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Re: To Amanda and Teresa Re: bathroom pain

From: Amanda (anonymous@obgyn.net)
Tue May 7 06:46:20 2002


Selisa: I also feel that doctors don't believe me because they don't try to suggest anything and they just stare at me and then move on without comment. My present gynecologist told me that "it would shock her if that pain was a result of endemetriosis and that she would have to see that one for herself to believe it" Time for a new doctor I guess. Amanda

At Mon, 6 May 2002, Selisa wrote: >
>Amanda,
>Hehehe....I agree!!! But I am glad too, that they are people out there
>who not only know, but who truly understand. There are times when I am
>describing my pain to doctors,that I get the feeling that they don't
>believe me. Have you ever had that happen? Isn't it frustrating?? Well
>I will tell ya this Amanda, Teresa and Heather, if I run across anything
>that looks like it may help, ya'll will be the FIRST to know! In the
>meantime, I hope ya are able to find some relief. Tomorrow I go back to
>the doc, hopefully something good will come out of that!
>
>Hugs to ya'll,
>Selisa ; )
>
>At Mon, 6 May 2002, Amanda wrote:
>>
>>Heather, Selisa, Teresa....it seems like soon we will need a new forum
>>just for bathroom pain!!! I am not glad that any of us have this problem
>>but it is nice to know that there are other people who understand. A
>>frustrating aspect that remains I suppose is that none of our doctors
>>have any solutions. I suppose if adhesions/scar tissue on our bladders
>>are the cause of our pain, even hysterectomy would not bring releif. I
>>have read that 2 self-help measures for endo in general are complete
>>non-consumption of dairy products and maintenance of a healthy weight.
>>Please let me know if you have heard of anything else.
>>Thanks,
>>Amanda a_farquharson@hotmail.com
>>
>>At Mon, 6 May 2002, Heather wrote:
>>>
>>>It gives me some comfort to know that you guys are out there. I have
>>>extreme bladder pain when emptying a full bladder. My urologist also
>>>said that it is probably due to adhesions from having laparoscopies. He
>>>said the adhesions form somewhat of a rubberband and when we empty a
>>>really full bladder, the rubberband like material stretches causing
>>>pain. Although that sounds great, he had no solution, so I still
>>>suffer. I have found that not waiting until I have a full bladder to
>>>use the bathroom helps some...also I have cut out caffeine and I have
>>>found some relief as well. Let me know what you all hear...I am so
>>>frustrated at the lack of answers...but we all have each other and
>>>that's better than nothing :)
>>>
>>>Hope you both have a great day!
>>>-Heather M.
>>>
>>>At Fri, 03 May 2002, Teresa wrote:
>>>>
>>>>Hey Amanda :o)
>>>>
>>>>I thought you might like to know that you are not the only one who has
>>>>bladder pain all the time - I do too, along with bowel pain.
>>>>It is annoying as you go to the toilet to 'relieve' yourself, but end up
>>>>hurting more for a while.
>>>>
>>>>Teresa (G) :o)
>>>>Sending Pain-free vibes.
>>>>




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