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Re: Diaphragm endo-Chest, right upper quad, shoulder pain
From: anonymous (anonymous@obgyn.net)
Sat Apr 13 00:48:47 2002
I haven't met Koh or Redwine, but both are very highly respected endo
specialists.
Do you experience nausea or burping for no obvious reason? Just curious.
At Fri, 12 Apr 2002, kalina wrote:
>
>Thank you do much for the info.
>
>My symptoms: Right upper quadrant pain deep beneath the rib. I can't
>pinpoint it from pushing, it's too deep. I would guess it is behind my
>liver. The pain shoots up my sternum on the right side and it is sharp
>and burning. It goes right up my neck hitting that big muscle to the
>right of the Adam's apple and I can almost feel it up to my ear. I also
>have pain above the right breast in the pectoral area-sometimes achey
>and sometimes sharp. The shoulder and arm hurt a lot. It is worse with
>activity, talking, laughing, breathing deep and burping. The more I
>rest and sleep the more it calms down. I have been off work for 1 1/2
>weeks now and it really seems to have lessened the pain tremendously.
>Working on the computer using that right arm all day and talking all day
>was really aggravating it. I've had every test in the book looking for
>other possibilities (endoscopy, gallbladder scans, colonoscopy, CT scans
>etc.) Nothing has shown up.
>
>I'm taking oxycontin 3x day 20 mg. For the 1st time in my life I missed
>my period and haven't had one now for 56 days. I never associated the
>pain with the period because it was constant pain-probably because I had
>2 laparoscopies in the last 6 months and I think they or the gas used
>irritated it to the point it was always in spasm. Before the 1st
>laparoscopy (August) I had just started to have a sideache like pain
>under my rib. My surgeon found a few spots on the front of the
>diaphragm which he though was endo and vaporized them (no biopsy), but 2
>endo specialists looked at the photos and both were skeptical that it
>was endo stating it looked like fat deposits. Dr. Koh is doing another
>lap on the 17th of April because I read articles that said the scope
>must be placed higher up by the ribcage in order to get a good look at
>the back of the diaphragm. My surgeon just put the scope through the
>belly button the last 2 times and admitted after reading these articles
>that a scope higher up may allow the surgeon to see better, so that is
>why we are trying again. Everyone is skeptical however that this is
>what I have and that anything will be found. A needle in a haystack.
>Even if the chance is small I want the opportunity to find what is wrong
>with me and possibly fix it.
>
>I have been reading some postings about Dr. Koh and Dr. Redwine and I
>welcome any comments about either one of these surgeons.
>
>At Fri, 12 Apr 2002, anonymous wrote:
>>
>>I've provided some links re endo and diaphragmatic endo. I can't give
>>you any feedback re diaphragmatic endo because I don't have it (my
>>symptoms had led me to believe that it was a possibility -- but a top
>>endo specialist checked it out and didn't see anything). I hope you'll
>>be having surgery with a specialist who is very familiar with this type
>>of treatment.
>>
>>http://www.thetrocar.com/journal/articles/art_005/articles_005.shtml
>>http://www.adlap.com/
>>
>>http://www.endometriosistreatment.org/html/reprint9.html
>>http://www.endometriosistreatment.org/html/reprinta.html
>>http://www.endometriosistreatment.org/html/questions.html
>>
>>I have read of some women who've had diaphragmatic endo -- they posted
>>at another endo mailing list which can be accessed via the below link:
>>http://www.ivf.com/witsend.html
>>
>>By the way, what exactly are your symptoms? Do you have shooting pains
>>in your chest/diaphragm/upper abdomen? Do you have rib pain? Where
>>exactly on your body do you experience your pain and could you describe
>>what kind of pain you experience (ie. shooting, dull, sharp, knifelike
>>stabbing, needle pricks, burning, etc.)?
>>
>>Hope this helps
>>
>>At Thu, 11 Apr 2002, kalina wrote:
>>>
>>>I'm still looking for anyone who has these symptoms or has been
>>>diagnosed with Diaphragm endo. Please let me know-my surgery is only 1
>>>week away.
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