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Re: Gosh.....people can be cruel......I feel like screaming....:o-to all who
From: Amanda (anonymous@obgyn.net)
Wed Jun 19 10:21:21 2002
I think that the points have all been made...while what Anon said
offended many people, she has admitted that she didn't mean it to. She
has apologized for sounding mean and I imagine she has a very complete
perspective on the issue now. I know it is tempting to take anger out
on her for every doctor, coworker, boss, husband, friend etc. that has
made us feel that we are imagining our symptoms....but she is not all of
those people. She is just one person sharing her opinion about a
situation that I am sure for some people, somewhere, is true. It is
unlikely the case here that any of us are malingering as why would you
seek private support for a condition that you know you don't have. I
think that it is important to keep in mind that written communication is
more difficult because we don't have tone and body language to guide us
in understanding the speaker. Someone made a comment in an earlier
message about people being cowardly or whatever for not identifying
themselves...with the level of hostility when someone is misundertsood
or disagreed with, it really doesn't surprise me!
I think that we all have a lot to offer each other here as will any new
people who join us. I hope everyone is having a super day.
Amanda
At Wed, 19 Jun 2002, Wanda wrote:
>
>I think until you have your medical degree that you might refrain from
>giving psychological and/or medical advice.
>
>If it is all in my head...then why at EACH of my laps, Endo was found, along
>with adhesions, and cysts....but I suppose my MD's imagine those and so did
>I.
>
>I DID NOT QUIT MY JOB...I GOT FIRED BECAUSE OF THE PAIN ASSOCIATED FROM
>ENDOMETRIOSIS...which on EACH pathology report from each of my 8 surgeries
>was found...but I suppose that was in my head and the pathologists head. My
>ovary was removed because it was full of Endo and stuck to my bowels because
>of Endo, my appendix was removed because it was inflamed and FULL of Endo
>per the pathology report and my surgeon. I have had laser excision several
>times and EACH time there was ENDO. Explain that......if you are so
>knowledgable.
>
>Also, my question is if you have minimal pain, then why do you need an Endo
>support group? We are all here to SUPPORT each other and not put each other
>down REGARDLESS if the pain is in our heads or not.
>
>Wanda
>
>>From: anonymous@obgyn.net (anonymous)
>>Reply-To: anonymous@obgyn.net
>>To: Multiple recipients of list ENDO <anonymous@obgyn.net>
>>Subject: Re: Gosh.....people can be cruel......I feel like
>>screaming....:o-to all who quit their jobs!!!!!!!!-t o Jess, Kristy and
>>Wanda AND MARIE
>>Date: Tue, 18 Jun 2002 18:39:22 -0500
>>
>>If the message had been read properly, I said that during my summer
>>holidays I worked full time(always close to 40 hours) but during the
>>university year, which I also do full time(ie. 20 contact
>>hours+additional at home study) I only work about 15 hours...which if
>>you add up is about 35-45 hours. So yes, I do have
>>responsibilities...different to yours but I do have them!
>>
>>Look, I'm not trying to be nasty or anything. I didn't mean it to come
>>out that way from the start.
>>I just wanted to bring across another point of view, ie. that sometime
>>people are so caught up in their endo problems(plus other medical
>>problems) that it takes over their lives, and maybe for some, and I'm
>>only saying for some, that the pain is psychological. I know so many of
>>you have been told "it's all in your head" and I think that's totally
>>worng...as I've been told the same...but maybe for some it's actually
>>true!
>>
>>At Tue, 18 Jun 2002, marie wrote:
>> >
>> >Oh honey 15 hours is not barely part time I cannot believe someone would
>> >say they work full time i work 40 hrs a week and run a household my pain
>> >is unbearable and for you to say im all caught up in it i dont think so
>> >i have to work clean cook take care of a family and then deal with my
>> >bad health you apparently do not have to carry much responsibility in
>> >your life to pop off to us for hurting for most of us this is the only
>> >place anyone can talk to us and not make us feel so lonely. so next
>> >time maybe you might restrain your comments thank you marie
>> >
>> >At Tue, 18 Jun 2002, another wrote:
>> >>
>> >>At Mon, 17 Jun 2002, wrote:
>> >>>
>> >>>Anonymous,
>> >>
>> >>One of the medical facts that completely has escaped you is the fact
>> >>that everyone's pain threshold is different. Yes, 2 patients can be
>> >>diagnosed with the same severe condition, but one feels it more acutely.
>> >>The one with the higher threshold is able to function better because of
>> >>it. Having witnessed this in cancer patients I, or any medical
>> >>professional can tell you this. So, it's wonderful that endo isn't your
>> >>whole life, and nearly everyone strives to be the same way. Anyway,
>> >>aren't you being inconsistent in your answers????? Didn't you previously
>> >>excoriate the others because you are able to work "full time"???
>> >>Ten-fifteen hours/week is hardly full time.
>> >>
>> >>--
>> >>Another anonymous
>> >>>
>> >>>At Sat, 15 Jun 2002, anonymous wrote:
>> >>>>
>> >>>>periods started.
>> >>>>I too, am in a lots of pain, especially around my period(today being
>>one
>> >>>>of those days!!!!!) but I also get pain anytime during the cycle and
>> >>>>just like for you all, it's a pain in the ass for me too!
>> >>>>After my first lap, I started to give up on study, I withdrew from 2
>> >>>>subjects...I barely passed the other 3.
>> >>>>Then the new year started and I realised if I kept that up I'd be like
>> >>>>this throughout my whole uni life! And I didn't want that. I know
>> >>>>there's no cure. So I just decided to get on with life.
>> >>>>I had to arrange my 2nd lap in jan 2002 around my employer's
>> >>>>schedule...and seeing that I'm only a casual worker who during the uni
>> >>>>year works only 10-15 hours I thought that was a bit harsh. So like
>>all
>> >>>>of you, my employer just doesn't get it either. My friends don't get
>>it
>> >>>>either...my Mum lives overseas, so what I'm trying to say is that I
>> >>>>don't really have anyone to talk to about endo. That's why I like
>>these
>> >>>>forums. But I think the difference is that I don't think endo is my
>> >>>>life...I want to and do lead a normal life like all my friends.
>> >>>>I just think some people are so caught up in all their endo problems,
>> >>>>they really do believe that it's such a massive problem. I think if
>>you
>> >>>>steer some of your attention and energy away from endo, it won't be
>> >>>>causing such a massive problem.
>> >>>>
>> >>>>These are just my opinions.
>> >>>>Thanks.
>> >>>
>> >--
>> >you can email me wonderwoman_91@yahoo.com
>> >
>>
>
>--
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