ENDO Messages for April, 2002: Re: Has anyone ever felt like there are 'open sores' internally in their pelvis? Thanks, Tanja

Re: Has anyone ever felt like there are 'open sores' internally in their pelvis? Thanks, Tanja

From: Jennifer (anonymous@obgyn.net)
Mon Apr 29 14:41:26 2002

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In reply to: Kristy: "Re: Has anyone ever felt like there are 'open sores' internally in their pelvis? Thanks, Tanja"

I would also add that you need to check out your doc's credentials before allowing him or her to perform the laparoscopy. There are many OB-GYNs who assume they are skilled enough to treat endo through laparoscopy, but in the Endometriosis Sourcebook (which I highly, highly recommend), it says that in a study of 58 doctors who applied for a special laparoscopic certification and believed they were qualified, only 5 actually passed the test to get the certification!!! (I don't have the book right in front of me, or I would be more specific)

I just went through a lap without checking thoroughly first my doc's credentials, and she found new implants at a worse stage then they've ever been, but she doesn't have the skills to remove them, so she just left them and wants me to do Lupron (which we talked about BEFORE surgery, when I said I would never, ever take it again). If I want (or need) those implants gone, I'll have to pay for another surgery!

The fact that you've already been diagnosed with endo should have been a lightbulb for the doctor. If he can't or won't do the lap, get a referral. Don't wait for the 6 weeks if you are so incapacitated by pain that you can't live your life. Besides, has he done any tests to see if there are other causes of the pain (ectopic pregnancy, ruptured cyst, uterine fibroids)? If he hasn't and just sent you away with a BCP prescription, how does he know you don't have one of the above conditions - of which ectopic pregnancy can be fatal?

Just my two cents, Jen G PS. You have every right to fight for proper treatment (even though you're probably already fighting just to do the things healthy people do every day). Be brave, and good luck.

At Sat, 27 Apr 2002, Kristy wrote: >
>Anon,
>
>I've been away from the list for a while as I've been trying to
>adjust to work and I just saw your response. I wanted to tell
>you that you don't have to wait for your dr to suggest
>laparoscopy to you. You can mention it to him and that you want
>him to do one and tell him why. If he won't then find one who
>will.
>
>=====
>Kristy :)
>
>Unit Clerk for Mother/Baby Dept at Shands Jacksonville, Jacksonville, FL
>
>http://www.geocities.com/sokokl/kristyspersonalpage.html
>
>Hoping to be a nurse soon but for now just a Medical Secretary who does a lot of learning from reading on the Net, books, my dr(s), as well as sharing my own personal experiences.
>
>http://taxes.yahoo.com/

--
Women hold up half the sky ...

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Previous message: Tina: "Re: having big time blood in urine, have had hyst. for endo, pain in right shoulder"
In reply to: Kristy: "Re: Has anyone ever felt like there are 'open sores' internally in their pelvis? Thanks, Tanja"

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