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Re: very trying times...From: anna (anonymous@obgyn.net)Fri Mar 15 21:16:44 2002
At Fri, 15 Mar 2002, Veronica wrote: > >Dear Anonymous, >I'm sorry to hear your times have become trying. I'm glad to hear that >your lap went well, although unfortunately this is the only way of >diagnosing endo. I am a little curious as to why your doctor didn't >remove the endo on your ovary. It seems to me that the endo left behind >could continue to grow and cause more damage. Perhaps you could >consider getting a second opinion. It never hurts. She is right about >trying to get pregnant; endometriosis is such a terrible disease. I was >told after my second daughter was born that I could no longer bear >children because my uterus was completely contaminated with endo. It >broke my heart. I ended up having a complete hysterectomy (ovaries and >uterus). Now 7 years later I have been diagnosed with stage IV endo in >my vaginal canal and pelvic floor and I am also only 29 years old. >Forgive me, but I have a few things to say about your husband. It >sounds as though he is the one who is immature and needs to be educated >on this disease. Although, my husband understands now, it took him >awhile to get to that point. He said a lot of cruel things to me also >in the early days. Later I found why, he was frustrated because he >didn't know how to help me and he didn't understand the disease. Has >your husband gone with you on your visits to the doctor? If so, is he >involved? If not, maybe explain to him how important it is to you for >him to be there. Maybe then he will start to grasp the situation. >Sometimes when I am having a bad day or someone doesn't understand why I >am sick I remember this quote: > >"Endometriosis is a progressive, ongoing and long term disorder. Like >most diseases, endometriosis is not fair. It can rob a woman of her >ability to have children; it can cause pain that severely interrupts >everyday existence. Endometriosis is without question one of the most >puzzling conditions that affect women. One assumption about >endometriosis is that it is not a serious disease because it is not a >killer. However, the havoc it renders on a woman’s' well being and her >life style make it a known chronic, disabling disease. Endometriosis is >a condition that can not be prevented or cured. Treatment, however, can >help control the symptoms." > >My point with this is that people who don't understand; can't >comprehend. If more people were educated about endometriosis, I believe >that there would be more compassion and research done to find a cure. I >will keep you in my prayers. > >Stay Positive and remember there is Hope! > >-- >Veronica :) > >At Fri, 15 Mar 2002, anonymous wrote: >> >>I had my first lap about a week and a half ago and was diagnosed with >>endo. It was covering my utesacral (sp?) ligament and there was a small >>amount on my right ovary, which the doctor did not touch because she >>thought removing it would cause scar tissue which would be worse than >>the endo itself. (seems a little strange - I thought they would remove >>it all) >> >>My doctor told me the best options now are to get pregnant, go on Lupron >>or go back on the pill (in that order.) I've been on the pill for years >>and it never stopped me from having excruciating period and the >>breakthrough bleeding was awful - and I tried every pill there is. >> >>The problem is, I am ready and dying to have kids. I have been married >>for 2 years, am 29 and in a financially secure position. When I tried >>to discuss the options with my husband, he said there is absolutely no >>way that we are having kids now. I was completely shocked - I thought >>he would understand that, given the circumstances, we might want to >>change our plans a little. He said that he doesn't care if it turns out >>that I'm infertile down the road. I am flabbergasted by his stubborn >>and cruel position and frankly just don't know what to do. All of a >>sudden he is saying that I am not mature enought to be a mother and that >>I'm using this disease as an excuse for getting pregnant. He said that >>he will sooner leave me than have children. >> >>I am overwhelmed with sadness. I thought we had a good marriage and was >>sure we would start trying soon. I do not think that our marriage will >>survive this and I am so angry I don't know what to do. >> >>Thank you for listening. I hate to whine and go on and on, but I don't >>have anyone else to turn to. >> >>Jessica > hi, i also think you should get a second opinion. i also know that even if the endo is taken away there is always the possibility that there will be more that can not be seen because this is what is happening to me. i don't mean to be cruel or anything but i think your husband is not a very nice person. you should try to have him go with you so he could understand the disease. i am separated for different reasons but endo was included in it. my husband never understood what i was going through and even when the doctor explained to him he still did not get. i am 29 now but i waited too long to realize my husband was not going to change, and it took me a long time to see it. i think if you husband tells you he better leave than have a child than he does not deserve to have someone like you. and don't be sad remember that every thing comes around. i will pray for you.
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