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Re: Supposed to be getting first Lupron shot this week...

From: anonymous (anonymous@obgyn.net)
Tue Jul 9 19:03:21 2002


At Tue, 9 Jul 2002, Marie wrote: >
>At Tue, 9 Jul 2002, Cookie wrote:
>>
>>I was just as apprehensive about Lupron as you are. I tried everything
>>to avoid it: herbal remedies, diet, yoga, etc. but when an ultrasound
>>showed endo was starting to grow back only 2 months after surgery, I had
>>no choice. I am currently on my 6th and final shot.. my reaction to it
>>includes hotflashes, nightsweats and headaches. These side effects have
>>been annoying, but not horrible. I found immediate relief with Lupron..
>>within 2 weeks of the 1st shot, no endo pain. Initially, I was more
>>irritable and "foggy", but it has gotten progressively less problematic.
>>I actually have been feeling great! Almost normal. And I just had an
>>ultrasound done, and the endo cyst did shrink, but just a little. My
>>advice is to do your research, weigh alternatives and then make your
>>choice. If you do decide to go with Lupron, don't dwell on the
>>negatives. Focus your energy on healing yourself.
>>
>>--
>>Cookie
>>
>>t Mon, 1 Jul 2002, anonymous wrote:
>>>
>>>and I am starting to get nervous. I have read accounts of women having
>>>multiple medical problems caused by Lupron, and I have read other
>>>accounts from medical professionals saying that is rare or does not
>>>happen. I'm not sure who to believe. Has anyone else ever felt this
>>>conflicted about Lupron? Is it worth the risk? I guess I want to know
>>>that if I take a chance, am I really going to find relief for my endo
>>>pain. Does anyone have any words of wisdom to share? Has anyone ever
>>>had a bad reaction to the Lupron? Has anyone found relief with Lupron?
>>>Thanks for sharing.
>>
>--
>I was very nervous too about my first Lupron shot. This week I will be getting
>my 5th shot and they have helped greatly with the endo pain. I haven't even had the
>side effects most people get such as hot flashes. I am very glad I am on Lupron.
>There is so much negative info. about Lupron on the internet, but I think those people
>are just very vocal and not in the majority. My doctor says he hasn't had anyone with
>bad side effects.
>

Just wanted to add my two cents to the Lupron subject...

I am far from vocal about my experience with Lupron. I understand that it has helped some people and I am so happy that it has. However, I refer to the drug as Poison. My symptoms were so bad while on it that I had wished for death most days. I couldn't walk because my joints hurt so bad and was so tired I can only imagine that that is how cancer patients feel. I spent quite a bit of money on pain pills that insurance wouldn't cover because it was the only thing that could get me through the day.

I had my sixth Lupron injection at the end of April and am having another Laparotomy this Friday. So again, I am glad it helps some, but in my case I wish I had never put it in my body. Anyone considering Lupron should know that what they read on the internet isn't necessarily from a small handful of vocal people.




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