Re: am I nuts
From: D.N. (anonymous@obgyn.net)
Mon Mar 4 13:33:00 2002
Tracy,
Boy, do I agree with you. I was misdiagnosed with IBS by my former
internist. A couple of years later she also misdiagnosed a fibroid the
size of a two and half month pregnancy. Blows my mind that she couldn't
tell that something was wrong with my uterus during a pelvic, not to
mention my excessive bleeding. I had to have a hyst ( which was very
traumatic- ended up in ICU- because of the delay in diagnosis) and endo
was found (was suspected prior to the surgery) with my uterus, left
ovary and sigmoid colon all adhered together. No wonder my colon was
"irritable." I personally think that not enough is known about endo and
what it does to us, so that is why our symptoms get other more "rational
and scientific" diagnoses attached to them.
Best wishes,
D.N.
At Mon, 4 Mar 2002, Tracy wrote:
>
>I am so tired of GI docs claiming every problem that we have is IBS. IBS
>is a trash-can diagnosis for "I have NO clue what is wrong with you". GI
>docs have been telling me that I have "IBS" for 3 years, finally, a real
>physician found out that my whole problem was ruptured hemmorrhagic
>ovarian cysts and Endometriosis. I have even tactfully explained to all
>of my past GI docs that they have misdiagnosed me, and to try finding
>out what is actually wrong with a young woman in their offices with
>bowel changes, etc.....Go to your GYN, and find out what is really
>wrong!
>Tracy
>
>At Fri, 1 Mar 2002, Lauren wrote:
>>
>>No,
>>You are not nuts at all. I suffer from iBS and endo(have you been checked
>>for IBS) It causes horrid tummy spasms, colon spasms etc.
>>I also have severe discomfort with bowel movements.
>>I use no medication for the IBS, as I feel it does nothing except make
>>matters worse. Also I have just come off some REALLY strong pain medication
>>for the endo, I was taking really strong stuff everyday, and it was harming
>>my body. ( I had a hysterectomy almost eleven weeks ago)
>>I am trying to stay off ALL meds. I have learned how to eat correctly,
>>and use some teas for the gastric problems. The only med I am taking is a
>>PPI for an ulcer, nothing else helps, but I also watch my diet for that.
>>I am also managing the endo that was left behind with diet. If you would
>>like more info feel free to e-mail me at laurenr@lantic.net.
>>(((HUGS)))
>>LAUREN
>>
>>>>>----- Original Message -----
>>From: Jennifer <anonymous@obgyn.net>
>>To: Multiple recipients of list ENDO <anonymous@obgyn.net>
>>Sent: Thursday, February 28, 2002 11:54 PM
>>Subject: Re: am I nuts
>>
>>> At Thu, 28 Feb 2002, Jo wrote:
>>> >
>>> Hey Tracy,
>>> I also take amitryptaline for its muscle relaxing properties. I just
>>> always make sure I take it an hour or so before I want to go to bed, and
>>> it definitely keeps me from waking up all night because of the pain.
>>> I've been on it since Dec. 99. It has done a lot for the spasming
>>> pain, and yes, I definitely know what you mean about the bowel effects.
>>> I also have IBS - if you're having a lot of gastro symptoms, you might
>>> want to check into it. In fact, my GI doc did a bunch of tests and told
>>> me that my IBS is, get this, worsened by the endometriosis.
>>> And one of the 5 docs I've had in the past three years told me that the
>>> muscle spasms ARE related to the endo. She said it was like when you
>>> get a headache, eventually your neck hurts, too, because your body has
>>> been trying to protect your hurting head, and in the process, it wears
>>> your neck out.
>>> For the spasming pain that is linked to my bowel disorder, I take an
>>> antispasmodic, and I've learned a few lamaze-like breathing techniques
>>> that work pretty well if the pain is bothersome and hurty, but not so
>>> bad you want to cry, you know what I mean?
>>>
>>> Good luck, hope this helps,
>>> Jen G.
>>>
>>> I have been having a sever pain in my right abdominal area. I went to
>>> the Dr and he did some
>>> >testing and said that it is a muscle that is having spasms causing the
>>> >pain. He then put me on amitriptylne an anti depressant that is also
>>> >used for chronic pain. Due to the face that I am not depressed it
>>> >knocks me out sure I don't hurt that I know of because I am in a coma
>>> >like state 30 min. after I take it.
>>> I am sure many of you know that
>>> >routine. Any how I have noticed when I have a bowel movement that the
>>> >same place where the pain comes and goes almost feels like it is being
>>> >pulled on from the inside. The Dr doesn't feel there is any connection
>>> >with the muscle pain and the endo. Somehow I am not convinced. Anyone
>>> >else have anything like this happen or any suggestions........
>>> >Thanks ladies
>>>
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