Re: Wanda and all Re: Allergy to meds, hormones,etc. (very long)
From: Wanda (anonymous@obgyn.net)
Tue Apr 23 22:20:28 2002
Actually, No, I honestly did not even think about that. Thank you...that is
something that I will have to ask about~!
This is all very interesting. Because I am also Lactose intolerant.
I have also thought Endo fed off estrogen because when most women take BCP's
or high estrogen based hormones therapy, the Endo pain seems to get worse.
I am always open to new ideas and advice.
I believe the statement that Endo is autoimmune disease for the fact that I
am "always" sick. Seems my body can't fight off anything even though I take
a multi-vitamin and extra vitamin C.
LOL...sounds like you and I are in the same Endo boat..;)
To me, until they find the absolute cause for Endo...I think anything is
worth a try. I am going to talk to my allergist and Dr. McCarus. See what I
can bounce off of them.
I know that I have allergies to a lot of things including shellfish,
chocolate, ASA, ibuprofen, naproxen. But I never thought that Endo and it
could be linked until you have mentioned it...
And I don't think you are off of your rocker ;)
I had my Endo excised by Dr. Albee at the Endo Center in Atlanta. I am still
have pain....Maybe it is linked to the food I ingest or the allergies. That
is a possibility.
As the old saying goes..... You are what you eat.
A roundtable discussion with the Endo experts would be great.
I am going to do some research on the doctors that you gave me the names of
and see if I can come up with anything as well.
It is so wonderful to talk to you...!!
Thank you so much for listening. Sometimes I just talk to talk...lol
Sometimes not caring whether anyone listens...but thank you so much for
listening! You are wonderful person and very informative.
You have brought a lot to the table that even I have not found in my
research of Endo yet!
hope to know your name soon <wink>
Angel Hugs,
Wanda
>----- Original Message -----
From: "anonymous" <anonymous@obgyn.net>
To: "Multiple recipients of list ENDO" <anonymous@obgyn.net>
Sent: Tuesday, April 23, 2002 3:28 AM
Subject: Re: Wanda and all Re: Allergy to meds, hormones,etc. (very long)
> Dear Wanda,
> One more question (since you mentioned already having seen an
> allergist), did your allergist happen to test you for allergic reaction
> against your hormones? On the witsendo list, some of the women there had
> been speaking about how some of us with endo have pain when ingesting
> phytoestrogens, dairy, etc., and others with endo actually feel better
> when ingesting the phytoestrogens, soy milk, etc.! Some of the women who
> had been patients of Dr. Kresch (now deceased) and Drs Cook and Metzger
> have been tested, as a part of treatment, for allergies against their
> various hormones. It turns out that they are allergic to their some of
> their own hormones, ie. some to progesterone, others to estrogen, and
> so forth!!! So this may tie into why some have no problem when consuming
> phytoestrogens. Anyway, I found this to be very interesting because I
> had thought that endo was mainly some type of disease which feeds off of
> estrogen. But now, as I've learned that endo is now considered to be an
> autoimmune disease, this all seems to make much more sense in that its
> as if we are allergic to whatever the offending agent is, be it
> estrogen, progesterone, who knows whatever else, and the resulting, lets
> say, scar tissue, is what has been labeled as endometriosis. *However,
> in my last surgery, not only was a bit of endo found, but also some
> tissue was excised which, upon pathology, showed it to be fibrous tissue
> lined by epithelium and showing focal foreign body giant cell reaction.
> This tissue, which showed foreign body giant cell reaction,
> burned/flared the same as the endo pain. The wording the pathologist
> chose "foreign body giant cell reaction" sounds, to me (keep in mind I
> am just a layperson lol), like autoimmune/an allergic reaction to my own
> cells. If someone here is in medical school, maybe they could make more
> sense of it for us. Anyway, the recent increase in my allergies
> prompted my line of thought lol. From the little bit I've read, mast
> cells appear to be the cells which get irritated and release all these
> histamines when we have an allergic reaction. Well, I've had the most
> bizarre allergic reactions to a couple of supplements, one is MSM, the
> other, B5. Anyway, the entire area around my eyes were all swollen,
> red, burning, itchy, as were my cheeks and face, but especially the
> eyes. I read that it is the mast cells which are responsible for this
> reaction, and that this signifies a deeper allergic reaction in the
> body. So back to how this all may (lol or may not) relate to endo -- I
> am now thinking that perhaps it is an allergic reaction in our bodies.
> This is why I experience "?endo pain?" when I ingest those offending
> items, ie. soy, phytoestrogens, dairy, cottage cheese, eggs, etc.. But
> perhaps the whole process begins, as Dr. Kresch, and now Drs. Cook and
> Metzger, have theorized with their tests and homeopathic drops, perhaps
> it begins as an allergy against our own hormones????
> Its a good thing I'm able to post this anonymously so that only the few
> who recognize me can laugh at my silly ideas lol. I honestly have no
> idea what I'm talking about lol, I haven't any medical knowledge, so I'm
> probably way off track, but just thought that I would bounce it off of
> you. What do you think about finding out what Metzger tests for and
> then having those hormones tested by your allergist to see whether their
> theory holds water?! I haven't insurance so I can't test the theory. I'm
> going to paste this post to witsendo and see what those patients of
> Metzger, Cook, Kresch, have to say as well. I guess, if their theory is
> correct, California may, once again, be ahead of the rest of the nation.
> I don't know -- I wonder how their theory ties in with the latest endo
> research. Then again, I've read that some experts feel that once endo
> is excised, it is gone -- now if that is the case, then my allergy
> theory wouldn't at all make sense because this process would seem
> infinite or until the allergy is eliminated (unless it only affects
> certain cells per Redwine theory -- maybe that is the answer?). And I
> have communicated with endo patients who have had their endo excised and
> have had NO recurrence of their pain. I wonder whether they still have
> problems with allergies.
> One last thing, some have mentioned finding relief with practitioners of
> Chinese Medicine. Well, chinese medicine, I think, is about balancing
> the body's needs -- so does that take me back to the allergy theory lol.
> I don't know. On second thought, I've heard of an endo doc (think he is
> chinese, not positive), Dr. Lie, Toronto, Canada, who excises endo but
> also places his patients on an endo diet. So if he isn't sending his
> patients to chinese herbalists for endo treatment, then I wonder whether
> there truly exists a treatment for endo which doesnt' involve surgery.
> UGH so many questions. I wish we could have a roundtable discussion
> with all of these endo experts so that we could pick their brains lol.
> And why is it that some can have their endo excised and be painfree,
> eat/drink whatever they wish w/o experiencing pain -- and others have
> their endo excised and still have pain? Okay, I've now numbed my brain
> for the year 2002 lol.
>
> At Mon, 22 Apr 2002, Wanda wrote:
> >
> >Dear Anonymous,
> >
> >My allergic symptoms to ASA (aspirin), ibuprofen, and naproxen are severe
> >chest pain, my Asthma sets off, my throat starts to close up and I feel
like
> >I am having a heart attack. I have found out that most people with Asthma
> >are allergic to these NSAID's.
> >I wish I could take them, because I get so tired of taking narcotics.
> >
> >Sulfur...I am honestly not sure about.
> >
> >I have had 2 allergy skin tests. But they were for more things like
pollen,
> >dog and cat dander, and things like that.
> >
> >I have tried homeopathy with my Asthma. It has seemed to decrease the
Asthma
> >symptoms.
> >
> >I can drink coffee, tea, and soda with no problem. I have also been told
my
> >allergist that these help me with the Asthma.
> >
> >You have wonderful questions and I will present them to my allergist next
> >time I see him!
> >
> >Angel Hugs,
> >Wanda
> >
>> >>----- Original Message -----
> >From: "anonymous" <anonymous@medispecialty.com>
> >To: "Multiple recipients of list ENDO" <endo@mail.medispecialty.com>
> >Sent: Monday, April 22, 2002 3:14 PM
> >Subject: Attn: Wanda and all Re: Allergy to meds, etc.
> >
> >> Dear Wanda and all,
> >> I noticed you mentioned being allergic to aspirin, ibuprofen, and a
> >> number of other drugs. Would you please describe to me the symptoms of
> >> such an allergic reaction?
> >> I've noticed an increasing problem with allergies on my part but I
can't
> >> figure out what all I'm allergic to and why this sudden sensitivity --
I
> >> wonder if this is a systemic problem which is also related to whatever
> >> it is which causes us to have endo. In researching, on the web, my
> >> allergy symptoms, it appears that mast cells are involved. Anyway, I'm
> >> wondering whether you're allergic to sulfur as well as other things.
> >> Would you please tell me to what you're allergic, your symptoms, and
how
> >> you deal with this. I'm wondering whether homeopathy would help us
with
> >> these problems -- have you tried that route, if yes, was it successful?
> >> Also, do you have other problems such as acid stomach, nausea, etc.?
Are
> >> you able to drink coffee w/o a problem?
> >>
>
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