|
Re: Catamenial penumothorax(endo in the lung)
From: anonymous (anonymous@obgyn.net)
Tue May 7 15:39:10 2002
I'm sorry I don't have any particular knowledge so that I can advise you
-- but I do know that for those suffering this condition who wish to
pursue surgery would be best served by Drs. Reich and Redan in
Pennsylvania. Drs. Reich and Redan are most knowledgeable re this
condition and can perform the procedure laparoscopically. Their website
is http://www.adlap.com
At Tue, 7 May 2002, anonymous wrote:
>
>At Thu, 23 Aug 2001, B.Browne wrote:
>>
>>Dear Tony,
>>
>>Please email me off the list at TinkerBelles@bigpond.com I want to give
>>you an Endo Specialist Doctors name, that maybe able to help your wife
>>or at least refer her to someone who knows how to deal with this type of
>>endometriosis, its rare and so there for its difficult to get the
>>correct treatment and finding a surgeon who understands and who can help
>>her...is half the battle.
>>I hope to hear from you soon.
>>Cheers,
>>
>>Belle
>>
>>--
>>
>>Belle Browne R.N
>>Producer of Endometriosis The Inside Story
>>President of the N.S.W Endometriosis Association, Australia
>>http://www.endometriosis.org
>>http://www.endometriosis.org/html/video.html -- To read about the Documntary
>>Email: anonymous@obgyn.net
>>
>>At Wed, 22 Aug 2001, Tony wrote:
>>>
>>>At Fri, 8 Dec 2000, Carolyn wrote:
>>>>
>>>>At Sat, 18 Sep 1999, Lily wrote:
>>>>>
>>>>>I have this problem for over 10 years. I have tried all sorts of
>>>>>hormone therapy, laparascopy and it only stopped for a short time and my
>>>>>lung collapsed again.
>>>>>I have also tried chemical pleurisy with tetracycline and it didn't
>>>>>work.
>>>>>Recently I had a thoracoscopy but I had another lung collapse the next
>>>>>month. I wanted to meet with some doctors, ob-gyn, thoracic surgeons,
>>>>>pulmonologists,etc who has treated this type of illness before.
>>>>>
>>>>>Apparently, the doctors told me my lung is very resilient.
>>>>>Can anyone help me? I am now on hormone therapy to suppress my menses so
>>>>>that my body can recover from previous operations but this is not a long
>>>>>term solution. Somehow all the doctors ruled out hysterectomy. They
>>>>>think is too traumatic and may not be the solution to my lung problem.
>>>>>If someone has similar problem, can you please share your thoughts with
>>>>>me?
>>>>>
>>>>>Thanks.
>>>>
>>>>Hi,
>>>>I have also had several surgeries(3) and a total of 5 collapsed lungs. I
>>>>had two thorocotomies and a thoroscopy. I have been on Lupron and
>>>>Depro-provera both of which really messed up my body, mind, and
>>>>emotions. I am currently on Prometrium and this is the best!!
>>>>Unfortuneately doctors do not understand, know or believe me when I talk
>>>>about endometriosis and lung in the same sentence. Recently a doctor
>>>>changed my meds without consulting me. now again I am having chest
>>>>discomfort after two years stable..(i wished I'd listened to my inner
>>>>knowledge and confronted her immediately>) It doesn't matter if the
>>>>doctor is male or female. I don't know who to call. Who will
>>>>understand. It' s a real B....Thanks for listening.
>>>>Carolyn
>>>
>>>Hi,
>>>I am a husband of a wife who has been diagnosed with endomitriosis. She
>>>has experienced 2 collapsed lungs within the last 3 months, both
>>>requiring surgery and lengthy hospital stays. Since, both of these
>>>messages are older, I was wondering if you have any updates on your
>>>condition and treatments.
>>>
>>>Thank YOu
>>>Tony
>>My daughter was diagnosed with catamenial/thoracic endometriosis at age 15 and
>is being treated with continuous birth control. She has less chest pain
>but
>other problems. Last doctors visit she was tested for cervical cancer
>because
>of the birth conrol, which originally wasn't suppose to be a problem.
>Everything came out fine and they kept her on the pill, so her lung
>wouldn't collapse. It is up to her when she wants to get off of it but
>she is afraid of the pain. My mother took DES when she was pregnant
>with me? Is there any
>connection between this and the grandchildren?
|
|
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)