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Re: bathroom pain
From: Selisa (anonymous@obgyn.net)
Thu May 2 22:28:06 2002
I also suffer with alot of bladder pain, and have had several tests done
too. The only thing they told me, was that I had a small bladder! But
that doesn't explain why I have so much pain when I need to go, am
going, and even after I go. There are times, when if I have had to wait
to go, after I have gone, I am in so much pain, that I literally can't
move. It brings tears to my eyes and there is nothing I can do that
helps. My doctor has no clue either, so has basically given up. I get
alot of UTI's though, I think its a side effect of one of my meds
though, and the UTI's can cause pain, but not all the time like I have
it.
Another thing I was wondering, is there anyone else who has Endo, but
who doesn't get their period? Most of my life I have had an eating
disorder, so I think that is why I don't get mine, but all my doctors
have been baffled as to why I have Endo so severely, but no periods. It
kinda blows their theory that instead of leaving the body during the
cycle, the blood somehow gets trapped up inside. ( I'm not sure what
exactly the theory is, but its something like that.)
Even when they put me on BC pills or Depo or Lupron, I never get my
period, which, to tell ya the truth, I really don't mind! I have had it
about maybe 10 times my whole life, and I kinda like it that way.
However, even though I don't have a normal cycle, I have severe pain due
to the Endo, and since these nerve blocks aren't working, I really don't
know what I am going to do. I am only 25, but yet I feel so old, do you
know what I mean??
At Thu, 2 May 2002, Amanda wrote:
>
>At Tue, 30 Apr 2002, Mindy wrote:
>>
>>Is your pain all of the time or just during menstruation? For me, my
>>pain was usually during menstruation unless I had a UTI some other time
>>during the month.
>>
>>I would have your doctor check you for a urinary tract infection and go
>>from there. They can be very painful and similar in pain to that of
>>Endo.
>>
>>Mindy
>>
>>At Mon, 29 Apr 2002, christina wrote:
>>>
>>>I am 21, am a college student, I had a lap done last summer and have
>>>been on BC (lo-overal) since then as I cannot afford lupron. Dr. said
>>>i have lesions on my bladder, lately I have noticed LOTS of pain before
>>>but mostly after urination. It is intense and worsening, I AM LOSING
>>>HOPE!!! Could someone m,aybew tell me what is going on? Dr. seems to be
>>>clueless. please help?
>
>Hi:
>I have pain all throughout the month with urination that is supposedly
>the result of endemetriosis. It also started when I was 21, in
>University. I was tested for bladder infections and took drugs for
>them, even though there wasn't anything showing up. I spent a day as an
>outpatient having painful bladder function tests in the hospital
>involving catheters and xrays etc. with no major abnormality uncovered.
>My laproscopy- also that year also found endo attached to my bladder
>which was removed but with no long term improvement. Like you, my pain
>is before urination and especially after. The pain begins with a full
>bladder, first sore to the touch then if I have to wait for the bathroom
>it aches. Then AS I urinate my stomach aches with increasing severity
>and sharpness the more my bladder is emptied peaking as it is completely
>empty. I have lived in 3 different cities since I was 21 (am 24 now)
>and so I have had different doctors. The most qualified (a
>gyno-urologist) of the 3 said that sometimes when adhesions are removed
>they can leave scar tissue and that could be the source of my bladder
>pain. My endemetriosis is classified as "mild" but this doctor also
>said that the severity of endo is unrelated to the level of pain. He
>said that short of Luoperon or having a Hyseterectomy, I would have to
>learn to live with it. My most recent doctor told me that after reading
>the surgical report it would seem highly unlikely that I could have
>bladder pain all month long with such a small amount of endo. She
>offered to refer me to a new urologist and to start all over. I
>declined for now. I don't know about you but it is more the mystery of
>it's presence that bothers me than the actual pain. I worry that the
>pain that is being "ignored" is supposed to be a warning sign. Other
>symptoms of endo like cramps and painful intercourse are things that
>women everywhere suffer from. I don't know anyone else, except now you,
>who has bladder pain all of the time. Email me if you like. Good luck.
>Amanda
>
>--
>Amanda
>a_farqubarson@hotmail.com
>
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