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Re: My story...and Please help me get help.
From: anonymous (anonymous@obgyn.net)
Fri Apr 19 15:35:18 2002
Shanei,
Dr. D. Alan Johns, Fort Worth, Texas, is the doc to see. You can find
him at
http://www.womenssurgerygroup.com -- also, if you click on their "Links" (I
think its the links button, don't remember as its been a while since
I've been to the website), you will find his Texas Endo website link.
At Fri, 19 Apr 2002, Cookie wrote:
>
>Shanei,
>
>I know everyone on this board feels your pain. Know that you are not
>alone and there are many of us that have a similar experience.
>
>Search this board for doctors in Texas.. one of the messages referred
>to two in Fort Worth. Go to
>http://www.womenssurgerygroup.com/physicians.
>
>If you search the board further, you may find others that are close to
>you as well as read the good/bad.
>
>Good Luck!
>
>At Fri, 19 Apr 2002, Shanei wrote:
>>
>>I am 28 and have had endometriosis since I was 13, I was only diagnosed
>>2 1/2 years ago after several surgeries and several doctors misdiagnosed
>>me and then finally told me it was all in my head. I finally found a
>>doctor who would listen to me and she suggested that I may have
>>endometriosis, I had never even heard the word before. She preformed 3
>>surgeries to remove it include a cauterization of my uterus (which
>>failed) she tried lupron injections to stop all my periods and control
>>the endo(which failed) I bled longer and more often for 6 months. She
>>told me I was her 1st failure in both procedures. She finally said she
>>had to give me a hysterectomy because the pain was unbearable and I
>>ended up in the hospital for a week. Like most other woman with endo, I
>>had unbelievable pain, it was hard to drive because the pain would shoot
>>down my legs and make them go almost number. Anytime anyone touched my
>>anywhere near my abdominal area I would cry out in pain and sex was
>>almost impossible. No one wanted to do the hysterectomy because of my
>>age, but my doctor and the insurance company finally relented (I have a
>>daughter and had my tubes tied many many years ago) so I couldn't
>>understand why everyone was so worried about 'castrating me' as they all
>>put it. All I wanted was for the pain, nausuea, cramping, bleeding,
>>bloating, fatigue, emotional stress to just go away. Well I had my
>>hysterectomy on 7/31/01 and all seemed to go well, I started feeling
>>better and I was pain free. That is until December 2001, I started
>>bleeding, then stopped, my doctor said that was normal, I don't think
>>that was normal. Then I ended up in the emergency room in January and
>>in Febuary I went into the emergency room for Bronchitis and severe
>>abdominal pain, the doctor there thought I was over reacting and when I
>>started crying because the pain was so severe he finally decided to push
>>my belly, I screamed out in pain and tried to pull his hand off, but he
>>just kept pushing and decised I really was in pain and called for pain
>>medicine after I had already been there for four hours. He ordered a
>>catascan of my pelvic area because he thougt that I was having a
>>appendicitis. I told him I had endo and he blew me off. Well I wasn't
>>having one but on the only femal organ that I have left (my left ovary
>>which several doctors refused to remove because of my age) I had several
>>cycts and the funny thing is the radiologist thought he saw part of my
>>uterus (you see how well these doctors read there files or paid
>>attention to me). I called my doctor the next day and told her, she
>>wouldn't even do a pelvic, she sent me in for a vaginal ultrasound (very
>>very painful) that 'confirmed' for her my cycst on the ovary for severe
>>pain. My doctor told me to take Darvocet and that I would be fine, not
>>to worry. I started bleeding again in the middle of March and went to
>>the emergency room again. I won't even tell you about that doctor, he
>>didn't even know what to do about my bleeding, but he gave me pain
>>medicine and sent me home. I went back to my gyn and she said that I
>>wold have to have a colonoscopy to rule out that it just might be
>>somehting wrong with my bowels. I told her I didn't want to do that,
>>but she said I had to because of my age or else she would not remove my
>>ovary and possibly endo. Well I had that done last Wednesday and guess
>>what?? My colon was fine! They think that my endo is back in full force
>>and on my appendix and bowels. I called my doctor Monday to tellher and
>>fax her the results. I haven't heard from her and now it's Friday. I
>>cannot take the pain and everything else that goes along with it
>>anymore. This is just the short version of all the things I've done and
>>been through and I dont know what to do anymore. I live in Clear Lake,
>>Texas and work for NASA. Does anyone know anyone around here that I can
>>talk to? A doctor who can help me? Anything at all would be so greatly
>>appreciated. Thank you so much for taking your time to read this.
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