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Re: Response to Kim 'Kim Noftall' <anonymous@obgyn.net>From: Ana (anonymous@obgyn.net)Thu Apr 11 02:16:38 2002
Veronica, I just wanted to let you know I understand how hard it is to have this disease and be going to college and all of that. I know I do not have it the worst off in the world, but like you I feel like I am dieing the majority of the time. SOmetimes I actually hope I will die just so the pain will go away. Last fall I withdrew from school for my endo, then in June I had surgery for it and was back in school and working 40 hours a week within a week. I sometimes wonder if I do not get better b/c I have to much going on to focus on my health. When the endo went into my bladder I chose to withdraw from school again. Sometimes I feel as though this disease is keeping me from accomplishing so many goals and getting in the way of my dreams. I also am concerned about the fact I am changing health insurance in a few weeks b/c I am getting married. My insurance has been awesome, and I am concerned about the new one. It is Blue Cross Blue Shield, which I know is extremely popular. Does anyone use that? I just wanted to let everyone know that in the last few days I have learned more about this illness then in the four years I have had it. Although I certainly hate that you all have this, it is still great to have people to talk to who understand. ANA
>----- Original Message ----- Hi Kim, I tried to e-mail you from home, but it kept coming back undeliverable. So here is my original e-mail: Kim, Hello. I was a bit surprised to receive your e-mail, but very thankful because now I don't feel alone. The last few days have been really bad for me, I've been having a lot of pain in my pelvis and back and it's radiating down my legs. I'm taking Darvecet's for the pain; however it just takes the edge off. I'm a bit reluctant to call back my current doctor because of what happened before. I'm trying to hold off until I see my new Doctor, but that won't be until May 14th. Sometimes I feel literally like I'm dying. My husband has been really supportive, but I think that he feels helpless. I'm beginning to think the reason why I feel so bad is because I chose not to continue with the Depo-Provera. This week would have been my third injection. So it might be hitting me hard. I understand that you're currently taking Amitriptyline. I've never heard of it. What kind of drug is this? As it stands right now I have already had 5 laps and a complete hysterectomy. I have also tried Lupron for six months and various other drugs. It's hard to believe that I still have endo. This time I was diagnosed with stage IV endo in my vaginal canal, pelvic floor and possibly bowels. I've been doing a lot of research on the internet, I have learned more in the last couple of months than I ever knew seven years ago when I had my hysterectomy. What other therapies have you tried? Have you had any surgeries? Did anything help? Some days I feel at my wits end. It seems that people around me just don't understand. If I'm having a bad day, some people have said that I just need to get this disease under control. Then I think "How do you control endo?" I don't want to sound bitter, but it seems I never win. I feel that it is affecting not just my life, but everyone around me. I really feel like it's affecting my two daughters the most. Until a couple of months ago I finally felt like I had my life under control. I'm attending college, which as been one my goals. But this endo is really starting to affect my education. I feel like I just can't keep up. My husband suggested I drop out until I get better. When he said that all I could do was cry. I don't want to drop out. I like college; it's just a little harder right now. I know that he was just trying to help, but dropping out is just not an option for me. I only have a couple of years left until I graduate. I have decided however to take the summer session off, in which I usually attend it. But I feel that if I just take that session off, It would give me some time and if I have to have surgery it won't affect my classes. I sorry to ramble on. It's just nice to talk to someone who understands. I hope that things are coming along well for you. Let me know about the Amitriptyline, I'm curious as to if it could help me. Thank you for replying personally. I hope that we can keep in touch. Veronica :)
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