Re: Article on Endometriosis Published World Wide
From: anonymous (anonymous@obgyn.net)
Tue Mar 5 01:10:45 2002
Dear Heather,
Thankyou so much for your kind words it always means alot to know others
care and appreciate. I hope you are doing well and your symptoms are
under control.
My Best Wishes to you,
Belle
--
At Mon, 4 Mar 2002, anonymous wrote:
>
>Dear Belle,
>
>I am already familiar with this article, but I never tire of reading it.
>I wanted to tell you how much I appreciate all that you do for the good
>of the Endo community. You are a true inspiration and a wonderful
>EndoSister! Thank you for all that you do, and keep up the great work.
>It does not go unappreciated or unnoticed.
>
>Hugs and painfree wishes,
>Heather
>
>At Mon, 4 Mar 2002, B.Browne wrote:
>>
>>Titled :Who's Going To Teach My Doctor About Endometriosis"
>>
>>I began nursing School at 17 years old and I had my first symptom of
>>Endometriosis at age 16 years old. That was in 1979... It is now 23
>>years later and many doctors and even more nurses are still not educated
>>in caring for and looking after or even treating an Endometriosis
>>Sufferer .
>>Marilyn Monroe suffered from Endometriosis and it is said that when she
>>went in for one of her surgeries, she taped a note to her stomach,
>>pleading with doctors not to take her female parts. Queen Victoria was
>>heard to have said " The only time she felt good, was while she was
>>pregnant " They say... thats the reason why she had so many childern.
>>
>>Endometriosis was first reported in roughly 1600 BC. It is now 2001 and
>>we are no closer to finding what causes this disease or how to treat it
>>and there is no cure in sight.
>>This female disease, which effects conservatively 1:10 women or nearly
>>90 million women world wide. There are many theories and one is that
>>dioxins play a huge roll in endometriosis, with their effect or damage
>>to the sufferer's Immune systems.The oldest theory is retrograde
>>mensturation but that is getting more unlikely. The disease being
>>Genetic ,is becoming more favourable. No matter what causes this
>>debilitating and painful disease, we need more people educated,
>>especially within the medical community.
>>With a ratio of 1:10, there it is every chance that we all know someone
>>suffering from Endometriosis. Whether its your Wife, Mother, Sister,
>>Aunty, Cousin or even Inlaws. There is a chance that one of your family
>>members might end up suffering this incurable, insidious disease.
>>
>>The doctors don't know how to treat it, with the exception of excisional
>>surgery and removal of the disease. But so few doctors know how to
>>perform this surgery.Which is said to be the most difficult surgery,
>>harder than cancer to remove.
>>Endometriosis is thought to be an auto immune disease, where misplaced
>>endometrial tissue, which belongs inside the uterus, is found outside
>>the uterus. This misplaced endometrial tissue, bleeds internally, the
>>blood has no where to escape to and so it causes swelling and irritation
>>and then this all in turn, causes debilitating, unbearable pain. Later
>>forming adhesions and often causing infertility. Infact Endometriosis
>>is the leading cause of infertility in the world and some patients do
>>present with no pain and only infertility, this makes the disease even
>>harder to understand and diagnose. Some women with severe disease have
>>no pain or symptoms besides infertility and others who have minimal
>>disease, have a huge amount of pain. The only Consistency with
>>Endometriosis is the Inconsistencies.
>>
>>There is a desperate need for education, not only for the public to be
>>aware but mainly amongst the medical community it general. None of them
>>seem to be able to handle or treat an Endometriosis Sufferer. When a
>>doctor doesn't know or understand something and he can't go and look it
>>up, due to the lack of updated information in the medical books
>>available, then he can't be the God, that he thought he was or wants to
>>be. If thats the case and he feels like a failure, this can be very
>>bruising to a training doctor's ego, let alone the best Gyneacologist,
>>who is not up todate on a disease, which is becoming way out of hand.
>>There are only a couple of handfuls.. of recognized Endometriosis
>>Specialists worldwide, they are just few and far between.
>>The doctors who have branched into Endometriosis, have either worked in
>>infertility or as endocrinologist's or a gyneacologist who has branched
>>into endoscopic surgery( keyhole surgery) These doctors are very hard to
>>find and sufferers need all the help they can get at finding them.
>>Otherwise many sufferers get onto a merry-go-round of continuous
>>surgeries, each causing more adhesions and more pain and if all their
>>disease is not excised and every bit cut out, it can only take a few
>>weeks to a month before it may all grow back. The patient then again
>>presents in pain and surgery is the only way to check on the disease.
>>The patient is very quickly labelled a complainer or even a
>>hypochondriac. So ofcourse they give into more surgery.
>>It is a terrible merry-go-round to get on and then to get off it, can be
>>very hard, by then all the damage has been done. Some women are
>>reporting up to over 20 surgeries. If they had had a recognized endo
>>surgeon, in the first place, for their first surgery, they may have been
>>put into remission, in the early years of their disease.
>>
>>Endometriosis Sufferers are encouraged to join their local Endometriosis
>>Association in their country. A good place to start is at the website
>>http://www.endometriosis.org Go to the Support page on this site and it
>>lists alot of the Endometriosis Association's or Organizations all over
>>the world.
>>There is also a Great first ever made, Up todate Documentary called
>>Endometriosis The Inside Story go to
>>http://www.endometriosis.org/html/video.html and you can read all about
>>it and its reviews or even how to order it.
>>There is help out there but you have to look hard for it and researching
>>Endometriosis, is the sufferer's best weapon, against this incurable,
>>insidious and extremely painful disease. Get educated and quickly.
>>
>>By Belle Browne R.N
>>
>>--
>>*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*
>>Belle Browne R.N Medical Advisor
>>http://www.endometriosis.org
>>Producer of the Documentary" Endometriosis The Inside Story"
>>Read about the Documentary at : http://www.endometriosis.org/html/video.html
>>Australian/International Endometriosis Representative
>>email support@endometriosis.org
>>Owner Female Chronic Pain Sufferers Forum
>>to subscribe send an email to
>>FemaleChronicPainSufferers-subscribe@yahoogroups.com
>>*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-*-
>>
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