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Re: Catamenial penumothorax(endo in the lung) ATTN: Christine
From: anonymous (anonymous@obgyn.net)
Wed May 8 00:18:40 2002
Yes Christine, endo can absolutely affect the lungs.
http://www.thetrocar.com/journal/articles/art_005/articles_005.shtml
http://www.adlap.com
At Tue, 07 May 2002, christine wrote:
>
>i have just been diagnoise with endo i have had lung problems all my life but the last 2 years my lungs have been worse also my end started to cause severe problems around the same time, i have gone to see a specialist on my lungs and they cant figure out why the doctor suggested cyctic fribroisis but i have had 3 children can endo effect ur lungs i hope not does any one have a answer?
>
>On Tue, 7 May 2002 15:41:23 -0500 anonymous <anonymous@obgyn.net> wrote:
>
>I'm sorry I don't have any particular knowledge so that I can advise you
>-- but I do know that for those suffering this condition who wish to
>pursue surgery would be best served by Drs. Reich and Redan in
>Pennsylvania. Drs. Reich and Redan are most knowledgeable re this
>condition and can perform the procedure laparoscopically. Their website
>is http://www.adlap.com
>
>At Tue, 7 May 2002, anonymous wrote:
>>
>>At Thu, 23 Aug 2001, B.Browne wrote:
>>>
>>>Dear Tony,
>>>
>>>Please email me off the list at TinkerBelles@bigpond.com I want to give
>>>you an Endo Specialist Doctors name, that maybe able to help your wife
>>>or at least refer her to someone who knows how to deal with this type of
>>>endometriosis, its rare and so there for its difficult to get the
>>>correct treatment and finding a surgeon who understands and who can help
>>>her...is half the battle.
>>>I hope to hear from you soon.
>>>Cheers,
>>>
>>>Belle
>>>
>>>--
>>>
>>>Belle Browne R.N
>>>Producer of Endometriosis The Inside Story
>>>President of the N.S.W Endometriosis Association, Australia
>>>http://www.endometriosis.org
>>>http://www.endometriosis.org/html/video.html -- To read about the Documntary
>>>Email: anonymous@obgyn.net
>>>
>>>At Wed, 22 Aug 2001, Tony wrote:
>>>>
>>>>At Fri, 8 Dec 2000, Carolyn wrote:
>>>>>
>>>>>At Sat, 18 Sep 1999, Lily wrote:
>>>>>>
>>>>>>I have this problem for over 10 years. I have tried all sorts of
>>>>>>hormone therapy, laparascopy and it only stopped for a short time and my
>>>>>>lung collapsed again.
>>>>>>I have also tried chemical pleurisy with tetracycline and it didn't
>>>>>>work.
>>>>>>Recently I had a thoracoscopy but I had another lung collapse the next
>>>>>>month. I wanted to meet with some doctors, ob-gyn, thoracic surgeons,
>>>>>>pulmonologists,etc who has treated this type of illness before.
>>>>>>
>>>>>>Apparently, the doctors told me my lung is very resilient.
>>>>>>Can anyone help me? I am now on hormone therapy to suppress my menses so
>>>>>>that my body can recover from previous operations but this is not a long
>>>>>>term solution. Somehow all the doctors ruled out hysterectomy. They
>>>>>>think is too traumatic and may not be the solution to my lung problem.
>>>>>>If someone has similar problem, can you please share your thoughts with
>>>>>>me?
>>>>>>
>>>>>>Thanks.
>>>>>
>>>>>Hi,
>>>>>I have also had several surgeries(3) and a total of 5 collapsed lungs. I
>>>>>had two thorocotomies and a thoroscopy. I have been on Lupron and
>>>>>Depro-provera both of which really messed up my body, mind, and
>>>>>emotions. I am currently on Prometrium and this is the best!!
>>>>>Unfortuneately doctors do not understand, know or believe me when I talk
>>>>>about endometriosis and lung in the same sentence. Recently a doctor
>>>>>changed my meds without consulting me. now again I am having chest
>>>>>discomfort after two years stable..(i wished I'd listened to my inner
>>>>>knowledge and confronted her immediately>) It doesn't matter if the
>>>>>doctor is male or female. I don't know who to call. Who will
>>>>>understand. It' s a real B....Thanks for listening.
>>>>>Carolyn
>>>>
>>>>Hi,
>>>>I am a husband of a wife who has been diagnosed with endomitriosis. She
>>>>has experienced 2 collapsed lungs within the last 3 months, both
>>>>requiring surgery and lengthy hospital stays. Since, both of these
>>>>messages are older, I was wondering if you have any updates on your
>>>>condition and treatments.
>>>>
>>>>Thank YOu
>>>>Tony
>>>My daughter was diagnosed with catamenial/thoracic endometriosis at age 15 and
>>is being treated with continuous birth control. She has less chest pain
>>but
>>other problems. Last doctors visit she was tested for cervical cancer
>>because
>>of the birth conrol, which originally wasn't suppose to be a problem.
>>Everything came out fine and they kept her on the pill, so her lung
>>wouldn't collapse. It is up to her when she wants to get off of it but
>>she is afraid of the pain. My mother took DES when she was pregnant
>>with me? Is there any
>>connection between this and the grandchildren?
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