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Re: Anyone experienced discrimination at work due to endo?From: Mary (anonymous@obgyn.net)Tue Mar 26 21:29:33 2002
At Tue, 26 Mar 2002, anna wrote: > >At Tue, 26 Mar 2002, Joan wrote: >> >>Hello everyone- >> >>I am currently having problems at work due to the time I am missing >>because of endo. I work at a busy office, and I miss about 2 days a >>month because of endo pain. Recently, I have been being treated like I >>am not part of the team and am letting everyone else down because I am >>not there. I have heard rumours that the boss is considering firing me >>because of my missed days. >>Anyone experienced anything like this? Any advice? >>Thanks, >>Jo > >i had the same problem until they decided to fire me and i am thinking >of hiring a lawyer since i have a lot o notes i brought them. try to >take a doctor's note to your work explaining that you will need so many >days a month due to illness. i work in hr well not now but legally you >can have 3 months of leave of absent if you take 2 a month that is about >24 days. talk to your doctor. if you get fired you will be protected >if you decide to hire a lawyer. Hello Anna and everyone, We are constantly learning(the hard way mostly) with endo. We find it hard to understand what we are going through but we get through it by helping one another. So we have to stop and think, how can those who have no idea about the disease understand when we don't always. We have to teach them. Supply them with documentation on the disease, the symptoms the effects(physical and psychological), the treatments and all the horror stories which come with them, the fact that they don't know the cause of endo and that there is no cure. We are exhausted from the disease and we have to battle those closest to us because they don't know, so we have to find the energy to teach them. A friend who I've known for almost 20 years seemed to understand. Yet, a month ago, after seeing a documentary on endo, she said to my husband"Mary is really sick isn't she?" My gut reaction was to call her and say"Duh, where have you been all this time?" Our emotions and fears get in the way and we don't always explain what we're going through. We have to teach everyone. After many absences over the years,then 6 weeks off last fall, and 1 week off for a ruptured cyst, plus a sick day here and there, it was suggested from my employer that maybe I retire or think of other things I may want to do which are less hectic on my health. She meant well but still, the pressure was there. I no longer felt comfortable or secure about my job after that. I gave her facts on endo, the survivor's letter, and my own testimonial and story which I had written for a press conference. I give her updates on horror stories about endo, Lupron, Depo,tamoxifen...etc. I feel like i no longer have the energy or want to battle people and get their approval that yes I am sick. I'm tired of fighting for credibility, but I have no choice. As long as you cover your a__,pardon my bluntness, no one can give you grief. Especially employers. Get medical certificates if you have to. I don't know how it works in the States, but I try to get notes from doctors when I see them. Things are a bit better at work because now my boss understands a bit more and doesn't just hear me say i'm in pain.I elaborate. I'm almost 40 and after suffering for what seems like forever, my own mother is just beginning to get the picture. We have to keep in mind that our frustrations sometimes get in the way of getting the right message across. I know that is the case for me, so I'm trying to teach those around me as much as possible. Take care Mary
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