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Re: bathroom pain
From: Selisa (anonymous@obgyn.net)
Fri May 3 21:32:12 2002
My doc had talked to me about Interstitial Cystitis, but after they ran
all the tests and we talked, she said she really didn't think that was
the problem. But I am willing to try anything that would help!!
At Fri, 3 May 2002, anonymous wrote:
>
>Have you considered the possibility of Interstitial Cystitis? There is
>no cure for IC but dietary changes can make a dramatic difference.
>
>http://www.ic-network.com/
>http://www.ic-network.com/handbook/diet.html
>http://www.ichelp.org/
>http://www.ic-network.com/askthemd/march00.html
>
>At Thu, 2 May 2002, Selisa wrote:
>>
>>I also suffer with alot of bladder pain, and have had several tests done
>>too. The only thing they told me, was that I had a small bladder! But
>>that doesn't explain why I have so much pain when I need to go, am
>>going, and even after I go. There are times, when if I have had to wait
>>to go, after I have gone, I am in so much pain, that I literally can't
>>move. It brings tears to my eyes and there is nothing I can do that
>>helps. My doctor has no clue either, so has basically given up. I get
>>alot of UTI's though, I think its a side effect of one of my meds
>>though, and the UTI's can cause pain, but not all the time like I have
>>it.
>>
>>Another thing I was wondering, is there anyone else who has Endo, but
>>who doesn't get their period? Most of my life I have had an eating
>>disorder, so I think that is why I don't get mine, but all my doctors
>>have been baffled as to why I have Endo so severely, but no periods. It
>>kinda blows their theory that instead of leaving the body during the
>>cycle, the blood somehow gets trapped up inside. ( I'm not sure what
>>exactly the theory is, but its something like that.)
>>Even when they put me on BC pills or Depo or Lupron, I never get my
>>period, which, to tell ya the truth, I really don't mind! I have had it
>>about maybe 10 times my whole life, and I kinda like it that way.
>>However, even though I don't have a normal cycle, I have severe pain due
>>to the Endo, and since these nerve blocks aren't working, I really don't
>>know what I am going to do. I am only 25, but yet I feel so old, do you
>>know what I mean??
>>
>>At Thu, 2 May 2002, Amanda wrote:
>>>
>>>At Tue, 30 Apr 2002, Mindy wrote:
>>>>
>>>>Is your pain all of the time or just during menstruation? For me, my
>>>>pain was usually during menstruation unless I had a UTI some other time
>>>>during the month.
>>>>
>>>>I would have your doctor check you for a urinary tract infection and go
>>>>from there. They can be very painful and similar in pain to that of
>>>>Endo.
>>>>
>>>>Mindy
>>>>
>>>>At Mon, 29 Apr 2002, christina wrote:
>>>>>
>>>>>I am 21, am a college student, I had a lap done last summer and have
>>>>>been on BC (lo-overal) since then as I cannot afford lupron. Dr. said
>>>>>i have lesions on my bladder, lately I have noticed LOTS of pain before
>>>>>but mostly after urination. It is intense and worsening, I AM LOSING
>>>>>HOPE!!! Could someone m,aybew tell me what is going on? Dr. seems to be
>>>>>clueless. please help?
>>>
>>>Hi:
>>>I have pain all throughout the month with urination that is supposedly
>>>the result of endemetriosis. It also started when I was 21, in
>>>University. I was tested for bladder infections and took drugs for
>>>them, even though there wasn't anything showing up. I spent a day as an
>>>outpatient having painful bladder function tests in the hospital
>>>involving catheters and xrays etc. with no major abnormality uncovered.
>>>My laproscopy- also that year also found endo attached to my bladder
>>>which was removed but with no long term improvement. Like you, my pain
>>>is before urination and especially after. The pain begins with a full
>>>bladder, first sore to the touch then if I have to wait for the bathroom
>>>it aches. Then AS I urinate my stomach aches with increasing severity
>>>and sharpness the more my bladder is emptied peaking as it is completely
>>>empty. I have lived in 3 different cities since I was 21 (am 24 now)
>>>and so I have had different doctors. The most qualified (a
>>>gyno-urologist) of the 3 said that sometimes when adhesions are removed
>>>they can leave scar tissue and that could be the source of my bladder
>>>pain. My endemetriosis is classified as "mild" but this doctor also
>>>said that the severity of endo is unrelated to the level of pain. He
>>>said that short of Luoperon or having a Hyseterectomy, I would have to
>>>learn to live with it. My most recent doctor told me that after reading
>>>the surgical report it would seem highly unlikely that I could have
>>>bladder pain all month long with such a small amount of endo. She
>>>offered to refer me to a new urologist and to start all over. I
>>>declined for now. I don't know about you but it is more the mystery of
>>>it's presence that bothers me than the actual pain. I worry that the
>>>pain that is being "ignored" is supposed to be a warning sign. Other
>>>symptoms of endo like cramps and painful intercourse are things that
>>>women everywhere suffer from. I don't know anyone else, except now you,
>>>who has bladder pain all of the time. Email me if you like. Good luck.
>>>Amanda
>>>
>>>--
>>>Amanda
>>>a_farqubarson@hotmail.com
>>>
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