?
>>
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