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Re: Anyone experienced discrimination at work due to endo?From: anna (anonymous@obgyn.net)Wed Mar 27 11:06:06 2002
At Wed, 27 Mar 2002, Wendi wrote: > >Mary, > >Wow! That was some wonderful advice. What you said about you being 40 >years old and your mother just starting to understand your condition, >and about employers! My employers of course know what's going on, but >I'd never thought of actually showing them some documentation on the >disease itself. It's people like you that help us to learn a little >something everyday. > >Thanks sweetie!! I really enjoyed that email. >Hugs, >Wendi > >P.S. Sorry to butt in. :) > >At Tue, 26 Mar 2002, Mary wrote: >> >>At Tue, 26 Mar 2002, anna wrote: >>> >>>At Tue, 26 Mar 2002, Joan wrote: >>>> >>>>Hello everyone- >>>> >>>>I am currently having problems at work due to the time I am missing >>>>because of endo. I work at a busy office, and I miss about 2 days a >>>>month because of endo pain. Recently, I have been being treated like I >>>>am not part of the team and am letting everyone else down because I am >>>>not there. I have heard rumours that the boss is considering firing me >>>>because of my missed days. >>>>Anyone experienced anything like this? Any advice? >>>>Thanks, >>>>Jo >>> >>>i had the same problem until they decided to fire me and i am thinking >>>of hiring a lawyer since i have a lot o notes i brought them. try to >>>take a doctor's note to your work explaining that you will need so many >>>days a month due to illness. i work in hr well not now but legally you >>>can have 3 months of leave of absent if you take 2 a month that is about >>>24 days. talk to your doctor. if you get fired you will be protected >>>if you decide to hire a lawyer. >> >>Hello Anna and everyone, >>We are constantly learning(the hard way mostly) with endo. We find it >>hard to understand what we are going through but we get through it by >>helping one another. So we have to stop and think, how can those who >>have no idea about the disease understand when we don't always. We have >>to teach them. Supply them with documentation on the disease, the >>symptoms the effects(physical and psychological), the treatments and all >>the horror stories which come with them, the fact that they don't know >>the cause of endo and that there is no cure. We are exhausted from the >>disease and we have to battle those closest to us because they don't >>know, so we have to find the energy to teach them. A friend who I've >>known for almost 20 years seemed to understand. Yet, a month ago, after >>seeing a documentary on endo, she said to my husband"Mary is really sick >>isn't she?" My gut reaction was to call her and say"Duh, where have you >>been all this time?" Our emotions and fears get in the way and we don't >>always explain what we're going through. We have to teach everyone. >>After many absences over the years,then 6 weeks off last fall, and 1 >>week off for a ruptured cyst, plus a sick day here and there, it was >>suggested from my employer that maybe I retire or think of other things >>I may want to do which are less hectic on my health. She meant well but >>still, the pressure was there. I no longer felt comfortable or secure >>about my job after that. I gave her facts on endo, the survivor's >>letter, and my own testimonial and story which I had written for a press >>conference. I give her updates on horror stories about endo, Lupron, >>Depo,tamoxifen...etc. >>I feel like i no longer have the energy or want to battle people and get >>their approval that yes I am sick. I'm tired of fighting for >>credibility, but I have no choice. As long as you cover your a__,pardon >>my bluntness, no one can give you grief. Especially employers. Get >>medical certificates if you have to. I don't know how it works in the >>States, but I try to get notes from doctors when I see them. Things are >>a bit better at work because now my boss understands a bit more and >>doesn't just hear me say i'm in pain.I elaborate. >>I'm almost 40 and after suffering for what seems like forever, my own >>mother is just beginning to get the picture. We have to keep in mind >>that our frustrations sometimes get in the way of getting the right >>message across. I know that is the case for me, so I'm trying to teach >>those around me as much as possible. >>Take care >>Mary well we all have to pray that everything goes well for us.
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