Re: Colors of Endo
From: Renee (anonymous@obgyn.net)
Sat Jul 27 15:31:51 2002
Debi:
I just wrote a post to you but noticed it was posted as anonymous.
Anyway, I see that you also mention the bladder irritation,
dizziness/faintness, etc. What about nausea/acid stomach?
I didn't have surgery with REdwine but I did have surgery with another
endo expert and they got out all of the visible endo. Yet, if I eat
rice pudding, etc., I still get my familiar aching sacral flares -- I
think this must be microcellular and not yet transformed into what is
known as endometriosis -- this is the only explanation I can think of
because I've already had surgery with the experts -- I'm just very
confused.
At Sat, 27 Jul 2002, Debi wrote:
>
>While I realize the question of Endo colors were from last year, I did
>not see where these poor girls received an answer. Yes, Endo comes in
>many colors. Dr. David Redwine, a pioneer in Endo reasearch in Bend,
>Oregon, has noted over his 20 years of endo studies that this horrible
>disease cane be black, brown, white, red, orange, and maybe even more.
>It all depends on the age of the endo and the time of the month. One
>reason so many doctors are not able to remove all the endo is that they
>only look for one or two certain colors, and may not realize how it
>changes due to hormone fluxuations.
>
>I figured out I had endo over a year ago, way before any of the many
>doctors I saw did. Two OB/GYNs still don't believe me. Can't wait to
>send them my surgery results! My endo caused the severe pelvic pain,
>period pains, bladder irritation, some bowel problems, major digestive
>issues, and the worst: fainting during PMS and period weeks. My doctors
>would not believe me when I told them that I would feel like I was going
>to pass out, so I finally had to faint in front of one of them to prove
>my point! It was very satisfying.However, they did not associate it with
>endo like I did, and I was put on beta-blockers to keep from fainting,
>which I hated (beta-blockers are for high blood pressure problems, which
>I don't have).I spent about a year researching endo in between being
>sick, and if you can ever make it to Oregon for your surgery, it will
>well be worth it. When I finally saw Dr. Redwine, he knew right away I
>had endo and we schedualed my first and probably only laparoscopy.
>Dr.Redwine is the guy to see for endo, and his staff is wonderful and
>caring. When I was there, he also was operating on a girl from Idaho
>and even one from Brazil! But it's normal for them. For me to drive 200
>miles to see him was nothing. Dr.Redwine gets all the endo out, the key
>to success.
>
>Also, if you haven't already done this, contact the Endometriosis
>Association, a most wonderful and informative group for women with endo
>by women with endo. They currently have two books out that are a wealth
>of information (I found them at the library, although I will be buying
>them as soon as my financial resources get back on track) and a third is
>due out soon. The EA and Dr. Redwine have great websites and are
>easily found on a google search.
>
>Good luck to you all! I am slowly recovering after my surgery last week
>(I had a lot of tissue removed) and I wish you all the success that I
>have had. Debi
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