Re: ATTN: Elise Re: Missing Ovary - FOUND!
From: anonymous (anonymous@obgyn.net)
Mon May 20 16:35:10 2002
Dear Elise:
I forgot to mention that if your case is truly a severe/complicated
adhesion case, then you may also want to consider Dr. Reich as this is
one of his areas of expertise.
http://www.generalsurgeryinfo.com/gerhart5/
http://www.adlap.com
With any of these docs -- Johns, Reich and his colleagues -- you'd be in
great hands.
At Mon, 20 May 2002, anonymous wrote:
>
>Dear Elise:
>
>I noticed that you are in Houston. Well, after reading your post, it
>sounds like your case definitely requires a doc who knows what he is
>doing! Please do yourself a favor and contact Dr. D. Alan Johns in Ft.
>Worth -- he is the top endo lap specialist in this region. I'll provide
>the websites for you. Elise, what your doc said about the/*his*
>necessity to remove some of your organs so the adhesions can't stick to
>them is pure nonsense -- your doc obviously doesn't know what in the
>hell he is talking about -- run away from this doc!
>Contact Johns and see if there is anyone who they recommend in Houston.
>But honestly, if I were in your shoes, I'd take a Southwest Airlines
>flight to Fort Worth for surgery -- at least with Dr. Johns, you'll be
>in the most capable hands for your type of surgery.
>If you would like to speak with me further, let me know and I'll contact
>you offlist via email.
>
>http://www.endometriosis-texas.com/
>http://www.womenssurgerygroup.com/
>
>At Sun, 19 May 2002, Ana wrote:
>>
>>WOW Elise. I am so sorry. I don't know what to say. The entire situat on sounds like a "mess". What I would advice you to do is get a second pinion. Always get a second opinion.
>>Good luck hun. I will be praying for you.
>>*HUGS*
>>~ANA
>>
>>>>>----- Original Message -----
>>From: anonymous@obgyn.net
>>Sent: Sunday, May 19, 2002 3:45 PM
>>To: Multiple recipients of list ENDO
>>Subject: Missing Ovary - FOUND!
>>
>>I had posted a couple of weeks ago about my right ovary coming up
>>missing during my lap. It was really strange since it showed up quite
>>well on sono the week prior to the surgery. The doc was convinced I
>>probably had it removed during a previous surgery and just did not
>>remember.
>>
>>Since then I had another sono done and the ovary still shows up - with
>>the continual cyst that has been there for over 2 months. So we are
>>sure it is in there. Apparently it is stuck in a mass of adhesions that
>>are holding it down way below where it is supposed to be. I think I
>>have been feeling it just above my right hip joint for some time, I just
>>did not realize that was what it was.
>>
>>It apparettnly diappeared following my c-section 20 months ago - since
>>the doc who did the surgery said everything looked "OK" before she sewed
>>me up. The theory is that it somehow got caught up in the surgery scar
>>tissue and got stuck down there. The tons of adhesions from the endo
>>all throughout my abdomen do not help of course. I guess endo just
>>trains your body to make really good scars tissue!
>>
>>My question now is this: The doctor does not really advise doing
>>anything about the situation. He says I am a "mess" with the adhesions
>>and that is probably what has caused my sudden, severe abdominal pain
>>attacks over the past year and a half. But if the attacks are not that
>>often, then I am better off to not do anything - in case the adhesions
>>might come back worse.
>>
>>He also suggested that if he were to do anything, he would need to do a
>>major bowel resection and a total hysterectmy at the same time so the
>>"adhesions would not have anything to stick to." But the adhesions are
>>already covering LOTS of things besides my female organs, so there would
>>still be PLENTY for them to stick to. I think this it is really his way
>>of saying that it is too much trouble to salvage my female organs and
>>still take care of the adhesions/endo. Am I right?
>>
>>I think that freeing up the ovary would be a good thing to do. Of
>>course, I am also the one who gets the major, severe abdominal attacks -
>>not the doc. My husband thinks my description of these attacks sounds
>>like what a guy feels when he is kicked in the groin - only in my case
>>it begins suddenly and last for many hours. I am sure most men would
>>not want to feel that way "occasionally" and just blow it off as
>>unimportant.
>>
>>If my ovary that is stuck in a wierd position is causing the pain -
>>wouldn't freeing it up help? Or might that be jumping out of the frying
>>pan and into the fire? Does anyone have any experience with something
>>like this?
>>Does anyone know of - or know how I can find - a doctor in the Houston
>>are for a second opinion - esp someone who specializes in laparoscopic
>>surgery?
>>
>>PS - I have had endo for many years - but the pain had always been
>>long-term, dull aches, major pain with periods and ovulation, painful
>>intercourse, hormones out of whack, etc. - not sudden or severe pain
>>like this until after the c-section.
>>
>>--
>>Elise in Texas
>>
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