ENDO Messages for July, 2002: Re: I have IC, Crohns and possibly Endo

Re: I have IC, Crohns and possibly Endo

From: anonymous (anonymous@obgyn.net)
Thu Jul 11 23:38:54 2002

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In reply to: Carrie: "I have IC, Crohns and possibly Endo"
Next in thread: Megan: "Re: I have IC, Crohns and possibly Endo"

Carrie, I don't know whether or not I have IC -- gyn thinks I do, urologist doesn't think so. Anyway, I do suffer very frequent urination but do not have pain upon urinating nor do I have pain with a full bladder (in fact, I doubt I ever have a "full" bladder because I'm not able to hold my urine that long). Yes, I have endo -- have had surgery with the experts but still have pain in spots/areas -- the experts excised the "visible" endo and "foreign" tissue but I still have pain in areas not excised and yet the experts didn't see anything else or they would have excised it! So I really think this stuff can be deep and microscopic -- its as if I have the seeding inside which flares, and yet the experts can only see "endo" when the "seeding" has flared/been inflamed for a prolonged period of time in which case it presents itself visually as endo tissue. Does that make sense lol? Kind of like having a pimple under the skin which is not yet visible but later becomes so. Re the Crohns, that is interesting because I have areas in my abdomen which would flare when the rest of my endo pain flared (always in the same spots) and yet the experts didn't see anything on the intestines/abdominal area. I haven't heard of other women with endo complaining of crohns, but that doesn't mean that there aren't more of you out there. Re the IC, that is pretty common with endo. I think all of these conditions are somehow related in that they are inflammatory conditions -- our inflammatory gene is defective according to some of the latest research. Anyway, I still get flares, but nothing compared to before my surgeries, and *getting off of the bc pill has actually helped a lot -- since ceasing the bc pill, my stabbing endo pains don't occur nearly as often. I think my surgery days are over!!! The pain I get now is a piece of cake. Of course, now that I said that, I've probably jinxed myself, watch me wake up in a world of pain in the near future. I'll keep my fingers crossed. **Something that really helps is staying away from caffeine, dairy, citric acid, citrus fruits, phytoestrogens, chocolate, etc. -- this should help both the endo and the IC.

How long have you had Crohns? Was it the first of your ailments? Then the endo? Then the IC? What is your treatment for Crohns?

At Thu, 11 Jul 2002, Carrie wrote: >
>I am 28 and have Lap surgery scheduled for July 26th. I'm nervous esp
>to find out how bad it may be. I have only had increasing pain for the
>past 9 months but in the past 5 months it has gotten progressivly worse
>with pain all month and spotting 10+ days. The Pill did not help so my
>Dr scheduled Laproscopic Surgery. Do they know from the surgery if you
>are definately infertile? What is the chance of becomming infertile - I
>have read 20%-40%. I also have IC (interstitial Cystits)a bladder
>disorder and was just diagnosed with Crohns a colon disorder. Does
>anyone have one or more of these as well and how do they interact or how
>do you cope with all 3? Any recommendations on the Lap surgery and
>recovery? How long are most people off? I travel for work and my boss
>wants me back traveling within 10 days. I told him I cannot guarantee
>it(he'll be flexible). OK that's enough questions. IF anyone has any
>for me about IC or Crohns please e-mail me.
>
>-Carrie

Next message: Megan: "Re: I have IC, Crohns and possibly Endo"
Previous message: anonymous: "Re: Candida, Detox, Diet"
In reply to: Carrie: "I have IC, Crohns and possibly Endo"
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