Re: bathroom pain
From: anonymous (anonymous@obgyn.net)
Fri May 3 02:13:00 2002
Have you considered the possibility of Interstitial Cystitis? There is
no cure for IC but dietary changes can make a dramatic difference.
http://www.ic-network.com/
http://www.ic-network.com/handbook/diet.html
http://www.ichelp.org/
http://www.ic-network.com/askthemd/march00.html
At Thu, 2 May 2002, Selisa wrote:
>
>I also suffer with alot of bladder pain, and have had several tests done
>too. The only thing they told me, was that I had a small bladder! But
>that doesn't explain why I have so much pain when I need to go, am
>going, and even after I go. There are times, when if I have had to wait
>to go, after I have gone, I am in so much pain, that I literally can't
>move. It brings tears to my eyes and there is nothing I can do that
>helps. My doctor has no clue either, so has basically given up. I get
>alot of UTI's though, I think its a side effect of one of my meds
>though, and the UTI's can cause pain, but not all the time like I have
>it.
>
>Another thing I was wondering, is there anyone else who has Endo, but
>who doesn't get their period? Most of my life I have had an eating
>disorder, so I think that is why I don't get mine, but all my doctors
>have been baffled as to why I have Endo so severely, but no periods. It
>kinda blows their theory that instead of leaving the body during the
>cycle, the blood somehow gets trapped up inside. ( I'm not sure what
>exactly the theory is, but its something like that.)
>Even when they put me on BC pills or Depo or Lupron, I never get my
>period, which, to tell ya the truth, I really don't mind! I have had it
>about maybe 10 times my whole life, and I kinda like it that way.
>However, even though I don't have a normal cycle, I have severe pain due
>to the Endo, and since these nerve blocks aren't working, I really don't
>know what I am going to do. I am only 25, but yet I feel so old, do you
>know what I mean??
>
>At Thu, 2 May 2002, Amanda wrote:
>>
>>At Tue, 30 Apr 2002, Mindy wrote:
>>>
>>>Is your pain all of the time or just during menstruation? For me, my
>>>pain was usually during menstruation unless I had a UTI some other time
>>>during the month.
>>>
>>>I would have your doctor check you for a urinary tract infection and go
>>>from there. They can be very painful and similar in pain to that of
>>>Endo.
>>>
>>>Mindy
>>>
>>>At Mon, 29 Apr 2002, christina wrote:
>>>>
>>>>I am 21, am a college student, I had a lap done last summer and have
>>>>been on BC (lo-overal) since then as I cannot afford lupron. Dr. said
>>>>i have lesions on my bladder, lately I have noticed LOTS of pain before
>>>>but mostly after urination. It is intense and worsening, I AM LOSING
>>>>HOPE!!! Could someone m,aybew tell me what is going on? Dr. seems to be
>>>>clueless. please help?
>>
>>Hi:
>>I have pain all throughout the month with urination that is supposedly
>>the result of endemetriosis. It also started when I was 21, in
>>University. I was tested for bladder infections and took drugs for
>>them, even though there wasn't anything showing up. I spent a day as an
>>outpatient having painful bladder function tests in the hospital
>>involving catheters and xrays etc. with no major abnormality uncovered.
>>My laproscopy- also that year also found endo attached to my bladder
>>which was removed but with no long term improvement. Like you, my pain
>>is before urination and especially after. The pain begins with a full
>>bladder, first sore to the touch then if I have to wait for the bathroom
>>it aches. Then AS I urinate my stomach aches with increasing severity
>>and sharpness the more my bladder is emptied peaking as it is completely
>>empty. I have lived in 3 different cities since I was 21 (am 24 now)
>>and so I have had different doctors. The most qualified (a
>>gyno-urologist) of the 3 said that sometimes when adhesions are removed
>>they can leave scar tissue and that could be the source of my bladder
>>pain. My endemetriosis is classified as "mild" but this doctor also
>>said that the severity of endo is unrelated to the level of pain. He
>>said that short of Luoperon or having a Hyseterectomy, I would have to
>>learn to live with it. My most recent doctor told me that after reading
>>the surgical report it would seem highly unlikely that I could have
>>bladder pain all month long with such a small amount of endo. She
>>offered to refer me to a new urologist and to start all over. I
>>declined for now. I don't know about you but it is more the mystery of
>>it's presence that bothers me than the actual pain. I worry that the
>>pain that is being "ignored" is supposed to be a warning sign. Other
>>symptoms of endo like cramps and painful intercourse are things that
>>women everywhere suffer from. I don't know anyone else, except now you,
>>who has bladder pain all of the time. Email me if you like. Good luck.
>>Amanda
>>
>>--
>>Amanda
>>a_farqubarson@hotmail.com
>>
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