ENDO Messages for July, 2002: Re: adensomyosis/menstural pain

Re: adensomyosis/menstural pain

From: Mindy (anonymous@obgyn.net)
Sat Jul 6 13:57:05 2002

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In reply to: anonymous@obgyn.net: "Re: adensomyosis/menstural pain"

Find another doctor!!! Have you been formally diagnosed with adenomyosis? A specific MRI (the setting of it) can pick up adenomyosis. I had/have endo that caused severe debilitating pain the first 3 days of my period and I also had pain leading up to my period and I did not have adenomyosis. I had severe back pain as well.

I would find a specialist, meaning someone who has extensive background in treating the disease. You can contact the Endo Association and ask the girls on this board. The EA's number is 414-355-2200. I know they have an 800# and you might be able to find it on their website:

http://www.endometriosisassn.org/

Please do not have the hystorectomy....at least not right away. The only solution that I know of for adenomyosis is to have a hysto, but make sure you have it first.....MRI or even better, a biopsy. If your problem is just Endo, like mine was, removing the reproductive system is not going to solve your problem. I had endo on the colon, bladder, pelvic floor, etc. It grows in other places as well.

Best wishes to you and I wish I personally had the name of someone in your area, but you should find someone with this board or with the EA.

Mindy :-)

At Fri, 5 Jul 2002, anonymous@obgyn.net wrote: >
>At Sat, 30 Dec 2000, dee wrote:
>>
>>I need help!!! I have intense pain in my repro ograngs the week prior to
>>starting my periods. I am bed ridden with menstural pain the first two
>>days of my period. It is like a back labor. Something I experienced
>>when pregnant. My gyn spent 10 minutes hearing my story, and said liets
>>remove everything. Total hystercomey. I was whisked in an d out of her
>>office so fast, and then everything was arranged by phone, they left
>>messages telling me when and where to show up. I feel like I was
>>herding thru the process like a cow. I need help finding a doctor in
>>the nashville, tennessee area or Evansville, Indiana. Do I go for a
>>lap/ or laser surgery? What do the women of the world think????
>
>Hey. I have extreme pain during the first two days of my period also. I
>usually can't sit still I am in so much pain, and I am constantly in the
>bathroom throwing up. During all of this I also hypervenalte (did I
>spell that right?....) and I cant eat anything for the rest of the day.
>I was just wondering if your gyn said that a hysterecomey was mandatory.
>I am 16 and I just want to know what the futre holds for me, because
>from what I hear, your period Gets worse with age. If that's true, well
>only time will tell.
>Any thing you could tell me would be greatly appreciated!

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