Re: Try HRT too.....
From: taylor (anonymous@obgyn.net)
Tue May 28 16:47:16 2002
At Tue, 28 May 2002, elizabeth wrote:
>
>Hi there, I just wanted to say that everyone really should research an thing and everything that the doctor's are prescribing for endo. There is no real cure for endo except to have it removed by a specialist. The following is something I wrote after battling with endo for 14 years. t is rather long but I think it pretty much says it all.
>
>>>----- Original Message -----
>From: anonymous@obgyn.net
>Sent: Tuesday, May 28, 2002 4:57 AM
>To: Multiple recipients of list ENDO
>Subject: Re: Try HRT too.....
>
>Hi there.
>I am just comming to the end of a six month course of injections and I
>experienced all the symptoms of full blown menopause suddenly around the
>second month. I agree, it was awful and I thought I was going mad,
>aswell as the hot flushes etc, my migraines worsened, I became very
>depressed and very forgetful. I went to my GP who put me on
>Kliovance(HRT) which I have been taking aswell as the Prostap. After a
>couple of weeks there was a huge improvement, the migraines have almost
>stopped, two minor ones in 2 months which is excellent for me!, and I
>feel almost human again. I am now just waiting to go in for a
>hysterectomy.
>
>At Thu, 31 Jan 2002, DIANE wrote:
>>
>>I had tried Lupron for six months. It gave me night sweats, bad mood s ngs, bloating, bad dreams, etc. It was all the signs of full menapause It did nothing for my endo condition. I had to pay my gyn 20.00 per m th to give me the shot, which only took two minutes. The only thing I t from my gyn was how much I weighed each month. I stayed the same all hru the six months. I was laid off from work, due to lack of work avai ble. I had to pay cobra 220.00 per month and 20.00 to Giant for the in ction. It was very costly and did absoutely nothing for me. I was mor depressed than ever. I believe it also causes cancer, but I have no in rmation to back this up. Maybe others have had better luck.
>>
>>>>>----- Original Message -----
>>From: DannerSent: Friday, January 04, 2002 9:46 AM
>>To: Multiple recipients of list ENDO
>>Subject: Re: Lupron, help?
>>
>>hi, just wanted to let you know my experience with lupron. the dreaded
>>lupron!!!
>>
>>i just got my second shot a week ago. i have now decided no more for me it
>>has given me insane migraines. headaches in which it feels as if i am b ng
>>stabbed repeatedly in the right temple. i was in the ER yesterday not o e,
>>no, but twice due to this. and noone ever told me the side effects lupr n
>>can cause other than the hot flashes and night sweats.
>>
>>remember that this is just MY reaction to the lupron and it doesn't mean
>>you'll have problems. but i will NEVER put that poison in my body again !
>>
>>good luck, hope it works better for you than it did me!
>>deanna
>>
>>>>>----- Original Message -----
>>From: "Dena" <anonymous@obgyn.net>
>>To: "Multiple recipients of list ENDO" <anonymous@obgyn.net>
>>Sent: Thursday, January 03, 2002 7:35 PM
>>Subject: Lupron, help?
>>
>>> Could any of you wonderful women tell me how many months of injections
>>> before the Lupron begins to make you feel better?
>>>
>>> Also, did anyone feel worse first before feeling better? I'm almost t o
>>> weeks past my second injection....I couldn't get out of bed last
>>> Saturday because the pain was so bad! It seems to be the worst a few
>>> days after an injection.
>>>
>>> Thank you for your help.
>>>
>It amazes me the things we women with endometriosis go thru.
> We have babies we are not ready to have. We go thru the pai and heartache of infertility. We eventually give up on ever having a c ild. The pain and heartache because of this alone, is more than most of us can deal with. Those of us, who are lucky enough to have children, h ve more questions that seem to have no answers. "Did I pass this on to my child?" "Will I have the strength to pick up my baby and hold them lose?" "Will I be able to forget my pain long enough to sit and play or just read a book to my child?"
> We have pain that grinds our daily lives to a complete halt. We take medications that at times not only has long term effects, but m re often than not increases our pain, rather than take it away. We suff r through surgery, after surgery, after surgery. Hoping that this time ill be the last time. That this time, the endo is gone and will not ret rn.
> We go to doctors that don’t understand. Doctor's th t don’t care. Doctor's that don’t have time to care. Do tor's that get offended if we seek second opinions. Doctor's who think L pron and Hysterectomies are cures for endo. Doctor's who think "it's no mal, get used to it." Doctor's who tell us "it's all in your head."
> We spend all of our time fighting with insurance companies, rying to get the care we pay for. We deplete our life savings paying fo healthcare that should have been covered.
> We deal with friends and family who think our "cramps" are j st a normal thing and that we are just whining or trying to get attentio . Friends and family who try to understand, but truly dont. Family and friends that after a while, stop asking "How are you today," because the are afraid you may just tell them the truth, again.
> We go thru the heartache of caring about that special someo e in our lives, only to end up hurt and alone after he is unable to deal with the pain and mood swings after only a few months. We spend years w th that special someone, only in the end, who leaves because he wants a hild that we are unable to give him.
> We get fired from jobs, because we hurt to bad to get out be most mornings. We have bosses that despite, how much they care, truly on’t understand when we have to leave in the middle of a meeting because we have soaked thru the tampon, two pads and clothing we were w aring. (Let's not discuss those mysterious unexplainable stains in the hairs we sit in.)
> We plan our lives around that time of the month. We suffer hru the embarrassment of standing in line at stores, while our clothing ecomes stained. We spend more money on replacing bed sheets and cloth ng in one year than most people spend in five years.
> We become depressed, tired, angry, hurt, confused, scared... the list is endless.
> In the end we are forced to reach out to unknown people on a message board. Just to know that we are not alone in our fight to have normal life. To maybe find that one last chance to have a child that w so desperately want. To seek advice on something we have yet to try. o find answers that our doctor's can't or won't provide. To find a new octor that can truly help. To understand what is truly wrong with our b dies. To know that we are not alone.
> We seek answers to questions over the Internet, to which the e are no answers. We research the latest medical journals, seeking answ rs, only to find nothing. We subject our bodies to tests, tests, and mo e tests. (Some of us should have medical degrees by this time.) We do ore medical research on endo, than is taught in most medical schools.
> If you can relate to just one thing that I have written, the you know and understand what I have been thru. Thank you for understan ing. Thank you for listening. Thank you for allowing me to truly talk bout my feelings. My heart and prayers go out to every woman that has e perienced this awful, horrible, debilitating disease. Know that you are not alone in your fight. Know that no matter how bad it seems at the mo ent that you can always find a friend on this message board to give you ncouragement, a hug, a smile, a helping hand. Thank you to all the lad es who have helped me gets through some of the worst days of my life.
>Liz
II've try meds and done numerous research on med's and specialist and
subjected myself to numerous studies. try to do the gene studies
through the oxford university you have to get your moms and grandmothers
and cousin blood samples but it will help in the research, will i don't
have heavy periods but i have bad pain most the month and can move my
left leg due to it causing more pain in my left overy. i was desperate
to find a solution to my pain case i live my life in a straight jacket
and my personality is very outgoing and on the go. and the pain
debilitates me from actives after about twenty days in pain i go crazy.
i recently felt like i could not handle it anymore and wanted to go
amany nights to the emergency room and say just take al my organ out i
can't stand it. after loosing hope on all the drugs out there including
study drugs i got desperate and thought OK i will go try acupuncture
before i go for a hysterectomy I've only gone two weeks and have relief
like i never expected I'm going to continue going to see if it will help
so far i consider it a miracle it's expensive by it will spend money for
relief. better than living on pain pills. i wish i would have went
sooner before taking all those horrible drugs that did nothing but
damage to my organs.
please try it if you have any questions about what it is like you can
write me at anonymous@obgyn.net from taylor
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