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Re: Gosh.....people can be cruel......I feel like screaming....:o-to all who quit their jobs!!!!!!!!-t o Jess, Kristy and Wanda
From: anonymous (anonymous@obgyn.net)
Sat Jun 15 20:30:03 2002
To answer some of your questions...I don't know how long I've had
endo...I got my first period when I was 11 (I'm just about to turn 21)
and they say I could have had it since then or just a bit after my
periods started.
I too, am in a lots of pain, especially around my period(today being one
of those days!!!!!) but I also get pain anytime during the cycle and
just like for you all, it's a pain in the ass for me too!
After my first lap, I started to give up on study, I withdrew from 2
subjects...I barely passed the other 3.
Then the new year started and I realised if I kept that up I'd be like
this throughout my whole uni life! And I didn't want that. I know
there's no cure. So I just decided to get on with life.
I had to arrange my 2nd lap in jan 2002 around my employer's
schedule...and seeing that I'm only a casual worker who during the uni
year works only 10-15 hours I thought that was a bit harsh. So like all
of you, my employer just doesn't get it either. My friends don't get it
either...my Mum lives overseas, so what I'm trying to say is that I
don't really have anyone to talk to about endo. That's why I like these
forums. But I think the difference is that I don't think endo is my
life...I want to and do lead a normal life like all my friends.
I just think some people are so caught up in all their endo problems,
they really do believe that it's such a massive problem. I think if you
steer some of your attention and energy away from endo, it won't be
causing such a massive problem.
These are just my opinions.
Thanks.
At Sat, 15 Jun 2002, Jessica wrote:
>
>Emily,
>
>I was so glad to hear from you. ADA is a wonderful research need. We should
>be prepared when we speak to an Employer. I was not aware that Endo was
>protected by the ADA. THANKS! This will help us when we are able to apply
>for another job.
>
>I have lost 2 jobs b/c of Endo. One told me "You can longer miss work to see
>a doctor. Please try to see them before or after work." I worked 8-5, M-F,
>What doctor will see me before 8am (with time to make it to work before 8
>am) or after 5 pm (including rush hour)? The other asked "Can we count on
>you to make it here EVERYDAY!". If I'm in the ER, how can I make it to work!
>
>Jessica
>
>>>----- Original Message -----
>From: Emily <anonymous@obgyn.net>
>To: Multiple recipients of list ENDO <anonymous@obgyn.net>
>Sent: Saturday, June 15, 2002 1:44 PM
>Subject: Re: Gosh.....people can be cruel......I feel like
>screaming....:o-to all who quit their jobs!!!!!!!!
>
>> hi, anon!
>>
>> like everyone else has said, i'm so happy that you have been able to get
>> on with your life.
>>
>> i haven't quit or lost my job b/c of endo, but, if i didn't explore the
>> legal options available in the US, i would have by now. i have missed
>> quite a bit of work, which is the last thing in the world that i want to
>> do.
>>
>> i feel so miserable each time i call in sick, because, as a manager, i
>> know that my team counts on me to be there and, if i'm not, it hurts
>> them as well.
>>
>> currently, i only work 24 hrs/week under the Federal Medical Leave Act
>> that allows for a leave of absense or reduced work schedule while
>> dealing with a medical issue. i plan on doing this through the end of
>> august (when my lupron course is over). endo is also protected under
>> the ADA (Americans with Disabilities Act, so employers have to make
>> reasonable accomodation regarding the workplace)
>>
>> reducing my work schedule was one of the hardest decisions that i have
>> made, because i feel such a strong committment to my work and team
>> members. it was only after i realized that my entire life was focussed
>> around just getting through the work day and this was making me sicker
>> and sicker (also, i received several stern talks from family members and
>> friends that my health is more important than any job) did i decide to
>> go on this schedule. since i've been on it, i've felt better, stronger,
>> and healthier than i have since dealing with endo because so much stress
>> is lifted. also, i think i've been able to do a better job at work
>> because i'm not so stressed out about making it through the day and
>> giving in to the pain and misery i feel.
>>
>> ironically, endo was much more my life when i was working fulltime and,
>> now that i'm not, i'm freer to make healthy decisions to support all
>> aspects of my life.
>>
>> about the vitamin issue, when first diagnosed, i read all i could about
>> naturopathic healing. my sister completed 2 yrs of natropathic medical
>> school, so she helped out. i take 25 vitamins/day and have made all
>> kinds of nutrition and lifestyle changes. does this all help the endo?
>> maybe--who knows if it would be worse without it? i'm willing to do
>> whatever i can to reduce its effects, while recognising that there is no
>> cure and both the lupron and the vitamins can only help to minimize it.
>>
>> take care!
>> emily
>>
>> At Fri, 14 Jun 2002, anonymous wrote:
>> >
>> >Hi,
>> >I find it strange that so many people are quitting their jobs because of
>> >pain, endo etc etc. Why would you do such a thing? It's like you're all
>> >just living, trying new meds, writing to forums like this all day long.
>> >It's kind of ridiculous, I think!
>> >It's not like I'm being insensitive either. I was just diagnosed in
>> >sept 2001 with severe endo, had a lap, then I send one in jan 2002. In
>> >between that I was in pain nearly everyday, at uni full time and then
>> >working during my summer holidays(I'm in Australia) about 30-40 hours a
>> >week.
>> >You shouldn't let endo BE your life, because what's the point?
>> >That's just my opinion.
>> >
>> >At Fri, 14 Jun 2002, Kristy wrote:
>> >>
>> >>Jessica,
>> >>
>> >>I hope that all goes well with your surgery. When is it?
>> >>
>> >>=====
>> >>Kristy :)
>> >>
>> >>http://www.geocities.com/sokokl/kristyspersonalpage.html
>> >>
>> >>Hoping to be a nurse soon but for now just a Medical Secretary who does
>a lot of learning from reading on the Net, books, my dr(s), as well as
>sharing my own personal experiences.
>> >>
>> >>http://taxes.yahoo.com/
>>
>> --
>> Emily
>>
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