ENDO Messages for July, 2002: Re: EXtreme Frustration with Medication Choices and Lupron Bashing

Re: EXtreme Frustration with Medication Choices and Lupron Bashing

From: Emily (anonymous@obgyn.net)
Fri Jul 19 14:18:29 2002

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hi, anon.,

i agree with you that this is a hard issue.

personally, my endo became worse while i was on birth control pills. i had a lap, but that didn't remove all of the endo. i researched all of my options (including alternative medicine) and selected to go on lupron while also making lifestyle/nutrition changes. so far, this has worked out well for me.

i was really frightened when choosing to go on lupron. however, i learned that 67% of women are pain-free 5 years after their injections and i decided to take that gamble. i absolutely understand that i am risking other aspects of my health (as always is the case when taking synthetic medications) but, for me, i feel that i am well-informed and i am willing to take that risk to at least have the chance to be free of endo pain.

i think that is is a fabulous forum for endo sufferers to share all of our experiences, what has worked and what hasn't. of course, each of us are individuals and will make decisions based upon our own health and what we are comfortable with. i believe that, as long as one is informed and educated, it is completely up to that person to make the decision that they feel is best for themselves. i am happy to share my treatment info with others, but i will never tell them what they should and should not do.

i am very happy to listen to and learn from others' experiences and i hope that no one will judge me for the choices that i have made.

take good, good care of yourselves! emily

At Fri, 19 Jul 2002, anonymous wrote: >
>I can't take oral contraceptives because I can't tolerate them. I can't
>take
>danazol because I have PCOS. My only other choices seem to be Lupron or
>remova l of organs-which apprently doesn't help either. I am aware of
>the lupron risks and that people almost die or turn into vegetables,
>etc. That it is on OSHA's list of hazardous materials, that it is used
>in sex offenders for chemical castration. That it can be a short term
>solution. That is is a wretched horrible drug.
>YES I KNOW.
>Is it that or go through more surgery, this time removal of my organs?
>It is hard enough being on this medication without constantly being
>reminded that it can kill me, make me semi-retarded, affect me for the
>rest of my life, etc. I appreciate the warnings, but I KNOW ALL THIS.
>Most of us KNOW this. If we are on the computer, most of us have done a
>lupron search and have seen the Lupron Victims Network.
>We have read the horror stories on this BBS.
>This makes it extra hard for those of us finding relief with lupron and
>for people who are out of treatment options.
>There should be a seperate Lupron/Synarel forum so people can go to town
>and just be supportive here. Just an opinion from a hot, cranky, sleep
>deprived user of the evil lupron.

--
Emily

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