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Re: BCP's and endo ovarian cysts (AMY)
From: amy (anonymous@obgyn.net)
Sun Mar 3 08:29:20 2002
At Wed, 27 Feb 2002, Wanda wrote:
>
>Welcome to the Angel Family, Amy
>
>The experience you had with the BCP is very much like the one that I have
>had. In 1997, I went to the ER for severe, all of sudden pain on my right
>side. They found through an ultrasound a small but evident cyst. For a year
>after, and several BCP's, I finally had to have emergency surgery because
>the cyst had grown to 6CM and was twisting my ovary.
>
>Many GYN's state that the BCP is supposed to help dissolve or eliminate
>cysts......UGH...I don't believe it for one moment. Because I have been on
>BCP's since I was 15 for severe pain during my periods.
>
>Please feel free to e-mail me privately!!! endo93@hotmail.com
>
>Hugs and love,
>Wanda
>
>>>----- Original Message -----
>From: "amy" <anonymous@obgyn.net>
>To: "Multiple recipients of list ENDO" <anonymous@obgyn.net>
>Sent: Sunday, February 24, 2002 7:12 PM
>Subject: BCP's and endo ovarian cysts
>
>> I can't tell you how wonderful to find a forum with so many women! So
>> many positive thoughts going out to all of you. I was diagnosed with
>> via lap 10 years ago and had laser surgery to remove it.
>>
>> This is an alert about BCP's and also a plea for advice...
>>
>> I went on ortho cyclen about 8 months ago and within one week was in
>> severe pain on my right side about 3 hours after I took the pill. The
>> pain lasted for about 7 hours and was often unbearable. It also made my
>> bm's quite painful and difficult. I, of course, checked with my doctors
>> and contacted everyone I knew asking them if they had ever heard of such
>> a thing or had had similar side effects. I even contacted the Pill
>> manufacturer. My doctors said it was just my body adjusting and that it
>> would take five months to "even out"... I started taking my pill at
>> midnight hoping I would sleep through it, but even that didn't help and
>> I would wake up and find myself curled in a ball from the pain. After
>> five months of this insanity I told my gyno that I was going off the
>> pill I didn't care what she said. I was due for my annual at the same
>> visit and during it she felt an abnormality on my uterus and decided to
>> send me for an ultrasound. They found an endometrial cyst larger than a
>> baseball on my right ovary. I have since found out that the endometrial
>> lining grows with estrogen and that the pill I was on released a steady
>> dose of estrogen everyday. I am sure that I had a smaller manageable
>> cyst for a long time, but that the hormones of the pill kicked it into
>> overdrive and made it grow as big as it has. PLEASE BE CAREFUL, I hope
>> nobody has to go through what I am going through. I would also be very
>> interested in hearing if anyone else has had a similar experience (my
>> direct email is amybnyc@hotmail.com)
>>
>> In terms of advice... I live in NYC and would really like to find an
>> experienced female doctor who also respects and even incorporates
>> alternative medicines and perspectives into her healing (acupuncture,
>> Reiki, nutrition, etc) If anyone knows of such a person... also - if
>> anyone has had any luck with anything other than surgery of hormones
>> PLEASE let me know.
>>
>> Love goes out to all of you,
>> Amy
>>
--
Dear Wanda, Thank you so much for your email - I have no doubt that it is true and just want to be sure as few people are effected by it as possible. Have you ever come across and studies or articles linking BCP's and endo flairups? I would really like to educate my doctors/nurses so they don't continue to prescribe high estrogen bcp's to endo sufferers. What did you end up doing? I'm trying to hold off surgury, but am getting worse... I'm unsure how long I should actually wait before I cause severe damage. This is all so horrible.
thank you so much for your email and thoughts,
hugs,
amy
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