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Re: Try HRT too.....From: elizabeth (anonymous@obgyn.net)Tue May 28 08:34:34 2002
Hi there, I just wanted to say that everyone really should research any thing and everything that the doctor's are prescribing for endo. There is no real cure for endo except to have it removed by a specialist. The following is something I wrote after battling with endo for 14 years. It is rather long but I think it pretty much says it all.
>----- Original Message ----- Hi there. I am just comming to the end of a six month course of injections and I experienced all the symptoms of full blown menopause suddenly around the second month. I agree, it was awful and I thought I was going mad, aswell as the hot flushes etc, my migraines worsened, I became very depressed and very forgetful. I went to my GP who put me on Kliovance(HRT) which I have been taking aswell as the Prostap. After a couple of weeks there was a huge improvement, the migraines have almost stopped, two minor ones in 2 months which is excellent for me!, and I feel almost human again. I am now just waiting to go in for a hysterectomy.
At Thu, 31 Jan 2002, DIANE wrote:
>
>>>----- Original Message -----
>>>----- Original Message ----- It amazes me the things we women with endometriosis go thru. We have babies we are not ready to have. We go thru the pain and heartache of infertility. We eventually give up on ever having a child. The pain and heartache because of this alone, is more than most of us can deal with. Those of us, who are lucky enough to have children, have more questions that seem to have no answers. "Did I pass this on to my child?" "Will I have the strength to pick up my baby and hold them close?" "Will I be able to forget my pain long enough to sit and play or just read a book to my child?" We have pain that grinds our daily lives to a complete halt. We take medications that at times not only has long term effects, but more often than not increases our pain, rather than take it away. We suffer through surgery, after surgery, after surgery. Hoping that this time will be the last time. That this time, the endo is gone and will not return. We go to doctors that don’t understand. Doctor's that don’t care. Doctor's that don’t have time to care. Doctor's that get offended if we seek second opinions. Doctor's who think Lupron and Hysterectomies are cures for endo. Doctor's who think "it's normal, get used to it." Doctor's who tell us "it's all in your head." We spend all of our time fighting with insurance companies, trying to get the care we pay for. We deplete our life savings paying for healthcare that should have been covered. We deal with friends and family who think our "cramps" are just a normal thing and that we are just whining or trying to get attention. Friends and family who try to understand, but truly dont. Family and friends that after a while, stop asking "How are you today," because they are afraid you may just tell them the truth, again. We go thru the heartache of caring about that special someone in our lives, only to end up hurt and alone after he is unable to deal with the pain and mood swings after only a few months. We spend years with that special someone, only in the end, who leaves because he wants a child that we are unable to give him. We get fired from jobs, because we hurt to bad to get out bed most mornings. We have bosses that despite, how much they care, truly don’t understand when we have to leave in the middle of a meeting, because we have soaked thru the tampon, two pads and clothing we were wearing. (Let's not discuss those mysterious unexplainable stains in the chairs we sit in.) We plan our lives around that time of the month. We suffer thru the embarrassment of standing in line at stores, while our clothing becomes stained. We spend more money on replacing bed sheets and clothing in one year than most people spend in five years. We become depressed, tired, angry, hurt, confused, scared... the list is endless. In the end we are forced to reach out to unknown people on a message board. Just to know that we are not alone in our fight to have a normal life. To maybe find that one last chance to have a child that we so desperately want. To seek advice on something we have yet to try. To find answers that our doctor's can't or won't provide. To find a new doctor that can truly help. To understand what is truly wrong with our bodies. To know that we are not alone. We seek answers to questions over the Internet, to which there are no answers. We research the latest medical journals, seeking answers, only to find nothing. We subject our bodies to tests, tests, and more tests. (Some of us should have medical degrees by this time.) We do more medical research on endo, than is taught in most medical schools. If you can relate to just one thing that I have written, then you know and understand what I have been thru. Thank you for understanding. Thank you for listening. Thank you for allowing me to truly talk about my feelings. My heart and prayers go out to every woman that has experienced this awful, horrible, debilitating disease. Know that you are not alone in your fight. Know that no matter how bad it seems at the moment that you can always find a friend on this message board to give you encouragement, a hug, a smile, a helping hand. Thank you to all the ladies who have helped me gets through some of the worst days of my life. Liz
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