Re: Article on Endometriosis Published World Wide
From: B.Browne (anonymous@obgyn.net)
Tue Mar 5 01:31:03 2002
Dear Cindy,
I also understand exactly what you are saying and where you are coming
from. I think there are many of us who can also relate. Its difficult
having such a disease as Endo, which is poorly understood and so
everyone around us is not educated either and so there for they don't
understand and they can't be understanding to us..its a a catch 22
situation.
Anyway its great that you are here amongst such wonderful endo sisters,
who care and understand what you are going through.I am always here for
any of you and if you need me urgently just email me at
BBrowne2000@hotmail.com or Support@endometriosis.org and I will get back
to you as soon as I can.
Take Care Cindy and Hang in there, remember you have friends and endo
sisters here that care.
With Warm Wishes,
Belle
--
At Mon, 4 Mar 2002, cindy thorn wrote:
>
>I just want to say that i thought i couldcope on my own with out
>chatting or posting but its getting to the point that all i have is
>fellow suffers and my husband but even hefinds it hard to uderstand .
>
>This poting which was clearly mant to help us understand we must do
>something and to et s know we are not alone brought tears flowing down
>my
>i know to well the inner pain of endo and emotional suffering that is
>brought
>on by this disease and it is true in my dealing with dctors that when
>one cant help or sees no help in your future they pass you on to anpoher
>and another ell you are left suffering in what they hope to be silence i
>have been told by two of mydoctors tat due to that fact its not a
>disease like cancer and it only affects women that tere is no funding or
>need to research this disease any further but it is much more than
>reproductive to me i have been through days straight of crying , pain
>causing me to curl up like a infat child in need of affe4ction from a
>mother, anger to those around me who deny me aid , hate to tse i love
>for noit understanding my pain , ad disgust at my self for some how
>making this happen i feel its like cancer in every way we are sick we
>are helpless and feel alone and this disease has caused me to become so
>depressed i cant evengo out ofhouse without thinking about all the drugs
>i have been on and how enormous i feel i have become my husband and i
>feel that anothr child woul help us both emotionally bu not with endo
>and frankley he is all as well as children that has kept me wanting
>tolie this disease afects us so painfull that are dail thoughts get
>confused and clttered rendering us suicidal or depressive to me just
>another way for octors to keep passing us along from one to the next . i
>just want to say thankyou to you all for posting such brave questions as
>well as articals that help those like e who do feel so violated,
>humilate and alone. i have been trying to cope knowing i have a large
>mass growng on cervix that they passed off as endo that is getting
>larger daily i can feel the wieght the pain more intenly and periods
>well there constant spotting or heavy flow i just want to say that
>altough this disease is not life threating in there minds to those of u
>who have it we feel alone like lab rats just waiting for them to realize
>it is much more than meets the eye.
>
>mylove and prayes to alli hope the day brings you strength and i hope
>this sensless rambling i just typed forth makes some sense to you.
>
>love o all my sisters
>cindy
>
>--
>cindy thorn
>
--
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Belle Browne R.N Medical Advisor
http://www.endometriosis.org
Producer of the Documentary" Endometriosis The Inside Story"
Read about the Documentary at : http://www.endometriosis.org/html/video.html
Australian/International Endometriosis Representative
email support@endometriosis.org
Owner Female Chronic Pain Sufferers Forum
to subscribe send an email to
FemaleChronicPainSufferers-subscribe@yahoogroups.com
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