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Colors of EndoFrom: Debi (anonymous@obgyn.net)Sat Jul 27 13:32:23 2002
While I realize the question of Endo colors were from last year, I did not see where these poor girls received an answer. Yes, Endo comes in many colors. Dr. David Redwine, a pioneer in Endo reasearch in Bend, Oregon, has noted over his 20 years of endo studies that this horrible disease cane be black, brown, white, red, orange, and maybe even more. It all depends on the age of the endo and the time of the month. One reason so many doctors are not able to remove all the endo is that they only look for one or two certain colors, and may not realize how it changes due to hormone fluxuations. I figured out I had endo over a year ago, way before any of the many doctors I saw did. Two OB/GYNs still don't believe me. Can't wait to send them my surgery results! My endo caused the severe pelvic pain, period pains, bladder irritation, some bowel problems, major digestive issues, and the worst: fainting during PMS and period weeks. My doctors would not believe me when I told them that I would feel like I was going to pass out, so I finally had to faint in front of one of them to prove my point! It was very satisfying.However, they did not associate it with endo like I did, and I was put on beta-blockers to keep from fainting, which I hated (beta-blockers are for high blood pressure problems, which I don't have).I spent about a year researching endo in between being sick, and if you can ever make it to Oregon for your surgery, it will well be worth it. When I finally saw Dr. Redwine, he knew right away I had endo and we schedualed my first and probably only laparoscopy. Dr.Redwine is the guy to see for endo, and his staff is wonderful and caring. When I was there, he also was operating on a girl from Idaho and even one from Brazil! But it's normal for them. For me to drive 200 miles to see him was nothing. Dr.Redwine gets all the endo out, the key to success. Also, if you haven't already done this, contact the Endometriosis Association, a most wonderful and informative group for women with endo by women with endo. They currently have two books out that are a wealth of information (I found them at the library, although I will be buying them as soon as my financial resources get back on track) and a third is due out soon. The EA and Dr. Redwine have great websites and are easily found on a google search. Good luck to you all! I am slowly recovering after my surgery last week (I had a lot of tissue removed) and I wish you all the success that I have had. Debi
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