Re: Awareness: Read about the latest & Best Selling Documentary on Endometriosis
From: Mindy (anonymous@obgyn.net)
Thu May 16 10:01:19 2002
I wanted to thank Belle, Monica and everyone involved for taking the
time to do this documentary. There is something in this video for any
women who suffers from Endo. You all did a great job of covering every
aspect of this disease that I could think of!
I was so happy to see Dr. R of Bend, Or in this video because not only
was I fortunate enough to be treated by him, I agree with his means of
eradicating the disease.
This video needs to be seen by all GYN's!
Job well done!
Mindy :-)
At Tue, 30 Apr 2002, B.Browne wrote:
>
>Two women, one a nurse in Australia, the other a film maker in the US in
>Texas had identical experiences with endo. Misdiagnosis, unbelievable
>pain dismissed as hypochondria, imagination, or "This is normal - put up
>with it".
>
>They each determined to share their experiences with other endo
>sufferers.
>
>They met in an internet chat room. They planned, they raised money(
>Belle actually took a personal loan out.. Indebt they were determined
>to get this finished and on film and out to the public) and from their
>own experiences with the disease and with the help of some caring
>doctors and womens' support groups they made a documentary film that
>shows women what they can expect when they get endometriosis and how to
>manage it.
>
>How well did they succeed? Here's a review from Mary Lou Ballweg, who
>started the US Endometriosis Association 18 years ago when she couldn't
>get help with her disease.
>
>"This video is so good that it simply must get out to the world.
>
>>From the beginning of the Endometriosis Association, women and girls
>have shared their stories of endo - powerful, painful, poignant stories.
>
>Anyone who listens to these stories will be moved and forever change
>their attitudes towards this disease. Now, in a wonderful documentary,
>the best video ever on endo, women tell their stories for the world. If
>we can get partners, friends, families, and most of all, doctors and
>researchers, to view this documentary we can help change the world's
>view of endometriosis."
>
> Mary Lou Ballweg, President
> Endometriosis Association
>
>Review of the video "Endometriosis. The Inside Story" By Heather
>Guidone
>
>"Endometriosis: The Inside Story," by E.B.Browne & M.M. Flores is,
>simply put, one of the best coping tools a woman and her family can have
>when dealing with Endometriosis.
>
>"The Inside Story" shows us that we are not alone with this disease and
>that no one has to suffer in silence. Belle and Monica have done a
>wonderful job of showing the world how it is to live with Endometriosis
>- and how to get help managing it. Honest, educational, empowering and
>full of the latest information, no patient or doctor who treats this
>insidious disease should be without a copy of "The Inside Story" in
>their video library.
>
>Shortly after returning from DC (within a week) Jen and I both sat down
>to watch the documentary. I, for one, was very moved. I probably went
>through about a dozen tissues during the course of the video. Yes, men
>do cry sometimes. Just don't let out my secret :)
>Much of what I saw was very familiar to me, especially after having just
>come back from the walk and hearing all the testimonials of the women I
>met there. There was much information that was new to me. Particularly
>some of the interviews of the Endo specialists contained bits of
>information that I had never heard before.
>I think the fact that Jen and I had spent a weekend with you made the
>video that much more powerful for me. To get a view of the daily life
>for women who have more debilitating disease than Jen does was just
>incredible. I sat in amazement, all the while thinking "Is this how
>Jen's going to be in a few years?" It deeply saddened and angered me
>that there are so many women in so much pain and relatively little is
>being done about it. My respect for you and other women who have this
>disease has also increased dramatically. The fact that you were able to
>come to the US to show support for the cause shows how strong of an
>individual you are.
>I would love to see a Part II to the documentary. The more information
>there is out there about this disease, the better.
>Jeffrey M. Cox
>Programmer/Analyst
>IA Systems, Inc.
>
>A review From Carey and John Blondin ,who started Mendo and Carey's Endo
>Survival Kit
>
>John and I just finished watching your video. One word comes to mind
>for us - FANTASTIC. You all did a fabulous job in getting the REAL
>story of endometriosis out there. There has never, in our opinion, been
>a more realistic , more factual, more true to life program about
>endometriosis than yours.
>
>This video brought John and I both to tears several times. And watching
>you in surgery... man did that rip at my heart. I SO remember those
>feelings that you expressed without any words at the end of your surgery
>when the nurse was talking to you.
>
>It is a huge success in our book, Belle. Bravo to the entire team
>involved. Now we can't wait until your second one.
>
>Excellent job .
>
>Carey
>
>"Endometriosis. The Inside Story" a US / Australian co-production has
>been highly praised by other support groups all over the world as the
>most powerful and complete film ever produced on this tricky
>subject...One of the best tools to educate, especially your husbands and
>loved ones and most of all your Doctor or Obgyn. OBGYN.net has also
>published an interview with Belle Browne, the Australian nurse. You can
>read it at http://www.obgyn.net/endo/articles/endo_doc_review.htm
>If you have endometriosis or have a partner, friend or relative who has
>it please contact the Endometriosis Association at
>http:www.endometriosisassn.org for information about how to get help or
>the video...OR go to the website http://www.endometriosis.org and order it on
>the secure credit card page and buy in US dollars and it will be
>delivered to you. Recently 5000 documentaries when to gyneacologists
>accross the united states and 15,00 letters to follow and we hope to
>help and educate many doctors and their patients...now if we can get
>them to listen to us no matter what country we are in. We can only hope
>and pray .
>
>Heres to a cure and hopefully soon, I have read some encouraging
>research and hopefully one day soon there will be a noninvasive test to
>diagnose endo...now would that be brilliant. I wish you all better
>health, Less pain and many happy and wonderful years to come.
>May Blessings follow you today and always.
>Best Wishes,
>
>Belle
>
>--
>*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*
>Belle Browne R.N Medical Advisor
>http://www.endometriosis.org
>Producer of the Documentary" Endometriosis The Inside Story"
>Read about the Documentary at : http://www.endometriosis.org/html/video.html
>Australian/International Endometriosis Representative
>email support@endometriosis.org
>Owner Female Chronic Pain Sufferers Forum
>to subscribe send an email to
>FemaleChronicPainSufferers-subscribe@yahoogroups.com
>*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-
>
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