ENDO Messages for April, 2002: Re: catamenial pneumothorax

Re: catamenial pneumothorax

From: Sarah (anonymous@obgyn.net)
Sat Apr 6 10:12:36 2002

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At Thu, 13 Dec 2001, Abby wrote: >
>Hi! This is the first time I've posted. I'm 26 years old and have had
>three collasped lungs in the past year. Two have required chest tubes,
>I've had thoracoscopy and also chemical pleurisy. Even though all three
>began on the day I started my period, some of my doctor's will not say
>for sure that it's endometriosis. It's been a rough year. I'm very
>interested in finding someone I can talk to who's lived through this.
>Maybe even someone who's found treatment that worked! My doctor right
>now want's to put me on Lupron, but I'm horrified by the stories I've
>heard. It's nice to finally find people who at least know what this
>is!!! I've love to hear from anybody, with any kind of experience. Thank
>you so much.

Hi Abby, I'm 34 and have had 6 big lung collapses on either the first or second day of my period.(you know, chest drain etc.) in the past 2 years. Like you drs are non. commital and just say endo of the lung is v. rare, but the more I read on the net the more I think that perhaps it is more common than they are aware of.I am awaiting a pleurectomy op.at Barts. (for 18 months so far)they strip the smooth pleura from the lung, is this similar to your ops? I was not offered a consultation with a gyny. dr., but I've asked my G.P. to refer me, I'm currently taking no medication, and dreading my period in case my lung goes down again. I hope the new drug works for you, I haven't heard anything about it, how does it work? does it mimick pregnancy? I'll message you again as and when things start happening for me, its so frustrating, I can't work full time as no will employ me, due to the probable endo. It feels like I'm on a conveyor belt, I haven't had a chance to ask questions about the op, and it's only because my mother and her sister both had endo, that I made the connection.My lung surgeon knows 'very little about it' in his words! It is heartening to find that I'm not alone. Thankyou for sharing your experiences, good luck with the next treatment, sarahx

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