ATTN: Elise Re: Missing Ovary - FOUND!
From: anonymous (anonymous@obgyn.net)
Mon May 20 01:00:56 2002
Dear Elise:
I noticed that you are in Houston. Well, after reading your post, it
sounds like your case definitely requires a doc who knows what he is
doing! Please do yourself a favor and contact Dr. D. Alan Johns in Ft.
Worth -- he is the top endo lap specialist in this region. I'll provide
the websites for you. Elise, what your doc said about the/*his*
necessity to remove some of your organs so the adhesions can't stick to
them is pure nonsense -- your doc obviously doesn't know what in the
hell he is talking about -- run away from this doc!
Contact Johns and see if there is anyone who they recommend in Houston.
But honestly, if I were in your shoes, I'd take a Southwest Airlines
flight to Fort Worth for surgery -- at least with Dr. Johns, you'll be
in the most capable hands for your type of surgery.
If you would like to speak with me further, let me know and I'll contact
you offlist via email.
http://www.endometriosis-texas.com/
http://www.womenssurgerygroup.com/
At Sun, 19 May 2002, Ana wrote:
>
>WOW Elise. I am so sorry. I don't know what to say. The entire situat on sounds like a "mess". What I would advice you to do is get a second pinion. Always get a second opinion.
>Good luck hun. I will be praying for you.
>*HUGS*
>~ANA
>
>>>----- Original Message -----
>From: anonymous@obgyn.net
>Sent: Sunday, May 19, 2002 3:45 PM
>To: Multiple recipients of list ENDO
>Subject: Missing Ovary - FOUND!
>
>I had posted a couple of weeks ago about my right ovary coming up
>missing during my lap. It was really strange since it showed up quite
>well on sono the week prior to the surgery. The doc was convinced I
>probably had it removed during a previous surgery and just did not
>remember.
>
>Since then I had another sono done and the ovary still shows up - with
>the continual cyst that has been there for over 2 months. So we are
>sure it is in there. Apparently it is stuck in a mass of adhesions that
>are holding it down way below where it is supposed to be. I think I
>have been feeling it just above my right hip joint for some time, I just
>did not realize that was what it was.
>
>It apparettnly diappeared following my c-section 20 months ago - since
>the doc who did the surgery said everything looked "OK" before she sewed
>me up. The theory is that it somehow got caught up in the surgery scar
>tissue and got stuck down there. The tons of adhesions from the endo
>all throughout my abdomen do not help of course. I guess endo just
>trains your body to make really good scars tissue!
>
>My question now is this: The doctor does not really advise doing
>anything about the situation. He says I am a "mess" with the adhesions
>and that is probably what has caused my sudden, severe abdominal pain
>attacks over the past year and a half. But if the attacks are not that
>often, then I am better off to not do anything - in case the adhesions
>might come back worse.
>
>He also suggested that if he were to do anything, he would need to do a
>major bowel resection and a total hysterectmy at the same time so the
>"adhesions would not have anything to stick to." But the adhesions are
>already covering LOTS of things besides my female organs, so there would
>still be PLENTY for them to stick to. I think this it is really his way
>of saying that it is too much trouble to salvage my female organs and
>still take care of the adhesions/endo. Am I right?
>
>I think that freeing up the ovary would be a good thing to do. Of
>course, I am also the one who gets the major, severe abdominal attacks -
>not the doc. My husband thinks my description of these attacks sounds
>like what a guy feels when he is kicked in the groin - only in my case
>it begins suddenly and last for many hours. I am sure most men would
>not want to feel that way "occasionally" and just blow it off as
>unimportant.
>
>If my ovary that is stuck in a wierd position is causing the pain -
>wouldn't freeing it up help? Or might that be jumping out of the frying
>pan and into the fire? Does anyone have any experience with something
>like this?
>Does anyone know of - or know how I can find - a doctor in the Houston
>are for a second opinion - esp someone who specializes in laparoscopic
>surgery?
>
>PS - I have had endo for many years - but the pain had always been
>long-term, dull aches, major pain with periods and ovulation, painful
>intercourse, hormones out of whack, etc. - not sudden or severe pain
>like this until after the c-section.
>
>--
>Elise in Texas
>
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