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Re: 3 mos post-hysterectomy chronic pain
From: anonymous (anonymous@obgyn.net)
Sun Feb 3 22:59:15 2002
At Fri, 2 Mar 2001, suzanne wrote:
>
>I had tah/bso for severe endo, adhesions and adenomyosis. Within 2-3
>months after that surgery my pain came back with a vengence. I also had
>severe bladder and bowel symptoms. Hysterectomy is not a cure for
>endometriosis, so there is a chance you may still have endometriosis in
>your pelvis.
>
>I had surgery with an endo specialist 8 months after the tah/bso and he
>found a great deal of endo left in me (even though the first doc swore
>he got it all!).
>
>Endo was found on my bladder, ureters, colon, rectum, vagina, and broad,
>round and utersacral ligaments. Plus my entire peritoneum was invaded
>with endo. If your surgeon is not an endo specialist, he may not be
>familiar with the many appearances of endo, including microscopic and
>may have left some.
>
>The Endometriosis Sourcebook contains much information regarding
>endometriosis continuing after hysterectomy. Also the following website
>may be helpful: http://www.scmc.org/endo/html/reprint7.html
>
>It was a difficult time in my life, especially after going to the endo
>of the line and still be suffering. But I am happy to say I am endo
>free and pain free after 26 years with this disease. I only wish I had
>known about the endo specialists sooner.
>
>You can e-mail me anytime at living@nwlink.com
>
>--
>suzanne
>
>At Wed, 28 Feb 2001, anonymous wrote:
>>
>>Hello everybody,
>>I am 3 mos post-op TAHBSO,for uterine wall thickness endo.I also had a
>>prolasped sigmoid colon,cystic cervix & ovaries.My left ovary contained
>>a large 4cm abcess.I was re-hospitalized 7 days post-op for multiple
>>seroma's(fluid collections)recieved 7 days of IV antibiotics.I have been
>>closly followed by my surgeon,CAT scans,labwork.All but one seroma has
>>resolved and it is 3mm round buy 4 inches long and is located between my
>>bladder and rectum.I have been on oral antibiotics(leviqin)until 2 weeks
>>ago.
>>I have chronic pain(threw away pain pills..didnt help noway)in my lower
>>addomen,sharp,and intensed by walking,sneezing,laughing,and peeing.I
>>have a chronic clear vaginal discharge which cultures negative for
>>bacteria.I have been treated by my urologist twice this month for UTI.
>>My spouse and I only recently attempted intercourse and noticed that the
>>discharge became very heavy and I felt a sharp pain in the upper left
>>vagina and left side pain.I also have developed right elbow
>>pain,bilateral hip pain and sharp shooting pain down the backs of both
>>legs when i stand from a sitting posistion,sometimes I have rectal pain
>>as well.Sorry i have rambled,but I am really concerned,my Gyna just
>>keeps telling me about the same.Will see him in the morning.Is this
>>common so far out after surgery or has anyone else have or had the
>>same??? Thanx
>
I just had a hysterectomy 3 months ago for fibroid tumors and had my
cervix removed. I never imagined what was in store for me. I wish I
would have researched possible complications w/ hysterectomies more
thoroughly before I proceeded with it. I also had severe spasms of the
bladder with incontinence (which really freaked me out - because I have
never had bladder problems in my life) and bowel symptoms - severe
constipation and gas. I don't have ENDO. I had severe lower back pain
and pain running down my legs. The urethral incontinence and the back
pain stopped after I had a procedure by an anesthesiologist who put a
short catheder under the skin over the sacral nerves and injected it
with depo-medrol. The back pain and leg pain went away almost instantly
and has not returned and it has helped stop the urethral incontinence.
It appears that during a hysterectomy or other major surgery the nerves
in your back get traumatized and quit working until they regenerate -
this may take up to six months. With the depo medrol injection it
reduced the inflammation in the nerves in the lower back and the bladder
started responding again and I started regaining control. This helped
me, but there could be serious side effects by using depo medrol - but I
did not experience any problems. I still experience excessive vaginal
wetness and I don't know what I will do about that. I hope I have
offered some information.
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