ENDO Messages for May, 2002: Re: Syranol....effects???

Re: Syranol....effects???

From: marie (anonymous@obgyn.net)
Thu May 30 22:26:26 2002

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i just want to be honest with you. Hold on dearly to your mom. I have had problems since i was 13 and was diagnosed with endo at 22 im 24 i have inherited mine. Nobody can tell you all why you have it. Its one of lifes big mysteries where it came from. Its a giant secret hiding in your body waiting to attack us. I was on lupron and been on zillions of meds for as long as i can remember. Lupron im not going to lie sucks it makes you feel like crap the headaches and with mine my cramps never went away so they put me on provera with lupron and i gained a bunch of weight i have been off it for a year and i cannot lose the weight for nothing. And since your so young i will tell you something I worked two jobs and went full time college until i just about fell out, I had to drop out of college in my last semester. I am working now a full time job because i am lucky to have a four year old daughter but my pain is deciding to take me to a new level. I am so tired and feel bad now that to get out of bed is a chore in itself. Tell your mom when you are hurting and i know you may not want to worry her. and involve her in everything medical you go through i have not been able to live by myself since i have gotten so bad and please tell your doctor every side effect that is the only way you two can figure out what is right for you and do not be bullied into medicine you do not want. I have been with to many docs telling me to take something. Stand your ground. My mom is my best friend partly because hers almost took her out she had so many complications until they did hysterectomy but hyst is not right for everyone. I mean i wont let my doctor say that to me it peeves him off i want another child so bad me and my husband cant stand it. So in other words hang in there this is a good place to talk about your problems cause so many of us have been through hell and we can relate. marie my email is wonderwoman_91@yahoo.com if you need to talk.

At Thu, 30 May 2002, Kayla wrote: >
>Hey gals!
>I just went to my gyn today to follow up from the last appointment. She
>has several final possibilities that could be causing the pelvic
>pain....adhesions from scar tissue, endo, and/or bowel problems. Before
>she would put me under general anestesia for the third time this year,
>she wants to try the Syranol...simialr to Lupron but it's a nose spray.
>I was wondering if anyone has used the Syranol and what they thought.
>Did it help? How long does it take to feel a difference? What should I
>expect? My gyn said that I would be crabby and I quote "bitchy!". I've
>never heard a doc swear to a patient before....to elaborate a side
>effect....LoL! What can I do to help myself w/ all of this? Is there
>anything that I can do for myself? I've heard that being on Lupron
>..which is very similar to Syranol is like being on chemo....is that
>true? Does it really wipe you out like that? This is all new to me, so I
>am very scared and skeptical. I want to do whats best for me and whats
>best in the long run. Most likely, I will be finishing college near
>home and my doctor because of all this crap.....that was one of my gyn's
>major concerns especially if the pain starts really acting up
>again...right now it's controllable. I would just appreciate to hear
>how others have gone through this and how they made it. What about
>explaining this to my mother? She's stressed about this....alot and I
>want her to know that I really do have these bad cramps on and off but
>at the same time, I don't want her to worry too much.......if you know
>what I mean. I love her more than anything in this world...same w/ my
>family. I am only 19 and this isn't something that I should have to
>deal with, right? Thanks all....sorry it's so long!
>
>--
>Kayla
>**Just someone who cares, preparing for the medical field**
>

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