ENDO Messages for April, 2002: Re: Any and All please help regarding total hysterectomy removal of both ovaries and HRT

Re: Any and All please help regarding total hysterectomy removal of both ovaries and HRT

From: BJ (anonymous@obgyn.net)
Sun Apr 14 21:33:46 2002

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In reply to: Debbie: "Any and All please help regarding total hysterectomy removal of both ovaries and HRT"

At Sat, 13 Apr 2002, Debbie wrote: >Hi,
>From what I've read (and come to believe is true) fibro is very
connected to endo and is caused by the same hormone imbalance situation. I am sorry you have had to go through a hyst at so young an age but this is not the end of your problems, especially if you continue with the unopposed estrogen. Your endo stands a good chance of returning because estrogen feeds endo. I have used natural progesterone for the last 8 years to successfully control my endo after losing an ovary to it. I also had fibroids which were removed during the same surgery. The fibroids have not regrown, also thanks to the progesterone.

I would suggest you get a copy of Dr. John Lee's book "What Your Doctor May Not Tell You About Menopause" which will give you a good understanding of this whole hormone thing and allow you to make informed decisions about your future treatment. One thing you'll learn is that we never stop making estrogen, even after menopause or removal of our ovaries. The question then becomes, why take more estrogen? It is the progesterone that we stop making because our ovaries are the primary source of this critical hormone. Most docs tell you that you don't need progesterone if you don't have a uterus but they are completely wrong! Progesterone balances estrogen in the body and prevents all the conditions that result from a state of estrogen dominance, including breast cancer. Dr. Lee has a website http://www.johnleemd.com and his books are also available in many health food and book stores as well as other places on the web.

Another good site to check is http://www.natural-progesterone-advisory-network.com. Also, a web search on "estrogen dominance" will provide large amounts of info.

You mentioned progesterone in your post. You may not know that the drugs docs prescribe, such as Provera, are not real progesterone. They are synthetics and are not as effective, and in fact may cause more problems than they fix. Unfortunately for us patients, too many doctors think they are the same. Natural (bio-identical) progesterone is available in cream form over the counter and topical cream is the best way to use it, easy to control dosing and easier on our livers.

If you decide to stay on estrogen for a while, you may want to request estriol instead of estradiol. Estradiol is the "high test" form of estrogen that we need during our fertile years. It is dangerous to use without progesterone to balance it and has been implicated in breast cancer. Estriol is the low test and recent studies show it to be protective against cancer.

I could go on but then you'd have less to learn on your own! Take care of yourself and good luck. BJ

>Hello, new to this site will give you some history. 39 year old, was
>diagnosed 3 years ago with Fibromyalgia. About 6 months ago periods
>went hay wire! Went to family Dr felt fibroids said no big deal we will
>do a ultrasound to see how big they are and start taking birth control
>pills and he would let me know about the results of the tests. Went to
>get the ultrasound and during the test the technician asked when my
>follow up appt was and I told her I did not have one and she said make
>one. I was in my Drs office the next day with the results of the
>ultrasound. Had a cyst about the size of a apple on my right side
>looked normal and a cyst that looked bad about the size a navel orange
>on the left ovary and fibroids in the uterus. Well the following two
>weeks were filled with CTscans, Gyn appts and I needed to get an
>Oncologist Gyn. The cyst on the left ovary had to be removed to see if
>it was cancer. They were going to try to keep the other ovary if it
>looked OK. The uterus was going to be removed -- fibroids. Had surgery
>5 weeks ago. No cancer -- but had terrible endometriosis. Every thing
>was "like a solid block of concrete with lots of lesions" direct quote
>from surgeon. Both ovaries and tubes and total hysterectomy was done
>not sure if he did anything with the lesions. Niether one of my ovaries
>were functioning. Sorry about the long history. My question to
>everyone is -- I am very young and I need help with questions about HRT.
>My DR put me on the patch right after surgery-estradiol .1mg. I didn't
>even know I had endo--thought all my problems were from Fibro. Now
>after doing alot of research low hormones and endo sound just like
>Fibro. Since the surgery I am back to having bladder problems and the
>bowel movements are painful all the time. I know I still need to heal
>and will give it time. But I am worried about all those lesions--is
>that endo left in me??? I am also very interested in HRT. My sex drive
>is gone, which my husband would love to see fixed! Is anyone taking
>progestrone who has had a hysterectomy? what about testosterone? I am
>still trying to find out about all of this so please bear with me.
>Thanks in advance for any help you can send my way. I think I am really
>worried about the estrogen messing with the endo.
>
>Debbie

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