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Re: Ovarian Remnant Syndrome, Leah
From: james (anonymous@obgyn.net)
Thu Mar 28 15:37:09 2002
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At Wed, 20 Oct 1999, JANET wrote:
>
>Leah,
> Hello. How are you today? I'm getting over a touch of a stomach bug
>(gastroenteritis,most people call flu), doing alot better today. I hope your
>husband does'nt have a reoccurance. Does he smoke? Is that what got him? The
>pain clinic i go to, I have a pain specialist as a doc, they are trained in
>treating pain. Ever kind of pain. I have had some of the epidural
>injections, which are supposed to be connected to all abdominal nerves, and
>help with pain. I've also had the injections into my abdomen, and of course
>they do sedate you, if thats what you prefer, which most do. You would of
>cours need a driver there with you to drive you home, because you would be
>groggy, part of the day. The injections in do make the pain worse for a day
>or two, but after that it does decrease the pain a little for a while. And
>the pain doc can get you on pain medications that woirk for you, you might
>have to go through a few different combinations to see what works well. I am
>on Motrin 800mg 3times a day, Oxycontin 2 times a day (time release
>morphine), and i also have prescription for a mild muscle relaxer called
>baclofen, for when the pain is unbearable.( Muscle relaxers are supposed to
>help with pain,especially severe.) And antidepressent, Zoloft, which also is
>supposed to help with pain. You dont get a hassle when you call in for
>refill on the medication either. Also, with the vicoden your doc is just
>thinking of you and the long term effects. Thats why they got me off of a
>acetaminophen based drug, because i would have to take too much to get
>relief and it would eventually ruin my liver. Well, I hope I answered any
>and all questions you may have had on Pain Clinics.? Gotta go. Jan
>-----Original Message-----
>From: Robert <anonymous@obgyn.net>
>To: Multiple recipients of list ENDO <anonymous@obgyn.net>
>Date: Monday, October 18, 1999 9:32 PM
>Subject: Re: Ovarian Remnant Syndrome
>
>>Jan:
>>
>>Thanks for the welcome. My weekend was pretty uneventful. My husband and
>I
>>rested quite a bit and relaxed and watched movies. I was in quite a bit of
>>pain so I took a few hot bubble baths and took pain meds. I'm tired of
>>having to lay around. It's not in my nature as I like to be up and about.
>>(My back has become quite sore since I've had to stay down a lot lately.)
>>I'll have my doc check into ovarian remnant syndrome when she does the lap
>>on 11/2/99. Guess at this point I'll just have to wait and see.
>>
>>My husband finishes radiation therapy tomorrow and then we'll move forward
>>into speech therapy to reteach him how to swallow food. The throat cancer
>>made it so the doctor had to remove the epiglottis and the back of the
>>tongue so he has quite a challenge being set before him. The part I hate
>>most about this whole thing is this particular cancer has a 70%
>reoccurrence
>>rate in the first year. Thanks so much for your concern and well wishes.
>>
>>By the way, I noticed in your message to somebody else that you mentioned
>>your pain clinic experiences. Can you tell what the average pain clinic
>can
>>offer for endo pain? My doc advised that if the lap doesn't solve the pain
>>that she wants me to start going to a pain clinic as she would like me to
>>get off the vicodin, if possible. I can't say I want to devote lots of
>time
>>and energy to it but do want to start checking into what they can offer.
>>
>>Hope your weekend was a good one and that your endo hasn't been bugging you
>>too much. Take care,
>>
>>Leah S.
>>Boulder Creek, CA
>>bobsmountain@compaq.net
>>
>>-----Original Message-----
>>From: JANET <anonymous@obgyn.net>
>>To: Multiple recipients of list ENDO <anonymous@obgyn.net>
>>Date: Saturday, October 16, 1999 7:24 PM
>>Subject: Re: Ovarian Remnant Syndrome
>>
>>>Leah,
>>> Hi and welcome to the group. I hope you find anough information you
>>need
>>>and possibly give advise to some that may be somewhat new to the whole
>>deal.
>>>I've been dealing with this crap for many years also and I have a husband
>>>and 4 kids to deal with and take care of on top of it all. Ovarian Remnant
>>>Syndrome is when some of the ovary (a microscopic piece usually) is left,
>>>unbeknownst to anyone, and starts to become viable again and cause the
>same
>>>symptoms, and act as though you still hav an ovary. Please feel free to
>>>contribute anytime you feel like, have a good weekend. Jan MI
>>>-----Original Message-----
>>>From: Robert <anonymous@obgyn.net>
>>>To: Multiple recipients of list ENDO <anonymous@obgyn.net>
>>>Date: Friday, October 15, 1999 4:42 PM
>>>Subject: Re: Ovarian Remnant Syndrome
>>>
>>>>D.N.
>>>>
>>>>My name is Leah and I just found this group on the internet two days ago,
>>>so
>>>>as you can see I am very NEW to what appears to be a wonderful group of
>>>>women.
>>>>
>>>>Briefly, I have been dealing with endo on and off for the past 17, almost
>>>18
>>>>years. I had a complete hysterectomy at the age of 25 as I was in too
>>much
>>>>pain to deal with the disease any longer. Unfortunately, endo returned
>>6.5
>>>>years after the hysterectomy was performed as an endocrinologist (hormone
>>>>specialist) had increased my estrogen replacement indicating endo
>couldn't
>>>>return this late in the game. It returned not only in 1997 it also
>>>returned
>>>>this year (1999).
>>>>
>>>>My question is this, what is ovarian remnant syndrome? I am scheduled
>for
>>>a
>>>>lap on 11/2/99 and would like to dialog with the surgeon to make sure she
>>>>looks for this condition if it seems like that might be causing the
>>return.
>>>>Both times the endo has returned in the cul-de-sac as I don't have
>>ovaries,
>>>>uterus or even the appendix.
>>>>
>>>>Please let me know so I can be prepared for my pre-op visit. Thanks so
>>>>much,
>>>>Leah S.
>>>>Boulder Creek, CA
>>>>bobsmountain@compaq.net
>>>>
>>>>-----Original Message-----
>>>>From: D.N. <anonymous@obgyn.net>
>>>>To: Multiple recipients of list ENDO <anonymous@obgyn.net>
>>>>Date: Thursday, October 14, 1999 7:19 PM
>>>>Subject: Re: For 25 years!!!
>>>>
>>>>>Hi Kristy,
>>>>>
>>>>>You sure have been an endo soldier. A constant battle. Did you go off
>>>>>the hrt? If so how long have you been off. Have you been checked for
>>>>>ovarian remnant syndrome, especially since they took your ovaries out
>>>>>after your hyst.
>>>>>
>>>>>I sure understand the anger and frustration that you have toward
>>>>>doctors, medical science and endo. I feel the same way. Chronic
>>>>>conditions are very difficult to deal with.
>>>>>
>>>>>I hope you get some relief soon.
>>>>>
>>>>>Best wishes,
>>>>>
>>>>>D.N.
>>>>>
>>>>>At Thu, 14 Oct 1999, Kristy wrote:
>>>>>>
>>>>>>I've had endo for 25 years, 22 of those with a diagnosis.
>>>>>>I've been on bcp, many different ones. I've tried danacrin
>>>>>>I've had 7-8 scopes. Two viable, Thankful blessed, pregnancies. A
>hyst
>>>>>>with leaving my ovaries. Which in 3
>>>>>>years had become huge with endo, and also painful. And the ovaries
>were
>>>>>>removed last year. And now I am having pelvic pain. Why? Because all
>>>>>>of the endo wasn't gotten a year ago and the doctor BROKE to of the
>cyst
>>>>>>in my abd. Then this summer my HRT patches wouldn't stay on, so I took
>>>>>>it orally. And the endo grew and grew and grew. And now I'm in pain.
>>>>>>And very tired of dealing with endo.. I guess I'll have to have one
>>>>>>more surgery. Right now I'm just so tired of it, so sick of the pain.
>>>>>>So angry of the time and energy and health that it has robbed me of.
>>And
>>>>>>I know that it could have been worse. But, I just needed to tell
>>>>>>someone that understands. Thank you for listening.
>>>>>>
>>>>>>--
>>>>>>Kristy
>>>>>>
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