Article Publshed ' Who Will Teach My Doctor About Endometriosis '
From: B.Browne (anonymous@obgyn.net)
Fri Apr 19 16:01:49 2002
Hi Angelz,
Many of you new ladies don't know me but from time time I drop by to say
hi and to see how everyone is doing and to show you some articles that
have been published around the world about endo and how many of us
trying hard to change the worlds view of this Silent but Devastating
Painful and Incurable Disease..Here is one of my articles I wrote I hope
you all find it informative..It has been sent to News Ppaers all over
the world. If you would like to send it to your local news paper you
have my permission but please leave my name intact as Author. Thank you
and I hope it is of help to you and your familes..I will follow with a
few more that are also, one being a pain scale being used by pain
specialist all pver Australia and the world, these articles are all
published accross the world, I hope they are of help to some of you.
With Warm Wishes of Pain Free Tommorows,
Belle
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Belle Browne R.N
http://www.endometriosis.org
Producer of Endometriosis The Inside Story
http://www.endometriosis.org/html/video.html
Australian Endometriosis Representative
email support@endometriosis.org
Owner Female Chronic Pain Sufferers Forum
to subscribe send an email to
FemaleChronicPainSufferers-subscribe@yahoogroups.com
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Who will teach My Doctor about Endometriosis..
I began nursing School at 17 years old and I had my first symptom of
Endometriosis at age 16 years old. That was in 1979... It is now 22
years later and doctors and nurses are still not educated in caring for
and looking after or even treating an Endometriosis Sufferer .
Marilyn Monroe suffered from Endometriosis and it is said that when she
went in for one of her surgeries, she taped a note to her stomach,
pleading with doctors not to take her female parts. Queen Victoria was
heard to have said " The only time she felt good, was while she was
pregnant " They say... thats the reason why she had so many childern.
Endometriosis was first reported in roughly 1600 BC. It is now 2001 and
we are no closer to finding what causes this disease or how to treat it
and there is no cure in sight.
This female disease, which effects conservatively 1:10 women or nearly
90 million women world wide. There are many theories and one is that
dioxins play a huge roll in endometriosis, with their effect or damage
to the sufferer's Immune systems.The oldest theory is retrograde
mensturation but that is getting more unlikely. The disease being
Genetic ,is becoming more favourable. No matter what causes this
debilitating and painful disease, we need more people educated,
especially within the medical community.
With a ratio of 1:10, there it is every chance that we all know someone
suffering from Endometriosis. Whether its your Wife, Mother, Sister,
Aunty, Cousin or even Inlaws. There is a chance that one of your family
members might end up suffering this incurable, insidious disease.
The doctors don't know how to treat it, with the exception of excisional
surgery and removal of the disease. But so few doctors know how to
perform this surgery.Which is said to be the most difficult surgery,
harder than cancer to remove.
Endometriosis is an auto immune disease, where misplaced endometrial
tissue, which belongs inside the uterus, is found outside the uterus.
This misplaced endometrial tissue, bleeds internally, the blood has no
where to escape to and so it causes swelling and irritation and then
this all in turn, causes debilitating, unbearable pain. Later forming
adhesions and often causing infertility. Infact Endometriosis is the
leading cause of infertility in the world and some patients do present
with no pain and only infertility, this makes the disease even harder to
understand and diagnose. Some women with severe disease have no pain or
symptoms besides infertility and others who have minimal disease, have a
huge amount of pain. The only Consistency with Endometriosis is the
Inconsistencies.
There is a desperate need for education, not only for the public to be
aware but mainly amongst the medical community it general. None of them
seem to be able to handle or treat an Endometriosis Sufferer. When a
doctor doesn't know or understand something and he can't go and look it
up, due to the lack of updated information in the medical books
available, then he can't be the God, that he thought he was or wants to
be. If thats the case and he feels like a failure, this can be very
bruising to a training doctor's ego, let alone the best Gyneacologist,
who is not up todate on a disease, which is becoming way out of hand.
There are only a couple of handfuls.. of recognized Endometriosis
Specialists worldwide, they are just few and far between.
The doctors who have branched into Endometriosis, have either worked in
infertility or as endocrinologist's or a gyneacologist who has branched
into endoscopic surgery( keyhole surgery) These doctors are very hard to
find and sufferers need all the help they can get at finding them.
Otherwise many sufferers get onto a merry-go-round of continuous
surgeries, each causing more adhesions and more pain and if all their
disease is not excised and every bit cut out, it can only take a few
weeks to a month before it may all grow back. The patient then again
presents in pain and surgery is the only way to check on the disease.
The patient is very quickly labelled a complainer or even a
hypochondriac. So ofcourse they give into more surgery.
It is a terrible merry-go-round to get on and then to get off it, can be
very hard, by then all the damage has been done. Some women are
reporting up to over 20 surgeries. If they had had a recognized endo
surgeon, in the first place, for their first surgery, they may have been
put into remission, in the early years of their disease.
Endometriosis Sufferers are encouraged to join their local Endometriosis
Association in their country. A good place to start is at the website
http://www.endometriosis.org Go to the Support page on this site and it
lists alot of the Endometriosis Association's or Organizations all over
the world.
There is also a Great first ever made, Up todate Documentary called
Endometriosis The Inside Story go to
http://www.endometriosis.org/html/video.html and you can read all about
it and its reviews or even how to order it.
There is help out there but you have to look hard for it and researching
Endometriosis is the sufferer's best weapon, against this insidious and
extremely painful disease. Get educated and quickly.
By Belle Browne R.N
Producer of the Best Selling Documentary on Endometriosis and its called
" Endometriosis The Inside Story'
http://www.endometriosis.org
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