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Re: pains are back after surgery
From: anonymous (anonymous@obgyn.net)
Sat May 18 11:43:48 2002
This was so similar to my situation that I had to write. I had my first
lap in April, in which my doctor also lasered out the endo. After a
couple of weeks, the same old pain returned (this pain is uniquely
recognizable, as most of you know). My doctor wants to start me on
Lupron, which although scary to me, seems to be the most common
treatment and worth a try, especially if this pain is indicative of endo
remaining. At this point, the every day pain would make me willing to
try almost anything. What I'm confused about is this; from my research,
primary dysmenorrhea has the same symptoms as endo, except that it is
centered around your period, where as endo pain can occur at any time.
Before I started seeking treatment, my symptoms fell into the category
of primary dysmenorrhea (since the age of 14, severe pain on the first
two days of my period, with some other symptoms directly before and
after). I started on the birth control pills to control this, and they
helped for a couple of years, and then gradually helped less and less,
until I started having every day pain. What I'm wondering is, what if
my original problem was primary dysmenorrhea, then the birth control
brought on the endo? Once I finish the Lupron, even if it does get rid
of all the endo, I could be back to square one with the primary
dysmenorrhea! How do you know which is causing the pain? And is there no
help for primary dysmenorrhea? Any info or opinions would be greatly
appreciated.
I just want to add that this site has been enormously helpful to me in
my search to have a pain free, normal life. Everyone hang in there!
At Fri, 17 May 2002, Mindy wrote:
>
>Looking at your questions from two sides, first, it is possible to have
>pain post surgery for a couple of months. A friend of mine had pain for
>4 months and then it just dissappeared.
>
>Secondly, I know that their are many women who have had sucess when
>their docs used the laser, but when a laser is used, there is no way of
>knowing how deep the lesions are, thus the laser may not go deep enough
>to get to deep rooted Endo. I had laser the first time and it did not
>work for me. I found a specialist who did excision where they continue
>to cut until they see healthy tissue, thus the doc knows he got all of
>it. If your doc is not experienced enough in treating endo, he/she may
>not know that endo has several colors. The lesions can be white,
>yellow, clear, or black. So it is possible that all of your Endo may
>not have been eradicated. Also, many docs don't look at the bowel area,
>as the case for my first doc. My second surgery I needed a partial
>resection of my sigmoid colon which alleviated the rectal pain.
>
>I know this is a lot, but as a suggestion, if the pain persists, I would
>look into seeing a "specialist" in Endo. A doc that has done several
>hundred Endo surgeries, not just your regular gyn whose main source of
>business is delivering babies (as was my first experience!)!!! There are
>many docs that know how to remove it entirely (including what many call
>"microscopic" Endo)and know it's various colors.
>
>Best wishes to you,
>Mindy :-)
>
>At Fri, 17 May 2002, barb wrote:
>>
>>Well I had my first lap about 3 months ago. My dr found endo on both
>>ovaries,uterus, a cyst on one of my ovaries,and adhesions. He told me
>>that he got everything with the laser. When I went in 2 weeks later for
>>my check up, he told me having pains in the areas where the surgery took place was normal. My body was recovering. Well the pains went away.
>>They eventually came back but were very very light. Although, in since
>>the surgery i've noticed really bad pains in my rectum area. Today my
>>old pains came back(pains in lower back,and near ovaries) I had to take
>>a darvocet to ease it. I went back to my old ways of lying in bed and
>>crying due to the pain. Do you believe these are still "recovery pains"
>>or possibly more endo that the dr didn't find during my lap? I would
>>like to trust my dr when he tells me he got all the endo but I can't
>>help thinking he possibly missed some. If anybody else has had this
>>problem or has a suggestion please email me at cherrygumm@bham.rr.com
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